Some news about a possible treatment for SPS--research to be presented at an upcoming conference of the American Academy of Neurology:
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(News release) Plasmapheresis for SPS?
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Brain and Metabolic changes from SPS
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very interesting article... -
Stiff Person Syndrome Paralympic Swimmer takes Bronz
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This is truly amazing!Last edited by Sunshine 2; 09-04-2021, 04:13 AM. -
Great article on the odyssey of being Dx’d with SPS, dismissed as “stress” etc.
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Camp Crip: A Disability Revolution on Netflix
This was on the NYT must watch list of movies on Netflix. I have only watched the first few minutes but already I am hooked. It is a camp for crippled... -
Invisible Illness: Essay from a woman with Stiff Person Syndrome
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So easy to relate to this. -
Pediatric Stiff Person Syndrome
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Interesting article, even if brief. The length of time to... -
New approach to SPS with old medication
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You can read the abstract and share it with your doctor. -
Progressive nature of Stiff Person Syndrome: Article on longitudinal study
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This is a free Pubmed article by a leading researcher in... -
Acoustic Startle Response in Stiff Person Syndrome
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Unsure why Mayo calls it Stiffman syndrome. -
Nayzilam as a treatment for severe spasm fast
FDA just approved Nayzilam, It is versed in a nasal spray. You spray it in your nose and the spasm stops fast. Its like an emergency agent that can be... -
Stiff Person Syndrome, COVID, Eviction
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This is heartbreaking. Sub the word “MS” or any debilitating... -
Summary of SPS:
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CHronic Care Management : Medicare service that looks very helpful
Have you used this?
My new PCP signed me up for it. It give me 24 access to the doctor who can make things happen, through a triage nurse. That... -
Functional Neurological Disorder vs Stiff Person Syndrome
This is an article about a teen who looked like he has SPS. He went up to Mayo who undiagnosed him and said he has Functional Neurological Disorder. They...