He has asked that we pass the information on to all our friends. He finds out today which type it is. He and Allison are grieving the loss of Grant and this illness is a nasty blow. He is asking for prayers and messages of hope. They keep him going.
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grandmother of Tyler (27): Ohtahara Syndrome/SCN2a gene mutation, cortically visually impaired, quadriplegic, severely developmentally delayed, no speech, severe intractable seizures, frontal and temporal lobe atrophy, progressive scoliosis/kyphosis, chronic kidney stones & UTI's, gastroparesis, 100% tube fed, autonomic dysreflexia, but what a precious gift from God. "Lord, grant me the serenity to accept the things I cannot change." -
((((((Paul and Alison)))))) ~
I am so very sorry that you are facing this challenge. I do understand, having been through a similar experience with losing Jon, while caring for Jim.
You are strong and determined, and that will help you on this journey. Now you give yourselves the same level of care you gave to The Champ. Keep your faith and remember that God has a plan for all of us.
You are in my prayers, and I send you healing, positive energy.
God Bless You ~
Love & Light,
❤️❤️❤️❤️
Rose
((((((Tamie))))))) ~
Thank you for sharing this with us. How are you, Tyler, and your family? My prayers are with you always.
Mom to Jon, 49, & Michael, 32, born with an undiagnosed progressive neuromuscular disease. Angel Michael received his wings in 2003. Angel Jon received his wings in 2019. In 2020, Jim, their Dad, joined them. -
Paul has suffered a stroke. Alicia hasn’t said any more other than they are keeping him comfortable. Please pray!grandmother of Tyler (27): Ohtahara Syndrome/SCN2a gene mutation, cortically visually impaired, quadriplegic, severely developmentally delayed, no speech, severe intractable seizures, frontal and temporal lobe atrophy, progressive scoliosis/kyphosis, chronic kidney stones & UTI's, gastroparesis, 100% tube fed, autonomic dysreflexia, but what a precious gift from God. "Lord, grant me the serenity to accept the things I cannot change."Comment
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((((((Paul, Allison, Alicia)))))) ~
I am so very sorry that Paul has had a stroke. You are all in my prayers.
God Bless You!
Love & Light,
❤️❤️❤️❤️
Rose
((((((Tamie)))))) ~
Thank you for keeping us informed about Paul. This is very devastating for Allison and Alicia, I am sure. I pray that he recovers fully.
Mom to Jon, 49, & Michael, 32, born with an undiagnosed progressive neuromuscular disease. Angel Michael received his wings in 2003. Angel Jon received his wings in 2019. In 2020, Jim, their Dad, joined them.Comment
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Paul has passed into the loving arms of his Heavenly Father and been reunited with his beloved Grant. He will be sorely missed.grandmother of Tyler (27): Ohtahara Syndrome/SCN2a gene mutation, cortically visually impaired, quadriplegic, severely developmentally delayed, no speech, severe intractable seizures, frontal and temporal lobe atrophy, progressive scoliosis/kyphosis, chronic kidney stones & UTI's, gastroparesis, 100% tube fed, autonomic dysreflexia, but what a precious gift from God. "Lord, grant me the serenity to accept the things I cannot change."Comment
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((((((Paul)))))) ~
THE TRAVELER
Dear Lord, I cannot see—
But this I know, although the road ascends
And passes from my sight,
That there will be no night;
That You will take him gently by the hand
And lead him on
Along the road of life that never ends,
And he will find it is not death but dawn.
I do not doubt that You are there as here,
And You will hold him dear.
Our life did not begin with birth,
It is not of the earth;
And this that we call death, it is no more
Than the opening and closing of a door—
And in Your house how many rooms must be
Beyond this one where we rest momently.
Dear Lord, I thank You for the faith that frees,
The love that knows it cannot lose its own;
The love that, looking through the shadows, sees
That You and he and I are ever one!
~ James Dillet Freeman
Amen.
Love & Light,
❤️❤️❤️❤️
Rose
Mom to Jon, 49, & Michael, 32, born with an undiagnosed progressive neuromuscular disease. Angel Michael received his wings in 2003. Angel Jon received his wings in 2019. In 2020, Jim, their Dad, joined them.Comment
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I am so sorry to hear this. I enjoyed his posts. Praying for friends and family.
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