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    #16
    More info on Cerebral Palsy and other IDD/DD people being high risk for COVID19 Only registered and activated users can see links., Click Here To Register... From the article in quotes:

    A new study is offering some of the first details about how the coronavirus is impacting people with developmental disabilities and the picture is not pretty.

    Individuals in this population are significantly more likely than others to die if they contract COVID-19, according to findings published in the Disability and Health Journal in late May.

    The study looked at electronic medical records for 30,282 people with the virus, including 474 with developmental disabilities like intellectual disability, cerebral palsy and Down syndrome.

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    Among those ages 18 to 74 with COVID-19, researchers found that the fatality rate was 4.5 percent for people with intellectual and developmental disabilities compared to 2.7 percent for others. The rate of death was also higher among individuals with developmental disabilities ages 17 and under, while the fatality rate was similar for those ages 75 and older whether or not they had a disability.

    “Based upon the case fatality rates we report among those ages 18-74, if 100,000 individuals with IDD contract COVID-19 — which is entirely possible in light of the estimates of the size of this population and the cumulative incidence rates we are seeing in our research — we would expect 4,500 to die,” said Scott Landes, an associate professor of sociology at Syracuse University who worked on the study. “Comparatively, among 100,000 individuals without IDD, we would expect 2,700 to die. That would be an excess of 1,800 IDD deaths and in my mind that is unacceptable.”

    It’s not entirely clear from the data why individuals with developmental disabilities experience a higher risk of death from the virus, though the findings indicate that this group did have more co-occurring conditions including hypertension, heart disease, respiratory disease and diabetes. The researchers also noted that people with developmental disabilities are more likely to live in congregate settings where it’s harder to limit the spread of COVID-19.

    “More attention is needed to this vulnerable health population in order to ensure their safety and well-being during this pandemic, including careful attention to the impact of public policies such as PPE prioritization and funding streams on the ability of residential service providers to guarantee quality care during this time,” Landes said.
    The virus is still out there regardless of any protests.

    Btw Mary Grace, Update: my friend D's father survived a bad stroke on the left side of his brain that effected his memory and physical movement. For now they don't think he had COVID19 but others around him did so there's always the slight possibility he had the virus.
    Last edited by funnylegs4; 06-08-2020, 08:00 PM.
    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
    My website for my original short films! http://cripvideoproductions.com/astrokeofendurance.php

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      #17
      More information on the risks for COVID19 and Cerebral Palsy from a mother of a teenager with Intellectual Disability and Cerebral Palsy here Only registered and activated users can see links., Click Here To Register...
      Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
      My website for my original short films! http://cripvideoproductions.com/astrokeofendurance.php

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        #18
        This is more about Intellectual Disability but since these issues overlap with Cerebral Palsy I'm posting here in case it helps Only registered and activated users can see links., Click Here To Register...
        Only registered and activated users can see links., Click Here To Register...
        Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
        My website for my original short films! http://cripvideoproductions.com/astrokeofendurance.php

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          #19
          ((((((funnylegs4)))))) ~

          Thank you for sharing these articles. It's depressing, and it isn't surprising.

          Unfortunately, a large majority of persons with Intellectual Disabilities, or Developmental Disabilities, live in communal settings, like a group home, an intermediate or an acute care facility, or an institution. This is particularly true for individuals, who are adults, whose parents either couldn't manage their care or are deceased.

          Generally, the level of support for parents or relatives of these individuals is minimal. Fortunately, in California, we have two programs, which provide appropriate financial support for in-home care. If the Olmstead Act was implemented across the country equally, there would be far less out of home placement. That would reduce the cases of COVID-19 among this demographic.

          I suspect that any contagious disease, such as "the flu," MRSA, strep, etc., spreads rapidly in these communal settings. It's unavoidable, when living in close quarters.

          One of my comforts now is that Jonathan, Michael, and Jim are not here to worry about exposure to COVID-19. When Jim went to the hospital for a blood transfusion and then paracentesis in January and February, COVID-19 was here, but we didn't know about it. Regardless, we always wore masks and washed our hands in any medical setting.

          I pray for all of the people living in a communal setting that COVID-19 doesn't invade their residences. All it takes is one person with the virus to infect everyone.

          And, I pray for our BrainTalk family to be safe, because everyone here is at risk.

          Be well. Be safe. Take super good care of yourself.

          Love & Light,



          Rose

          *Virtual Hugs Are Germ-Free!
          Mom to Jon, 49, & Michael, 32, born with an undiagnosed progressive neuromuscular disease. Angel Michael received his wings in 2003. Angel Jon received his wings in 2019. In 2020, Jim, their Dad, joined them.

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            #20
            Originally posted by Earth Mother 2 Angels View Post
            ((((((funnylegs4)))))) ~

            Thank you for sharing these articles. It's depressing, and it isn't surprising.

            Unfortunately, a large majority of persons with Intellectual Disabilities, or Developmental Disabilities, live in communal settings, like a group home, an intermediate or an acute care facility, or an institution. This is particularly true for individuals, who are adults, whose parents either couldn't manage their care or are deceased.

            Generally, the level of support for parents or relatives of these individuals is minimal. Fortunately, in California, we have two programs, which provide appropriate financial support for in-home care. If the Olmstead Act was implemented across the country equally, there would be far less out of home placement. That would reduce the cases of COVID-19 among this demographic.

            I suspect that any contagious disease, such as "the flu," MRSA, strep, etc., spreads rapidly in these communal settings. It's unavoidable, when living in close quarters.

            One of my comforts now is that Jonathan, Michael, and Jim are not here to worry about exposure to COVID-19. When Jim went to the hospital for a blood transfusion and then paracentesis in January and February, COVID-19 was here, but we didn't know about it. Regardless, we always wore masks and washed our hands in any medical setting.

            I pray for all of the people living in a communal setting that COVID-19 doesn't invade their residences. All it takes is one person with the virus to infect everyone.

            And, I pray for our BrainTalk family to be safe, because everyone here is at risk.

            Be well. Be safe. Take super good care of yourself.

            Love & Light,



            Rose

            *Virtual Hugs Are Germ-Free!
            Thanks so much Rose! Completely agree! I actually just learned about the Olmstead Act the other day believe it or not LOL. Like the ADA the Olmstead Act must be enforced/implemented properly. I'm so glad your boys and Jim never ended up in an institution.
            Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
            My website for my original short films! http://cripvideoproductions.com/astrokeofendurance.php

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              #21
              More info on how people who have CP due to ischemic stroke at birth may get COVID19 induced clots Only registered and activated users can see links., Click Here To Register...
              Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
              My website for my original short films! http://cripvideoproductions.com/astrokeofendurance.php

              Comment

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