Just checking in...

[Tracy Sheppard]

I guess it has been a while since I've been here. New look and all. Still here will try and check in more often. I think I have been around for about 12 or 13 yrs. This place was my lifeline for many years. So many old and dear friends.

[MumtoT]

Hmm maybe 11 or 12 years. I wanted to find people who knew what it felt like to have a seizure, and then also to find a proper diagnosis for Travis. There were lots of thoughts and not much happening with the paediatrician, and the visiting paed neuro was going round in circles as well. We finally got on the right track and have been able to give T the right drugs and management.
It good to see the forum back even though I don't post much.
Yvonne xx

[andromeda31]

Hi!
Still here! Need to come by more often though! I started around when Caitlin was 2 or 3....I didn't really 'fit in' anymore at the Prematurely Yours board I was posting at, Caitlin was way more severely impacted than the others there. I had started looking into the hydrocephalus association and saw postings from Lizard and a link to here and voila! Here I am!!! :) (so 7 years I would say!)

Lisa O.

[Denae]

Paul, you pushed me here from FB.. I am so TIRED of changes :-( I can't remember when I first found CN. I know it was SEVERAL updates ago. I think Heather Riley was 3. We thought she had a stroke, had no idea what was going on with her. Found out she was having seizures and todds paralysis- much later-

Seems like a lifetime ago! She is 12 now.

Life for us the last several months has gotten busy. At the precise moment Heather Riley is very rock stable which is a miracle. August she was in the hospital 4 times with status seizures. It was very discouraging. I returned to school and felt crushed, her health declined and it made me worry that I had made the wrong choice. LGS cycles of good and bad,she is back into a good cycle. I am praying it lasts.

Heather Riley is in group Faith Formation for the first time, we put her with 2nd grade. She loves it. I stay with her as a one-on -one. She looks forward to it every week. This year she will have first communion with this group of kids. We haven't felt like she was ready until now. She is very excited. We all have a lot going on and there are lots of changes going on in everyone's life.

[Paul from Australia]

Hey folks.

It is good to see the old faces and the new faces again.

Let's get the child neuro folum up and running and so busy that it is difficult to keep up with the posts :)

So, lets get cracking :)

Seeya all here soon.

Paul, Alison and Grant the champ.

[mg12061]

I agree too many formums end up going to facebook. I'm not in facebook so I hate to see this one go too. how about starting an "update" thread so we can all see how everyones doing.You can brag about any great new things going on or vent about anything stressful going on or just say hello and everything going smoothly...
Mary grace

[Janice]

Hi
I haven't posted on the forum for a long time but do read all of the posts.
Kym is now 18 half years old and it sometimes it seems like yesterday that she was born. We have travelled many journeys with her and tried numerous medications. She is a real delight in our family and we are truly Blessed to have her as our daughter and sister.
I started going on the forum about 14 years ago and the first person to respond with the same diagnosis was Tamie.
What a joy that was knowing that Kym was not the only one with this diagnosis. Tamie has been a blessing to us with all of her information and knowledge. You have been a true friend.
Kym is doing well at the moment.
This is her last year of school and next year she will get "Post school options" There are many organisations that take children out for the day and occupy them with activities and community interaction.
The government does take care of our disabled children which is great.
They provide funding to pay for these services.

I hope all is well with each and every one of you.
Janice
Mum to Kym and Noelene, Renae, Wayne, Geoff, Leonie and Foster mum to a 3 year old girl.