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    Cut - Off for B.S.reason

    By my doc. she told me a long time ago to make a choice (draw your own conclusions. BTW, it's legal here in AZ. Anyway, a nurse said we were going to be doing three consecutive urine tests. the NPN Never said a word even though this has been an issue before. Did I mention she had a hissy fit because alcohol showed up in our visit once removed from this one? I believe someone in her family is an alcoholic and she is taking it out on us. Or not. she was adamant that we stop now, way more then a usual talk with the doc gets. She did not give me the lab test results I asked for - nor any info on the wellness function program that the Ins. Provider recently sent us. No, I am just disappointed in HER - yes, we were warned, but at the last visit before this series of three tests started, she said and I quote "let me check the levels on your samples and then I will get your scripts - confusing eh? Anyway, since I am disabled and have lots of time, I am writing to the POTUS who has publicly said to leave states alone when it comes to certain things, my senator and the director of the medical clinic in addition to her. this will not happen for at least a week as I know I need my emotions to settle down. I may never get PM again but I will not be peeing in any bottles either. I flat out told that NPN that I did not care if I saw seventy or older - I have had a good life and when Spirit calls me home, so be it cancer diagnosis - casll hospice - there will be NO Slashing,burning, or poisoning done to me and I have a DNR and Health Surrogate in place to make sure of that. Detox should not be a problem - think rainy day. that and me and my partner have taken care of each other for the last twenty years + and made it thru this sort of scenario so we will survive. I am sorry for the rant, but I do feel incredibly free, from Dr's, Urine bottles (LOL) and the whole general B.S. medical system. Me and my partner are SURVIVORS - we may hurt - sometimes bad - but that can be dealt with too.

    Blessings
    Alex44
    Skypilot

    #2
    Alex, sorry to hear of your current doctor problems, vent all you need to vent. There are too many people out there trying to protect us from ourselves and it is a change in our society I don't like. I hope coming off your meds can be tapered properly which a caring doctor would do instead of cutting you off cold turkey. I am glad you have a plan to deal with it. I know the two of you will keep plugging along it is just a shame the sitution has gotten to were it has.
    1979 spinal issues, 1993 lumbar microdisectomy L3-4, 1996 360 3 level lumbar fusion L2-5, 1999 open thoractomy fusion T8-9,
    2002 C3-7 herniations and T4-7 herniations, 2004 total disability, a new limited life

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      #3
      Thanks for the support

      Originally posted by Mark N View Post
      Alex, sorry to hear of your current doctor problems, vent all you need to vent. There are too many people out there trying to protect us from ourselves and it is a change in our society I don't like. I hope coming off your meds can be tapered properly which a caring doctor would do instead of cutting you off cold turkey. I am glad you have a plan to deal with it. I know the two of you will keep plugging along it is just a shame the sitution has gotten to were it has.
      Mark - we were told we were cut off due to B.S.Reasons, She said she would be sending us a letter and a referral to Mesa or Phoenix, Neither has happened. NO follow up care, no concern about the 4Mg. of benzo's I take (Xanax) I called and made an appointment today for our usual refill date - hell, she may even not remember she cut us off - yes she is that scatterbrained. I believe she was more upset about us showing a little bit of alcohol in our system - NOWHERE listed in pain contract. based on her reaction . I believe she is probably in Al-Anon , Best guess is husband or child I will not tolerate being screamed at and have a letter to the director ready to go and will be asking for an appt. with them after the visit. I am in process of also contacted the ACLU, the POTUS, My senator,etc. I have nothing better to do - all the things I Could do have been taken from me - I am detoxing on my own - I hope I don't have siezures from the Xanax withdrawel but I am dropping about a 1/4mg a week. I am not sleeping. this is taking a serious toll of my relationship of 22 years - I pray we make it - yea, she got cut too. If I sound bitter,I am. Pain Management is going to H... in this country - G.D. Nanny state. not even a real doctor - just a family nurse practioner
      Thanks for listening
      Hope this finds you and yours well
      Blessings and Prayers
      Alex44
      Skypilot
      I fail to see why another DR. in the same clinic cannot take us over - a ride of an hour each way hurts - it's like she wants to punish us for the alcohol. IT'S B.S.
      A.
      Last edited by alex44; 04-02-2014, 04:04 PM. Reason: addition

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        #4
        Alex, I am glad to hear you are taking steps to counter what your doctor has done. Good luck with the detox as I hope all goes well for the two of you as you work off your medications.
        1979 spinal issues, 1993 lumbar microdisectomy L3-4, 1996 360 3 level lumbar fusion L2-5, 1999 open thoractomy fusion T8-9,
        2002 C3-7 herniations and T4-7 herniations, 2004 total disability, a new limited life

        Comment


          #5
          Hi All - I pulled my records today - Unfortunately, I did not pick up on the records lady (an angel) suggestion that I go further back - the number of inaccuracies was amazing - I plan to speak to the director after my next appointment - she is on the net and I plan to confront her if things do not go well. The VA will pick up my Xanax, My head shrinker gave me a lot of insight so at least that stress is off me - the de-tox is coming along - I will not say where I am at in a public forum - Want details - PM me. I was railroaded, I now know by who and am looking for a lawyer. Hoope this finds everyone well - or as well as possible. I am hanging in there and hope to resolve this.
          Blessings to all
          Alex44
          Skypilot

          Comment


            #6
            Alex, glad you got your records and have facts about who is RR you. I hope the looking fo a lawyer goes well for you as we have enough issues without some doctor making our lives worse. Hang in there for the detox as it isn't fun but you can get there. It is good to hear you have help from the head shrinker and now have less stress.
            1979 spinal issues, 1993 lumbar microdisectomy L3-4, 1996 360 3 level lumbar fusion L2-5, 1999 open thoractomy fusion T8-9,
            2002 C3-7 herniations and T4-7 herniations, 2004 total disability, a new limited life

            Comment


              #7
              Thank You Mark - I truly hope YOU and your family are doing as well as possible. Again , thank you or the support If I can get off the med's. no easy task, I would enjoy life more - even in pain - The NP is NOT my Mom, Dad or nanny and I will not be screamed at for something that is NOt in my contract or anything else for that matter.
              Blessings to all
              Ale44
              Skypilot

              Comment


                #8
                Alex, how have you been doing since you have been weaning off your meds? I hope it hasn't been too tough on you as your body gets used to not getting the meds any more. It is a shame the NP treated you the way she did. Hang in there and I hope you see this and can answer soon.
                1979 spinal issues, 1993 lumbar microdisectomy L3-4, 1996 360 3 level lumbar fusion L2-5, 1999 open thoractomy fusion T8-9,
                2002 C3-7 herniations and T4-7 herniations, 2004 total disability, a new limited life

                Comment


                  #9
                  Mark - I am now down to about half of my usual dose. So is my partner. We are hanging in there - it is not easy - I am dropping about 15 MG. about every ten days - not easy but I am getting there. I did contact the VA and the Anxiety issue has been resolved - as in I have meds w/ refills for that. Amazazing how effective asprin can be - it's helping. More then thhat, I cannot say in a public forum. We got the letter the other day saying she was officially dropping us. I have an appt. with her - my records are incompleate and show drugs I am NOT taking - this after she set us up - Her notes are rediculus in that they do not even begin to cover the scope of things talked about. I feel that there is a political tug of war going on there, between her and another NPR - He does not approve of my partner and I saw where He reviewed her notes - I am taking action but hope to see, as I think yu did mark, how low you can go and still function - I hope to get off all meds except asprin. Wish me luck. She said she would refer us to someone, that has NOT happened. just a whole lot of BS. I hope you and yours are doing as well as you can - Blessings
                  Alex44
                  Skypilot

                  Comment


                    #10
                    Alex, I don't envy you weaning off all your meds. Aspirin does help and I use it as a breakthrough med right now. I saw from your other post that the reduction is getting difficult. I know each time I try and reduce my meds, my body shows me why I was on the amount I was on. It is a shame you have had such problems with this doctor and I hope you find a doctor that will work with you.

                    The family is doing fine. We kept the two granddaughters Sat afternoon and evening, they wore the grandparents out. They are such a joy to be around but they have so much energy especially the 1.5 yr old. They help keep us younger by seeing the world through their lives and how much fun they have with simple things.
                    1979 spinal issues, 1993 lumbar microdisectomy L3-4, 1996 360 3 level lumbar fusion L2-5, 1999 open thoractomy fusion T8-9,
                    2002 C3-7 herniations and T4-7 herniations, 2004 total disability, a new limited life

                    Comment


                      #11
                      To all: thank you for your informative and encouraging reply's. Mark Congrats on the grands - I have No family (at least that I talk to) Cindy has her sister and family in Ohio. We did get letters from the Person treating us - I REFUSE to use her Professional title since I feel she has disregarded the hippocratic oath - "First do no harm." She set us up with a "Shot Jockey" from what i could get out of the phone conversation. An hour each way - we may or may not keep it - the pain would not be worth it - in addition, I believe we have already seen him a long time ago - the address is just up the road from where we saw a doc. and I wondering if it is the same practice. Luckily, I kept a good rainey day stash and our next drop will be to 60mg. from 75MG. it is H... but we will make it - I am stubborn and it is said that what does not kill you makes you stronger. My head is a LOT clearer. I also got ALL my records today - it will be interesting to see the metadata ( when they were created or modified) as I got the last three months right away - this time they said due to the volume i would have to wait BS - a commercial printer can do at LEAST ten pages a minute in B/W so I think they wanted to check with the doc. so she could cover her butt. at most, it might have taken a half hour to print everything and i was more then willing to wait. Again, thank everyone for your replys with a special thank you to Pharmist Steve on the detox info and to you Mark because you have always been there for me. Hope EVERYONE is doing as well as they can - I am thinking about starting a Non- Profit for the advocacy of P.M. patints and Medicaid,etc. We shall see when I am detoxed and my head is totally clear or if there is please let me know so i can advocate for them

                      Blessings to All
                      Alex44
                      Skypilot

                      Comment


                        #12
                        ((((((Alex)))))) ~

                        Stay strong. Keep the faith. You know where your strength lies. Go there. Meditate, pray. Breathe deeply, and trust and believe that all will be well. Focus on your well being more than on the person, who threw you into this situation. That will be resolved. You need inner peace now, and much less external stress.

                        Body, Mind and Spirit are all One. They work together. Pour your energy into allowing them to work for you.

                        Healing prayers are on their way for you and your partner ~

                        Love & Light,

                        Rose
                        Mom to Jon, 49, & Michael, 32, born with an undiagnosed progressive neuromuscular disease. Angel Michael received his wings in 2003. Angel Jon received his wings in 2019. In 2020, Jim, their Dad, joined them.

                        Comment


                          #13
                          Thank God for all the support i am being given. I am going to try and get a fresh start at a much lower dose - the doc. - I plan to have a talk with her and ask her why - she has 274 PM patients getting hundreds of pills and I doubt they were all subjected to three in a row UA. However, that said said, i am not going to go nuclear on her. she has her own issues ( I live in a VERY small town) - so after much prayer and meditation, I am an ordained minister, after all, I forgive her - as in the bible - She knows not which she did but as a man of very deep faith, I sense very deep problems in her life and just maybe this will help me as my thinking is much clearer I hope to get restarted on meds soon although the rainey day will let me detox in a controlled way. I hope that everyone is well as they can be, and know that forgivness can in itself can be very healing.
                          Blessings
                          Alex44
                          Skypilot

                          PS: it is still miserable - But with Spirits help we will make it.
                          A.
                          Last edited by alex44; 04-18-2014, 11:34 PM.

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                            #14
                            Update - I am miserable and after last night after I almost lost a relationship of twenty three+ years (we made up - still love each other always and forever) and after reading my last post, I have changed my mind. I may be a minister but I am also human. I am going to complain to everyone who will listen as I do feel an obligation to Not let others be put thru what we are going thru. I am now down to half my original dose - I feel like crap but my mind is clearer and I am walking and getting really good nutrition as well as vitamins. I will attempt to go to natural remidies, that does NOT include the bottle - no future in that. I see the VA soon and hear the Doc is Awesome, we will see. I suffer from many things, PTSD being one f the worst, the nightmartes are the worst - Anti-Depressants do not work on me and i have given about ten a fair trial Two Months, as I know it can take a while. every one gave me severe side effects - NO More. I know what works, iF the VA works out on MY terrms, i will gladly go along with anything except ESI shots or Anti D's. hopefully Massage therapy,and anything within reason they propose (NO SURGERY). I am well aware the de-tox will get harder, been down this road before, but am stubborn and my partner will stand by me. Hope this finds everyone as well as they can be, Blessings to all.
                            Alex44
                            Skypilot

                            Comment


                              #15
                              Alex, I'm so sorry to hear about your problems with your PM and nurse.

                              I'm feeling pretty ill at the moment, so it was a little bit difficult for me to follow your story.

                              From what I read, it sounds like the PM nurse decided to cut you off from ALL pain meds and benzos simply for having a bit of alcohol in your system? Was the alcohol from the night before?

                              I agree that it's terribly unfair to you. Alcohol is legal. Did your PM tell you to abstain from alcohol or else you'd be cut off? Or is the PM nurse suddenly just making up arbitrary 'rules'?

                              I'm so sorry you're being forced to taper. Can you find a different pain management doctor?

                              How are you doing with NO pain meds? Personally, that would drive me insane, because my migraine pain is excruciatingly severe. Do you feel that maybe you can get by without pain meds?

                              I agree with you about cancer treatments. I've got personal experience with that issue. Also, antidepressants have never helped my pain at all, and they also give me severe side effects. I don't understand why so many doctors seem to think that antidepressants help with pain. Maybe they think the pain is all in our minds, ugh. :(

                              Alex, I just wanted to let you know that I wish you well. I hope you have better luck with PM; maybe you can find a different doctor who won't cut you off for ridiculous reasons. It sounds like maybe they were just looking for any excuse to cut your meds. Again, that's all too common amongst doctors. It is SO unfair. I agree with writing to representatives, Senators, the President----whomever. It certainly can't hurt.

                              Best Wishes,
                              Eva

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