It's Blaze's daddy it's been years since i've talked to many of you. Thanks for your kind words to my wife towards me. We go for Ryan's results at the autism center on Wednesday, we will be sure to post. Thanks again for helping my wife along....
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Great to hear from you again. I know very little about autism, but will keep you in my thoughts and prayers tomorrow. Update us when you are able.grandmother of Tyler (27): Ohtahara Syndrome/SCN2a gene mutation, cortically visually impaired, quadriplegic, severely developmentally delayed, no speech, severe intractable seizures, frontal and temporal lobe atrophy, progressive scoliosis/kyphosis, chronic kidney stones & UTI's, gastroparesis, 100% tube fed, autonomic dysreflexia, but what a precious gift from God. "Lord, grant me the serenity to accept the things I cannot change." -
wishing you the best of luck.Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
My website for my original short films! http://cripvideoproductions.com/astrokeofendurance.phpComment
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((((((Blaze's and Ryan's Dad))))))
I have thought of you and Blaze so many times through the years. The epitome of courage and perseverance, both of you.
I'm so glad that you found your way back to us, that you guided your wife to our family. You know that we will always be here to support you both and your precious son.
My thoughts will be with you tomorrow, and I'll look forward to your post about the results and recommendations.
Love & Light,
Rose
Mom to Jon, 49, & Michael, 32, born with an undiagnosed progressive neuromuscular disease. Angel Michael received his wings in 2003. Angel Jon received his wings in 2019. In 2020, Jim, their Dad, joined them.Comment
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I, too, have thought of you - who could forget such a striking and lovely name of 'Blaze'? I pray for good results that give you hope and a good plan at the hospital meetings. Thank you for saying hello to your old friends here on CN. DonnaDonna, Mum to Natalie (22), ablebodied, kind and beautiful and Nicholas(26), severe CP, non-verbal, tube fed, multiple surgeries, chronic pain, happy kid except when the Liverpool football club or the Ottawa Senators Hockey Team are losing!
Check out my blog: http://www.donnathomson.com
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How did things go at the autism center? Did they explain anything?Comment
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