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Hi There BTC!!!!! I'm Carl

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    Hi There BTC!!!!! I'm Carl

    Firs of all, it's nice to meet you and be here. I'm hoping to meet similar folks to the type situation I have now, so I
    can get a better handle on what's going on/what to do. I have spent the last 26 months feeling like I have been
    chasing my tail. Chasing as in, had MRI's done/unexplained results/ what I consider unfollowed up on Medical
    history, etc. So, first and foremost, thanks for letting me join, and I hope to hear from you. Have a good day. :)

    #2
    Welcome, Cari!
    You've probably noticed that it isn't a very large group but we take some pride in having been here as a support board for far more years than most such groups on the Internet.

    Does that mean we know what we're doing here? I can't answer that but at least we're still trying. I'm Joan, and I have MS.

    You don't say just what kinds of problems you've been having but I hope that you can find some good answers soon as it is definitely stressful to be unwell but have no idea what the problem could be.

    Thanks for introducing yourself. Looking forward to your posts!




    SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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      #3
      Hi Joan.....the only really weird thing that came out of my results was a silent stroke (lucanar infarct), which is a type of silent stroke. I think my frustration has been that none of the 4 neurologists I have seen have diagnosed from the 7 MRI's that I have had. And yes, there was a suggestion from the radiologist that a demyelination process can not be excluded, so there was a thought about MS, but I'm 70 now and could that actually BE the case?? Who knows! :)......o well, thanks for responding Joan.

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        #4
        Hi, Cari,
        I'm afraid MS is diagnosed in people your age at times though it's rare. You haven't mentioned what your symptoms are, and we're not medical professionals here, but I do try to follow the medical findings on MS and have noticed that it isn't always occurring only among people between 20 and 40 or 50.

        Four neurologists--I hope you won't have to see any more of them and can stick with the one you think is most competent, probably the one who seems most interested in getting some answers for you. After a lacunar infarct, I think you're probably in need of competent medical attention. Do you have a good primary care doctor?

        SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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          #5
          Hi Carl, I am Virginia and I also have MS. I was diagnosed at a very, very late age, but later we realized I had had it for many years before getting the diagnosis. I had many MRIs, a nerve conduction test and a lumbar puncture. I had a smart Neurologist who knew I had it, but he was just a very through doctor and due to the late age he wasn't leaving any stones unturned.

          I hope you will keep coming around. We all need support when going through something like this. I hope you get some good support. I saw only two Neurologist after being diagnosed. The one who diagnosed me and one I went to twice to get a second opinion. He was an MS specialist and told me there was no doubt that I had MS. The leison on my spinal cord and the spinal tap he said confirmed it.

          We are here. Please let us know what you find out.
          Virginia

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