The wonderful, kind, very special nurse who works with a very special neurosurgeon just phoned to say the MRI of my brain was totally clear and clean. Everything is great. I don't have to have another MRI for THREE years!
Announcement
Collapse
No announcement yet.
Whoooweeee
Collapse
X
-
((((((Jingle)))))) ~
HOORAY!
Dance of Joy!!!
That is wonderful news! How are you going to celebrate?
Stay well and happy!
Love & Light,
❤️❤️❤️❤️
Rose
*Virtual Hugs Are Germ-Free!
THANKS!
Mom to Jon, 49, & Michael, 32, born with an undiagnosed progressive neuromuscular disease. Angel Michael received his wings in 2003. Angel Jon received his wings in 2019. In 2020, Jim, their Dad, joined them.
-
Wonderful news! Being able to skip an MRI is always good news.
One good thing about aging I've noticed is that doctors tend to be more agreeable about excusing patients from various tests and procedures. They don't argue any more if you hesitate about getting this or that test done.
My neuro would very much like more MRIs for me but so far (two years now) she hasn't argued when I've backed away from the idea.SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.
Comment
-
I agree that MRIs are amazingly useful. But I've had 5 of them now, and the last one (about 8 years ago) was specifically for comparison with the previous one. The MRI was done, and I went to the neuro for the followup visit and asked about that comparison. He looked blank, consulted a few computer screens, then said, "Oh, it looks like that wasn't done." That previous MRI was done at the same location, ordered by the same clinic and doctor. And they didn't bother. That neuro went on to greener pastures but I opted not to follow him there. I'm still with that clinic though because it's the only one in my insurance network, and the current neuro I have is very nice but not keeping up with my case very well.Originally posted by jingle View PostAgate, may I ask why you are reluctant to have an MRI? I look at them as one of the most life saving medical procedures available.
There is no reason anyone needs to know how my MS is doing at this point unless they have a real interest in it. But they clearly don't. They can't tell whether the Copaxone is helping me because my type of MS doesn't typically show up as new lesions on an MRI.
But the main reason is that this clinic and this neuro are doing the absolute minimum in terms of my medical care. The neuro told the pharmacy I wasn't taking Copaxone and refused to refill the rx. This caused lots of phone calls until it was straightened out. She had prescribed it, we had had a phone visit discussing it, and she ought to have known better.
Another time there was a scheduled phone interview. She forgot about it apparently. When I waited around and finally called to find out what had happened, I was told she'd call me "later." I waited about 5 more hours.
Her exams have been minimal and cursory. No neuro has ever checked my walking though my walking has always been very limited since MS came along, and she doesn't check either. Her exam takes all of a couple of minutes.
That's OK with me. I'm not that interested in a detailed study of my case at this point. But I don't see getting an MRI if it's going to be treated as if it didn't matter in the least.
If I had a new and troublesome concern, of course I'd go for any MRI that was recommended, if I trusted the doctor. But in this case, as nice as this doctor is, I'd try to find a different doctor if any new and troublesome concerns come along.SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.
Comment


It seems like a long time since you have posted here. Thanks for your nice wishes.
Comment