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Desperate for direction

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    Desperate for direction

    Hi all, I'll share a bit of my story in hopes someone might be able to point me in the right direction.

    I had a stress related burnout in 2017, which left me with fog brain and lethargy for about a year, I started taking good care of my heath with diet and exercise and my energy returned, I was motivated and went flat out at work. I had a poor sleep one night and still went flat out the next day, by the afternoon something didn't feel right, I crashed and burned out badly with my head, its like I had completely fried my brain.

    What resulted was a very limited capacity mentally, I would read a couple of pages, feel my brain straining, read another paragraph and my brain would "fry", which was a very tangible strain in my head. It would be often completely debilitating. I struggled with this for a long time, sometimes it would be better sometimes it would return for several months, sometimes caused just by having a cup of coffee but then it would stick around for months.

    In October 2019 I burned out and this is where my chronic fatigue started. I had a string of "burnouts" and would eventually start recovering, only to go flat out again, or be forced into doing too much ie. at work. The more this happened the harder it would be to start recovering. I was very much in a survival mode, just trying to get through the day, for several years.

    A bit over a year ago, a cup of coffee caused my head to significantly to "fry", it hasn't recovered since. My brain can't handle much of anything, I won't get through a movie without frying my brain, I can rarely read much, or do anything slightly mentally taxing. I have been incapable of working, and now I'm starting to get more desperate as money is running out.

    I've seen several doctors (GP) and a naturopath and it's like no body has any clue whats going on with my head. I've got quite severe chronic fatigue, I've tried all kinds of supplements to no avail. I can live with the chronic fatigue but having no mental capacity is wearing me down. Sometimes it has felt like it's started to recover, only to go back to square one because I read a little too much or watched YouTube.

    It's so hard to explain what I'm feeling but it's like my brain is strained/sprained, often not going away till I wake up the next morning. I'm struggling to finish writing this, I won't have the capacity to check what I've written so hopefully I make some sense.

    Any advice would be greatly appreciated!

    #2
    Welcome, Cyberfunk!

    Maybe you were having one of your better days when you wrote your post because it's very articulate and well expressed.

    I'm sorry I can't point you towards any specific disorder that comes to mind when reading about your difficulties. There are many nervous system ( and other) disorders that can cause a variety of consciousness and cognition problems.

    Before you start going through a list of them, I hope you'll look carefully at anything you're taking--medicine (prescription or nonprescription), supplements. Find out everything you can about each of them and pay attention to whether any of them interacts with any of the others. If you find any that might be contributing to your problems, why not try removing that item for a while and see if you notice any improvement?

    This is definitely where I'd start if I were you. You might also want to think about your diet because sometimes a deficiency or an overload of some nutrient can cause problems.

    And just something elementary like a sleep deficit can cause the problems you're describing. Do you get enough sleep regularly?
    SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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      #3
      HI there, I am sorry you are suffering so. I am looking into Systemic Multi Enzyme Therapy for a whole slew of physical ailments mainly pain and cardiovascular. Unfortunately these enzymes do not cross the blood brain barrier you may want to look into for your other ailments especially if you have gut issues, which may be contributing. My TMS doctor recommended Zinc for the brain and my psych recommended Magnesium. I am going to start Serrapeptase and Nattokinase, those are the main ingredients, along with Peptase, Bromelaid and some other things. Maybe while you are on your medical journey you can research the therapy and see if it is something you think may give you a bit of relief.

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