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    How much is enough?

    When is enough enough - I am still shredded from the loss of my Prescious Cynthia
    The last couple days I think the world is laughing at Me.
    Friday I slip and fall opening a wound that says "no pool party for you"
    But then, today the VA - am astounded, believing the stuff that is coming down
    1. I have been a pain patient for twenty+ years now. they plan to cut my dose, maybe to ) - that and my Xanax that has helped get me thru
    2. Get told One more High sugar level and I have Type 2diabetes.
    3. Then get told the reason I am falling down cold Sober - Is the peripheral Neurapatthy I fall If I am not very Careful. I will be fitted to a walker.
    No transport back from the va to Home - No car
    No car from transport A friend came and got me
    Come home - no central air - thermostat is kaput - nice lady at A/C place says to replace batteries - I called her back and thanked her.
    This is a rheatorical question, If I can survive this stuff, I can survive ANYTHING

    Is this enough?
    Alex44
    Skypilot
    Last edited by alex44; 08-21-2017, 07:08 PM. Reason: addition

    #2
    I hope you don't have type 2 diabetes. The neuropathy could be from high blood sugar. :(
    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
    My website for my original short films! http://cripvideoproductions.com/astrokeofendurance.php

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      #3
      Thank You Indeed. I thought I knew about Neuropathy - turns out I don't know the half of it. It has taken my balance - I fall down cold sober and am not a big drinker so my doc. says it's the Neuroapathy. she is ordering P/T and a walker, maybe - remember this is the VA - nuff said. A bit of Brain fog to. The thought of Diabetes is terrifying - it's a hereditary disease and my mom died from it - Diabetic Coma. I know too many people and after seeing what my mom went through, although my mom went peacefully. I suspect the Neuropathy is from my Liver and Trauma - you could say I have led an interesting - But when I go my last thought will be - What a ride and I will be with my Precious Cynthia again.
      Blessings
      Alex44
      Skypilot

      Comment


        #4
        Originally posted by alex44 View Post
        Thank You Indeed. I thought I knew about Neuropathy - turns out I don't know the half of it. It has taken my balance - I fall down cold sober and am not a big drinker so my doc. says it's the Neuroapathy. she is ordering P/T and a walker, maybe - remember this is the VA - nuff said. A bit of Brain fog to. The thought of Diabetes is terrifying - it's a hereditary disease and my mom died from it - Diabetic Coma. I know too many people and after seeing what my mom went through, although my mom went peacefully. I suspect the Neuropathy is from my Liver and Trauma - you could say I have led an interesting - But when I go my last thought will be - What a ride and I will be with my Precious Cynthia again.
        Blessings
        Alex44
        Skypilot
        I'm so sorry your mom died from diabetic coma. I recently got to know 3 people with diabetes and it is terrifying to see what it has done to their bodies. I had no idea the disease itself could lead to a person dying before I met them and I'm scared that I might lose them so I understand some of your fear even though I can't know exactly what you go through. I pray you never get diabetes. I'm sorry the neuropathy has screwed your balance. Ask the PT if they can teach you "how to fall safely" I have CP and fall all the time because it effects my balance and the best thing I ever learned in PT was how to fall. Does the neuropathy make you dizzy too?
        Last edited by funnylegs4; 08-23-2017, 08:16 AM.
        Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
        My website for my original short films! http://cripvideoproductions.com/astrokeofendurance.php

        Comment


          #5
          I have Type 2 diabetes, and they've made great strides in recent years in the treatment of diabetes. They monitor it pretty closely, and you're expected to monitor it yourself at home as well.

          Some people can control it with diet--others need one of the drugs like Metformin. Still others need insulin shots.

          I hope you don't have it but if you do, there are ways of dealing with it.
          SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

          Comment


            #6
            Suger is cut from my diet - I still have my Bushs baked beans and today an Arizona Iced tea - NO ice cream and I am avoiding suger - Not to sound sorry for myself but they are taking pain meds away, probably my Xanax, Now sugar - what is left to take? I already lost the most precious thing in my life - Cynthia - so I am going away for awhile - the house is for sale - that sucks but a single man does not need a 3 bedroom ranch - do I love living here - Absolutely - can I afford to - Maybe with a boarder if I don't get my price - and shred my credit which has taken me years to get to a decent level - I am too scared to say, What next - I have faith in spirit (the Lord)- It is the only thing sustaining me right now but as I have said before, I am a SURVIVOR - always have - always will be.
            Blessings
            Alex44
            Skypilot
            Last edited by alex44; 08-23-2017, 07:04 PM.

            Comment


              #7
              Hi yes agate is right. Type 2 Diabetes is manageable. One of my T2D friends is on Insulin and he says he has had it so long that it feels "normal". He does the injection so fast "its like texting" (his words). He also says he is able to treat himself once and awhile as long as he's watchful.
              Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
              My website for my original short films! http://cripvideoproductions.com/astrokeofendurance.php

              Comment


                #8
                alex44, having to revise your diet drastically if you've been diagnosed with Type 2 diabetes is no fun at all. I had to do that but a strange thing happened. Once I stopped thinking I could eat whatever I wanted whenever I wanted and started watching everything that I ate very carefully, I began to appreciate what I did have. Even just a tomato tastes like a wonderful treat. I'm "allowed" to have that--and lots of other foods. When you're not allowed to eat a whole bunch of foods, you do appreciate the food you can have.

                You don't know that you have diabetes yet but if it turns out that you do, you might want to check the sugar content in the Bush's baked beans. Baked beans tend to be made with molasses or brown sugar, and some of the canned varieties use quite a bit of sugar. (Sorry!)

                Also, if you have diabetes, you might be told, as I was, that you can have sugar in small amounts occasionally--as funnylegs mentioned.

                As for the 3-bedroom house, would you be able to rent out those extra rooms? I did this a couple of times. It's not an ideal arrangement but it's a way to hang onto your house, and if you're careful about checking references and laying down strict rules, you can usually keep the situation pretty well under control.
                Last edited by agate; 08-24-2017, 07:33 AM.
                SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

                Comment


                  #9
                  I have not yet been diagnosed formally w/ Diabetes type two but she told me I am high risk. and my RNP said one more high suger level and I have it. She told me to cut sugar from my diet, which has already started, to cut down on my beer, Working on that one as very mixed signals on my P/M and I am doing a slow taper down and If I try to fight two battles at once as hard as I can, I will fail at both so for the moment diet and exercise takes precedence but I am working , as I can to taper down the beer. Thank you everyone for the advice.
                  Blessings
                  Alex44
                  Skypilot

                  Comment


                    #10
                    I'm told alcohol is not good for high blood sugar or low blood sugar so good idea cutting beer.
                    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
                    My website for my original short films! http://cripvideoproductions.com/astrokeofendurance.php

                    Comment


                      #11
                      I will wait till Friday when I pass judgement, and it IS my place since I am the patient. I am now furious. First, I get no ride home - they (VA) picked me up - no one there could figure out my transport - if not for a good friend who had to come 15 miles to get me -n I am quite sure at 4:30 that I would have been asked to leave - And then a $30. cab ride that I can ill afford. Then I get my labs - I have a urinary tract infection - No mention by my RNP. then I find out the "blue button " where you can access your medical records has been redacted, My RNP had a conversation with my pysc. about the morphine and Xanax and agreed it was ok. it is now GONE from the record. I may have a copy and their are other ways of getting the real record. She is on record as saying that she doubts I can ever come off it - this is probably true IF she wants me to follow her advice about drinking and such. There are always options. Finally, I know my phone does not always ring, but not even a voice mail from Transportation or the patient advocate. I served my country - this is , well you know, TOS and all that otherwise this post would be very Blue - I respect this forum and will be here as long as I have a connection. I signed on the dotted line to have my butt shoot off - what do I get - a political football thanks to the drug seekers and heroin addicts, whom I have a great compassion for. a lot of them have chronic pain and have nowhere to go god forbid they get fentanyl. I am tired, one thing after another is being taken from me, First Cynthia, now my pain meds, she is going to cut me back, suger, no big deal, I love fresh fruit , so I will see what the Psyc. says Friday about my Xanax - it has been a godsend in this time of troubles, I have already tapered down from 4 to 3Mg. tok quite a bit of effort, I almost had a seizure in florida when I did not get my meds - I was on the edge and starting to shake, I was able to pray and meditate until it passes and I could get to the clinic. Seizures are NOT fun, neither and they have no business after twenty years of doing this to me. I am considering going back to my Medicaid Primary for everything But P/M - reasons best left to me. I am disgusted with things and I will not sell my house unless I see one in Bisbee, AZ. a haven for Children of the 60's (Hippies) as I am a child of the sixty's so we shall see - but only if I get my price. Sorry this is long but I am fed up and like the guy in the movie shouted out his window - I am Mad as H--- and I am not going to take it anymore.
                      Blessings to all
                      Skypilot Steve
                      My Faith will sustain me.
                      I may be having a hard time BUT "God Bless Texas" I am praying for them and sending a little to help. My troubles seem so minor compared to theirs.
                      Skypilot Steve
                      Last edited by alex44; 08-29-2017, 11:12 PM. Reason: Wanted to add

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                        #12
                        Modeerator - where did my post go?

                        Comment


                          #13
                          Hello alex,

                          I see your post right above the post asking me where your post went. Perhaps you had to refresh the page, perhaps it was just a temporary blip. I can't give a reason why you didn't see it, but all is well.

                          I also read this thread and I am sorry for all your physical problems bothering you while you're still mourning Cynthia. It doesn't seem fair that you're carrying such heavy burdens right now.

                          Please check out the amount of sugar in your Arizona iced tea, also. Almost all bottled and canned drinks have high amounts of sugar or high fructose corn syrup in them. I think Arizona iced tea has an unsweetened version.

                          Take care of yourself, alex and I hope some of your troubles ease over time.

                          #7
                          Last edited by Moderator #7; 08-30-2017, 07:22 AM.

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                            #14
                            Ok Mederator#7 - where is my post, I do not belive I violated T.O.S.?

                            Comment


                              #15
                              Thank You #7. I am drinking cheap bottled water when I am thirsty -I totally get it about the AZ ice tea and such, Thank you for your kindness.
                              Blessings
                              Skypilot Steve

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