Hey, everyone! 
I'm 56 and was dx'ed with CD in April of '08. It took months to take it seriously and "get clean," but by Christmas of that year, I had completely kicked the gluten out. I noticed many improvements over the following months, the biggest of which was a complete cessation of 42 years of seizures! I have since been devoutly GF and was doing well until the day after my third Covid booster in early December of '21. The day after it, I suddenly began to develop severe burning all over my torso--back, arms, chest, and also face and the tops of my thighs. They would get very red, much like a sunburn, and the burning felt acidic, lasting anywhere from a minute to an hour, then leaving a blotchy red rash on the affected parts for at least 15-20 minutes once the burning stopped. The episodes would occur at least twice a week, and despite wracking my brain, I have yet to determine any triggers. Foods don't seem to be an issue, since I can experience them at anytime, even hours after meals or snacks.
I told my PCP, and he ordered EMGs, which were normal. Nothing else was done until I told my neurosurgeon (I have always had hydrocephalus), and she sent me to a neurologist. Since then, I've been dx'ed with Small Fiber Neuropathy, and she's ordered several tests--MRI of spine and brain (normal, for me), EEG (mostly normal; some irregularity, but she doesn't believe it indicates sz activity).
I'm also getting a skin punch biopsy, and my understanding is that it should determine if CD is to blame. That said, do any of you have SFN? My PCP (who recently left the practice) put me on Gabapentin for the nerve pain in my back. Dr. H (neuro) has since doubled it, and it's slowly helping with the neuropathy...and another odd symptom of SFN: overactive bladder, which I've struggled with for 3 1/2 years.
Can anyone relate? I understand that neuropathy is not uncommon with CD, just not sure of the type. TIA for any input!
I'm 56 and was dx'ed with CD in April of '08. It took months to take it seriously and "get clean," but by Christmas of that year, I had completely kicked the gluten out. I noticed many improvements over the following months, the biggest of which was a complete cessation of 42 years of seizures! I have since been devoutly GF and was doing well until the day after my third Covid booster in early December of '21. The day after it, I suddenly began to develop severe burning all over my torso--back, arms, chest, and also face and the tops of my thighs. They would get very red, much like a sunburn, and the burning felt acidic, lasting anywhere from a minute to an hour, then leaving a blotchy red rash on the affected parts for at least 15-20 minutes once the burning stopped. The episodes would occur at least twice a week, and despite wracking my brain, I have yet to determine any triggers. Foods don't seem to be an issue, since I can experience them at anytime, even hours after meals or snacks.
I told my PCP, and he ordered EMGs, which were normal. Nothing else was done until I told my neurosurgeon (I have always had hydrocephalus), and she sent me to a neurologist. Since then, I've been dx'ed with Small Fiber Neuropathy, and she's ordered several tests--MRI of spine and brain (normal, for me), EEG (mostly normal; some irregularity, but she doesn't believe it indicates sz activity).
I'm also getting a skin punch biopsy, and my understanding is that it should determine if CD is to blame. That said, do any of you have SFN? My PCP (who recently left the practice) put me on Gabapentin for the nerve pain in my back. Dr. H (neuro) has since doubled it, and it's slowly helping with the neuropathy...and another odd symptom of SFN: overactive bladder, which I've struggled with for 3 1/2 years.
Can anyone relate? I understand that neuropathy is not uncommon with CD, just not sure of the type. TIA for any input!