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    Ignorence is bliss

    I have learned much about life and death in the recent months. I have a new level of compassion for people dealing with life threatening illness, many people that I have interacted with on braintalk.

    I had a recent trip to the er for a seizure, to get patched up and sent on my way. Thinking I would get the usual fluids and ekg, then be sent home, I was a bit confused when the nurse walked in and said to me "you are really sick, we are admitting you to the icu". Thinking the symptoms I was feeling didnt warrant the icu, the er doctor assured me that I would be fine, that they just wanted to keep me overnight for observation. It is obvious to me now that the doctors and nurses knew the seriousness of my condition, but just wanted to keep me calm and comfortable. I was given a shot to help me feel better, and was whisked off to my icu room.

    After I was given that shot, I don't remember really thinking much about my situation. I was just in a bed, in a room, not thinking, just sleeping or blindly looking at nothing. It never occurred to me to turn the tv on, or attempt doing anything. When the nurses pushed me for interaction, I responded, but I would mostly just lay and listen to the beeps, clunks, and swooshes of the machines hooked up to me. This was only a small unit with 6 bays for medical icu patients. The big sliding door to my room was never closed, and I could hear every detail of what was happening in the icu. When I didnt want to hear what was happening, I did not have a choice, as I was not capable of thinking of a solution to prevent the sounds from entering my ears. Someone in the unit passed away each day, and while I am thankful that I didnt experience any visuals, it was the sounds and smells that I experienced that will never leave my mind.

    It was a strange state to be in, I didnt experience much emotion, I was only really able to listen most of the time. It took 5 days to get my vitals stable enough to release me home. It is sort of like it really didnt happen, like it was all some sort of weird dream. I left the hospital not really sure why I was there, only thinking that I was sure someone else needed that room more then I did. I was totally ignorant to my situation. Lucky for being young, I was able to be released straight from the unit, not needing to be stepped down or anything.

    I have since learned about the problems I am experiencing and what is happening. Still many more questions to ask, tests to be run, and serious decisions to be made, but I am confident I will recover, but if I dont I am somehow okay with that, that decision is up to fate. All the time I spent all depressed and complaining about such insignificant stuff over the years, I am done with all the negativity. Somehow this strange trip has changed me.
    Last edited by roadracer; 08-10-2013, 07:53 PM.

    #2
    hey roadracer !

    i'm glad that you are finally getting treatment for the medical problems that have been bothering you for so long and which you have written about here, in this forum. i believe it's true that when we or someone we love is experiencing a serious medical crisis or an ongoing chronic problem that will not ever get better, we see the beauty of living, all that life has to offer and we start to appreciate things more and let the insignificant, petty stuff roll away. your depression could have been caused by your medical problem or it could have been because you were struggling through your problems by yourself. i think i remember you saying you didn't have much support from your parents, i hope they are becoming more empathetic now that they realize you have serious problems. if they're not, i'm sorry.

    roadracer, i think that you were probably on some anti-anxiety meds in your iv to keep you seizure free. these meds are usually in the benzodiazepine family and they are pretty potent meds when given through iv. it almost sounds like you were having an out-of-body experience where you were aware of things going around you...things that were not pleasant, but that you were able to just mentally note and then let go. that is the lack of emotion that you describe. yes, it is peaceful when you are seriously ill and need to be kept calm. it is not real life, though.

    i don't know if you have a patient advocate for yourself. this is a person that would go to the doctor with you, maybe help clarify things when you are unable to understand what is happening because of the meds you might be on. this person can by ANYONE you trust... a good friend, a cousin, an aunt or uncle...anyone who cares about you enough to help you through this time. when you designate someone as your advocate, you write their name on a form for the doctor saying it is your wish that this person can be in the examining room with you, that they can be told about your medical condition at any time, that they can ask questions if you are in the hospital and unaware of things. when my mother-in-law started having the symptoms of early alzheimer's, i became her patient advocate and i went to the doctor with her, made sure she was only seeing one doctor so she wouldn't be getting different pills for the same thing from multiple doctors. i was able to ask the doctor questions because of my knowledge and i was able to remember what my mil had been complaining about since her last visit. i think if you have a serious medical condition, a patient advocate can be an extremely helpful person to be there for you.

    whatever you decide, i do wish you the best. i've always read your posts and cared what happens to you. i know you've had a hard time the last few years and i hope that things will get better for you.

    life is worth living.

    sometimes you have to do some research on your own condition to understand it better. sometimes you ned some help. sometimes you need to let go of certain negative feelings.

    take care of yourself!

    thank you for sharing and caring,
    jeannie
    Last edited by tic chick; 08-11-2013, 08:59 AM.
    WE ARE BT!
    "The world is a better place when you're barefoot." Mark
    "Don't go there unless you know the way back." TC
    "...there will be an answer. Let it be." Paul McCartney

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      #3
      Thank you Jeannie

      When I was released my mom was taking me to doctors appointments, and she was a good advocate, but the nurses would invite her into the room, and being a guy, I wasn't really comfortable discussing private embarrassing issues in front of my mom. Although she asks questions, and I end up telling her anyway, so I am not sure why I am still embarrassed. I have been managing by taking lists of things I would like to discuss, asking tons of questions, and taking notes. Having someone with me again would probably help though.

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        #4
        i hope you are a lot bhetter now roadracer. that being ignorant is bliss thing tho can also get a person in deep trouble. because i do not feel much of anything below my knees, i had an infection get to far ahead before it was noticed. so i am srtill trying to recover from that. same thing as every summer, i hurt something and have to stay laid up and not have any fun in summer. no lake going, swimming etc. this year was worse i have ever been tho.

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          #5
          I cant really say that I am better, just that I am moving along and hopeful that I can get better.

          The reason for the hospital stay was that my body started to fail me. The problems I am experiencing are from something that is progressive. My GI system has went to a crawl, I cant keep food down, and my colon stopped moving it. They found problems with my liver and gallbladder. I have lost bladder control and have numerous neurological problems. Luckily my heart rate and blood pressure seem to be stable enough and my cardio problems have not got that much worse. Medications have not worked, I am malnourished and trying my best to avoid a feeding tube and surgeries. It is a thin line, if they start sticking tubes in me and doing surgery, my cardiovascular system might not recover, or I might not be able to handle complications.

          It will take time to figure out treatment and recover. I guess it is a one thing at a time sort of process. Being young and having been a athlete really helps, so hopefully I can bounce back.

          Sorry to hear you had a infection. It is no fun sitting around, I think I have watched everything on tv twice! Hope you have a fast recovery and next summer goes better.
          Last edited by roadracer; 08-15-2013, 09:30 PM.

          Comment


            #6
            oh my how scary. not knowing the cause of an illness or something alwaays worries me to pieces. i have had years of not nowing why i have perphial neuropathy and you'd think i'c be use to it now, but no. and it always lends a negative factor in instances like with this go around with infection. if all i have to go on is looks, i miss out on a lot of clues.

            i sure hope you can keep some strength and get better. i know you'd like that too. i always look forward to seeing your pictures you take with camers. always interesting and they are good. so here is hoping you get health all straightened out and get you back feeling good. be sure and eat all you can and for surfe keep fluids going. i know they will keep on top of things but be sure and do your part as best yoi can. will be watching to hear of improvements, soo i hope.

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