Different world perspectives

[Filip]

Hello.

I have a question and I don't know if this is the right place to look for an answer but it's worth a shot. Since I was a kid I was able to see the world around me and in my brain in two possible ways. It first started happening when I was around 10 y.o. so I can't really tell what caused it to happen. Sometimes it occurs randomly and I do not control it, but I can mostly change it manually if I think of some street or intersection where it's most likely to change. No one ever belived me when I was a kid so I don't really talk about that, also because it does not affect my life so much. The only problem I consider about that is when I drive a car and the "perspective" changes suddenly, then I have to once more plan my route when not using a GPS. If anyone has answers or has experienced something similar to that, I would be interested.

Sorry if it was not easy to read english is not my first language. :)

[agate]

Welcome, Filip!

We aren't medically trained people here, just people with assorted neurological problems. I'm sorry I can't

give a medical name for what you've described but I do believe that you can see two versions of reality at once. I had this happen once to me during labor, probably because of a drug I'd been given (scopolamine, also known as twilight sleep). Reality was split into 3 versions at that time, and only one of them was what was really happening at the time. It was very strange.

[flatcap]

Hi, Filip. Welcome to BrainTalk!

I used to have something like that occur every now and then. It is very difficult to describe, but I would be laying there and, suddenly, everything around me would look as if were further away. Things would also seem abnormally quiet. These episodes started when I was very young, no more than five years old.

I just don't know how to describe it, but I can say for certain that it hasn't happened since 1990. I told my therapist about it at the time, but I don't remember the specifics of what she said in reply. She might have said it was PTSD-related, in view of my background.

I'm sure it doesn't add much, but in my case, the issue must certainly have been psychological. I'm not saying I have been cured, but it isn't happening anymore. Maybe therapy would help you.

[agate]

Well, this may be a clue--at least for your problem, flatcap. There's also something called teleopsia.

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[flatcap]

I doubt either applied in my case. The episodes did not occur within a short period of time. For whatever reason, and whatever it was that caused them, they happened sporadically over many years.

And, like I said, it hasn't happened since 1990 — exactly, not approximately. I remember it clearly.

And, like I said, I believe it was a psychological problem in my case. I would be very surprised if it was something else that caused them.

[Christina2854]

HI everyone! This question might sound funny but I've had on going life long medical issues that nobody seems to be able to diagnose because one specialty focuses on one thing or they assume something else is the cause that isn't and they fail to see how the symptoms are related and across the body as a whole. So what I am experiencing is this. Ive had a brain scan MRI with contrast. Everything looked normal with all structures except, I have doubled inner carotids. I have empty sella, meaning my pituitary gland is flat but producing normally. My eyes were enlarged or bulging especially my right eye symptomatic of thyroid eye disease without elevated thyroid levels. My sinuses are flat not slightly pitched so they don't drain quite right so there is pockets of infection by my right eye and behind my ears. As I age more and more issues are arising. My hormone levels have never been normal, I over produce testosterone as a woman. I think my problem is neurological rather than auto immune i have never had any indication of auto immune until the last 2 years in all the times they ever tested for it since childhood. And the first year it was RA then that went away then it was lupus then that went away too... All my problems are intermittent in somethings and persistent in others.

I don't think my nerves are communicating correctly with my brain or my brain isn't interpreting the signals correctly if that makes any sense. For example, if I put liquid in my ears or pressure on the outside of them say sleeping on my pillow or wearing a headset my ears start producing clear fluid that runs down my neck and it takes days to shut off making me deaf most of the time like listening to the world underwater. This also happens intermittently throughout the year without undue outside stimulus, like at night especially in spring and winter its like my ears turn on at night around 8pm to produce ear wax and forget to shut off, never producing wax just the clear fluid that starts it. The wetness causes them to itch inside the canals so in my sleep i dig at them causing secondary infections. My mother sister and daughter also have this issue and its gotten worse since my 20's. I also get really bad yeast infections on the outside of my ears. They say I have relapsing polychondritis but never did any tests to confirm I think the swollen cartilage is an after effect of the actual cause which starts by touch or season change and because of the chronic secondary infections over the years they cartilage is swollen now. I can tell you that prednisone and dapsone are the only things that keep it under control somewhat but I can actually still make my ears drain just by pressing the phone against them. I can't touch my ears or they go crazy like my brain thinks they are dirty and needs to wash them out.

If they give me an IV, I can feel it running up my arm and I can smell and taste it for hours after. When I swallow sometimes my food gets stuck, I had to have my gallbladder removed even though it was healthy because they found the flap that holds the bile in until it is called for during digestion was not opening or closing correctly. When I put food in my mouth I start salivating like a mad person and it takes hours to shut off again after eating and the need to swallow before food is chewed more than three times is over powering I feel like i will drown if i don't. Even the dentist always had trouble the minute he worked in my mouth he couldn't suction fast enough and thinks that saliva production problem wrecked my teeth. I seem to have flap and turn on and turn off issues all over my body.
Starting with the esophageal sphincter. Sometimes it gets stuck open others stuck closed and the other one at the bottom of my stomach too. Ive had life long issues of bowel movement troubles as a result until that is my gall bladder was removed first time ever having a bowel movement daily rather than once or twice a month. Even those monthly bowel movement were only because of hormone changes getting my periods which weren't normal either. You could set your watch by me from the first day to the last day of it. I started my period at 8 years old. at Am am it didn't start spotty it turned on like a faucet and turned off the same way on day 7 at 8am.. I bled like I was going to hemorrhage every single time but at least I could have a bowel movement rather than an enema or surgery to clear the impacted crap stuck in me. The docs as a kid thought it was because of my scoliosis. I now know my scoliosis was made worse by the abdominal surgery they did to reconstruct my ureters at 4 years old. They never scoped me or tested bile production or looked at nerves they blamed my scoliosis or my UTI's for everything until 2 years ago when the doc removed my gallbladder which solved my constipation and impaction issues. My liver produces bile normally even though it is now enlarged. I also have had life long kidney issues and chronic continuous infections until that is my right kidney and ureter was removed last year now the infections have stopped. They thought I had over active bladder but found that the flaps in my ureters also didn't open and shut correctly. They tried reconstructing them when i was a kid but wouldn't listen when i would tell the doctor I can feel the pee run from my right kidney to my bladder and it itches and makes me want to squeeze or push the muscles to help alleviate the feeling doing this obviously stressed my kidneys and bladder causing infection. 2 years ago I had to have a stent put in my right ureter and I could feel that in there too. Then they had to put a tube in my back to drain my right kidney into a bag which stopped the feeling and over activeness and the severity and frequency of the infections until finally my kidney failed and they had to remove it. Now I am infection free.

Play with my nipples I produce milk and i orgasm like crazy. I break out in random hives for no reason and itch everywhere on and off all the time. Itches that cannot be satisfied by scratching and if i scratch my arm til its red the hives i get can show up anywhere on my body but that place on my arm. Sometimes i only get one that also itches, sometimes I get hundreds. I also have random breakouts of staph sores on my face neck back and butt. Secondary to the start of my ears going crazy. In the last year I've suddenly had the onset of tumors in my spine my stomach and under my skin. I get skin tags inside my ears. But all of it starts with touch or the sensation of it then the rest followed.. with the exception of the periods that were hormonal and crazy but like clock work when when i went into menopause like the first day i got it it just stopped one day and that was it. Oh and I also never would sweat right. I never had sweat drip down my face in extreme heat or soaked hair i only used to sweat from my underarms or back of my knees. I'm either hot or cold. I cant seem to regulate body temp. And there is so many other little things like blood sugar and blood pressure. always exceptionally low life long now suddenly they are at the norms and i feel like im going to die. Obviously normal is my high... So can there be a problem in communication between nerves and brain without any obvious problems in the brain and nerves?

[agate]

Hi Christina2854,
I'm sorry I can't answer your question. Your medical issues are so complex that I can't begin to offer much of a reply. I do hope you have a competent doctor (or doctors) you consult about them and can stay with at least one doctor who is addressing these issues in a conscientious way.

As for your ears, have you heard the old saying, "You should never put anything smaller than your elbow into your ears"? It's good advice, I think. Your ears should NOT be draining fluid. I hope you are going to an ENT doctor (otolaryngologist) about your ears as you don't need to have ear problems.

Best wishes to you. People here at BrainTalk aren't medical professionals, and all I can say is that you need to have good medical attention. I hope it's available to you.