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    3rd MRI failed too

    I really appreciated all the advice everyone gave me a couple of weeks ago. I still have not tried the reflexology but have tried several relaxation techniques (biofeedback) and have had some medicine changes.

    The attempt to do the MRI sitting in front of the TV with the extra Methadone and muscle relaxer was a total wash. It was one of my most painful days I had had in a while anyway and the spasm had been going strong all night so I don't think the extra meds stood a chance that particular day. The technichan was so nice and so amazed at the movement she was watching around my spine. She said she would call my doctor and tell him I was being still, that it was muscles not me moving but if she did he would not acknowlege that she had called him.

    He also said that he could not sedate me with injections because my insurance would not cover it. He told me in 18 yrs of practice I was the first patient he had ever had that could not go through an MRI because of something like this and that I must have a muscle disorder of some type. He told me I should see a neurologist.

    Before the appt. was over he had changed my pain meds from Methadone (which was no longer working well at all) back to the Fentanyl patches (75mcg every 48hrs) that I had to stop taking back last May when I went in the donut hole and couldn't afford them, thus the cheap Methadone. He changed my my muscle relaxer from 10mg of Flexeril to 20 mg of Baclofen. My pain is better and my muscle spasms are still happening but they are only once in a while not all the time.

    When the spasm hit they still hit hard and my back is sore for a couple of days but it's better than all the time that's for sure. I am eight days into the change. I couldn't sleep at all for the first three days because they did not do any kind of decrease in methadone or slow build up of Fentanyl so I was doubled up internally for a while. Funny thing is even with all that in me it didn't stop my back pain.....makes me think nothing would.

    As far as changing doctors....you are all right, I agree 100%, I need a new doctor and I am going to tell him next visit that I want the new dr. that just came to their firm from Emory Spinal. I am almost trapped into this clinic because of my insurance and location. It's their policy not to let you change inside the practice so if he says no I will speak to the office manager and plea my case. My very best argument he gave me himself in his frustration last visit when he was yelling at me telling me about the "in 18 years.....blah, blah, blah....he ended it with...I really don't feel like I am doing you any good. I'm not sure that I even know what is wrong with you. Most of my patients get better but you never seem too." Makes a girl feel great ya know!!! He did come back into the room after the visit while I was waiting on my scripts and apologize for his behavior. He said he had been angry about something else when he came in. Well we are all human and I can forgive him. Lord knows I have had bad days too, however....the truth still remains that almost eight years together and he has not really put much effort into finding out what my problems are and he has given me 13 different diagnosis during that time. Yes no typo....13!!
    Thanks for letting me vent. You all are the best. My fingers are tired and my back is breaking and I pray that as you read this you will begin feeling better. That no matter what is hurting the Good Lord will sooth and touch it and make it better. I always appreciate your feedback. Annie K.
    Last edited by AnnieK; 01-27-2012, 12:49 AM.

    #2
    Annie I am so sorry that your MRI was a bust. As for them not knocking you out I wonder what the cost of something like that is. I am wondering if your doc could plead your case to the insurance. Sometimes if they get direct communication from the doc they will make allowances.

    I think it is admirable that your doc came back and apologized. Most don't. I think his own frustration with his inability to do anything for you may have contributed. I didn't ask before but is this your regular primary care? Do you not see a neurologist? Pain Management?

    Am glad the med change is working a bit.

    Comment


      #3
      Hi Annie,

      If any doctor admits that he can't help you and been unable to despite 13 different diagnoses, then I would think the clinic as well as the insurance company should be willing to find you a new doc, maybe with a different specialty. Good luck with that.

      I had the misfortune of getting hooked up with a new cardiologist when mine retired, partly because his young daughter had CFS & he had made it his sub-specialty since nobody had been able to help her. Yes, he was an expert in NMH [Neurally Mediated Hypotension], which helped to explain some of my symptoms, but other than that, he had one favorite "textbook" by some doc in north Jersey. He treated it like his cookbook, & went thru all the crazy and dangerous schemes. He had me crying twice in his office due to his lack of respect as well as my inability to pay for some of these wacko treatments. Then he said he couldn't help me with an emphatic shrug of his shoulders.

      This unsympathetic troll is at the top of my Sh*t List of Unacceptable Doctors and their Practices. Dude, I hope your daughter's illness is the contagious kind and you catch it and suffer. Then I hope you have to see docs whose bedside manner is as bad as yours. Amen.

      All I can offer is to never give up on yourself. Research and medicine is changing every day, with new drugs and approaches from all over the map. Please network and ask around until you're blue in the face because there exist kind and caring doctors out there, if you can find them. They won't give up on you even if you are ready to give up on you. Best of luck.
      Sher
      My Life Menu: CFS probably since birth, full flavored since the 80s, with Fibromyalgia, Major Depression with a side order of Anxiety and Agoraphobia sauce, Restless Leg Syndrome with spicy Other Sleep Disorders, 11 Eye Surgeries, a generous helping of Gut Problems

      Comment


        #4
        Annie, I had a doctor like yours once! I broke my patella, he came into the ER , yelled at me to stop crying ( I had nothing for pain at that point) and he had to leave an office full of patience to come see me! He then said he would throw my knee cap away and I would never walk again, he would do the surgery the next morning.I told him no to go back to his patients and I would see if someone else could take care of me, he huffed out of the room. A nurse was standing outside the cubicle and went to get the patients advocate, I told her what happened, the chief of staff call in another orthopedic surgeon who said he would take care of me, he then went to the other doctor and told him he was fired from the hospital for treating a patients like that, the point is you may have to get the people the doctor works for involved,under no excuse does he have the right to yell at you for any reason!
        By the way the new doctor wired my patella together I don't even walk with a limp, so if you can have someone with you that can take notes on your visit is is good. Trust me you are not the only one he has do e this too, he is caught up in his on importance ! Good luck Honey !

        Comment


          #5
          Annie, sorry about all you have gone through with your MRIs and this doctor. I too had pain even while increasing my opiate medication. The opiate did solve one pain problem but the remaining pain wasn't touched and it was enough to cause one to be suicidal. The answer for me was to add Cymbalta with my MSContin and I now have pain control [not eliminated] and have stayed at this same dose for over 7 years now. I hope you find a doctor that works with you and adds a pain medication to deal with what sounds like neuropathic pain.
          1979 spinal issues, 1993 lumbar microdisectomy L3-4, 1996 360 3 level lumbar fusion L2-5, 1999 open thoractomy fusion T8-9,
          2002 C3-7 herniations and T4-7 herniations, 2004 total disability, a new limited life

          Comment


            #6
            Annie - I used to be sedatated - fully out by my dentist - cost $300.- , for your ins. not to pay is BS.
            Blessings
            A.

            Comment


              #7
              Thank you all so much for all your kind words, thoughts and suggestions.

              Christina, the doctor I am speaking of in this thread is my pain management doctor. I also have a primary care that I love and I have talked to him a little about a few issues with the pain doc (not the latest though). My primary always suggests that I stay with this pain doc because he says he is definitely one of the best anywhere around here.

              Poor Beader and Ging...you two make me feel bad for even complaining. My goodness I am so sorry for what you have been through but I really appreciate how compassionate it has made you toward my problem. I know that something has to change. I go back on the 14th and I plan on asking for a new doctor for Valentine's. I want to at least try the one I was mentioning that had just joined their firm from Emory Spinal. If I don't see something great within 3 months then I will leave this pain clinic and go somewhere else.

              Mark, you are spot on about the neuropathic pain. Although I have never had shingles and don't have diabetes. Much of the pain I have "describes" exactly like that and has since the second I got off that operating table almost 8 years ago, but doesn't true neuropathic pain develop slowly "from" something? Maybe not, maybe that is just an idea I have in my head. Anyway, I was on Cymbalta for about 4-5 years and it did help me for maybe the first 3 but after that I could not tell a difference even though they increased my dosage. One year when in the donut hole I decided to taper off and see if it was really doing anything or not except making me more poor and I was right it was not helping the pain. Suprisingly, when I came off of it I became less depressed too. I know that's not the way it's suppose to work but I don't do anything right.:o

              Comment


                #8
                Anniek - I have Peripheral Neuroapathy too - it is Not fun. You are right - it can have many causes - the cause of mine is truma - as in too many automobile accidents and being beat down so bad i spent 7 days in the hospital. My doctor recently pu t me on Clonadine, at.1mg, i think, at the lat visit she raised it ,at my request, to .2 mg and i can say after about two maybe 3 weeks now of being on it, It is actually helping with the pain. Ask your Doc. - it is not a narcotic although it does say not to stop taking abruptly. Good luck to you, I hope you find the relief you are looking for, Unfortuneately for me, Clonadine is only one of many things i have to take - but the relief i get, although not 100% - is good and i dearly love my doc. BTW, i tried Cymbalta, Lycra, could not deal with the SE but everyone is differant.
                Blessings
                A.

                Comment


                  #9
                  Annie,

                  Many and to you on your special Valentine's Day visit.

                  Otherwise, I'm sending to your doc on your behalf.

                  We've got to stand up for ourselves! Or at least sit up if that's all we can manage. :o Assertiveness is a quality, a form of action that those of us with chronic illnesses need to understand and put into action. It is our right to receive decent health care from our doctors and other professionals, and if the best this dude can manage is half-a$$ed and sub-par, then he can "practice" on other people till he gets it right. I'm not putting down all docs, only the ones who should know and do better. If this one can't cut it, let him "practice" his golf.
                  Last edited by Beader; 02-03-2012, 01:50 PM. Reason: HUGE butterfly
                  Sher
                  My Life Menu: CFS probably since birth, full flavored since the 80s, with Fibromyalgia, Major Depression with a side order of Anxiety and Agoraphobia sauce, Restless Leg Syndrome with spicy Other Sleep Disorders, 11 Eye Surgeries, a generous helping of Gut Problems

                  Comment


                    #10
                    Alex,
                    Thanks for the tip on the Clonadine. I have never even heard of that one. Lyrica is another one I tried and I, like you could not take that one either. I was sad about that one because it seemed like it might help a little but after about 6 days on it I started swelling up and then WOW did I start retaining fluid....like 25 lbs, all in my legs and feet and couldn't get rid of it until I got the Lyrica out of my system. Also thanks for the info about the neuropathic can come from a trama. So I guess it did come from my injury during the surgery.

                    Your info was great and very helpful. I pray you feel better. AnnieK

                    Comment


                      #11
                      Anniek - Thank You and I hope you are feeling better. The clonadine has indeed helped - i did not want an increase in my Narcotics, even though it would have gone through, I try to take only what i need and it helps my back A LOT. have a great day.
                      Blessings
                      A.

                      Comment

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