Neck pain induced by the biological clock

[nikooters]

Hi Piergino!

Thank you for all the insights. Your pain tiggers are definitely obtuse to what I've heard of before, I emphasize with you.

I don't know, would you be open to brainstorming? Maybe are you looking for support? Let me know how we can help!

Definitely I'm not a medical professional. I do have lots of knowledge of some very simplified views of how the human body may or may not interact.. and I run a support group for EDS so I'd also be open to just chatting :)

You share an amazing, and super vital lesson, which is you found a pattern, and have worked with it. Nicely done for being so obervant of the triggers, you're a long way ahead of a lot of people and more can learn from what you've done!

[Piergino Pedrocco]

Thank you Nikooters.



This morning I found a very interesting article.

It has been published in 2022

in Only registered and activated users can see links., Click Here To Register...

The title of the article is

The skeletal muscle circadian clock regulates titin splicing through RBM20

It has been written by
Only registered and activated users can see links., Click Here To Register... and others.

So, I wonder if in my case an unknown problem in the biological clock can have caused my muscular problems in the neck.

Thanks.

Best regards

[Piergino Pedrocco]

Good day to everybody.

I found two very beneficial books.

The first, already well-known, is Life Time, by Russell Foster.
Many pieces of information are in it.
For example, it says that cluster headache in many individuals occurs at precisely the same time every day (pag. 240).
The other book (I am reading it) is an open-access book online.
It is “Functional Somatic Symptoms in Children and Adolescents.
A Stress-System Approach to Assessment and Treatment”,
by Kasia Kozlowska, Stephen Scher, and Helene Helgeland.
It seems an essential book, which gives a scientific explanation to until now unknown functional somatic symptoms.

My best wishes

[agate]

Thank you for the book recommendations. These look like interesting books.

[Piergino Pedrocco]

Thanks to you Agata, for your thanks and for your tireless activity in this forum.
People interested in reading my case have already read it.
So, almost no one will read my book recommendations.
Bye for now.

[agate]

Piergino Pedrocco, of course you feel disappointed when it looks as if nobody is reading your posts or following your recommendations. Here we have no way of knowing who is reading though. People can stop by here and read. You just never know who might be reading your words. It's the chance we all take on this board.

This place once had hundreds of viewers at just about any time. The novelty seems to have worn off and people have moved on. But some do check back now and then, and we're still here for them, as well as for new people who come along.

We always like to welcome new people and don't enjoy being just a haven for occasional old-timers who drop in and say Hi occasionally. It would be a commitment of time and effort on your part but you can drop out at any time, no questions asked. It's up to you.

[Piergino Pedrocco]

Cara Agata.

Thank you and happy new year

It’s not a problem for me.

Life Time is already famous. The other book doesn’t need my publicity. I ordered the printed version, which is more comfortable because it is a book to study. First of all, it is the first time that I have found a scientific explanation, also medical, and not only vaguely psychological, of the so-called psychosomatic disorders.
Besides, maybe in my case, it is not pain, but a form of fatigue. The term fatigue should not be considered in the common sense that everyone knows but in the technical sense described in the book (and perhaps you could assume different forms of fatigue). The problem with fatigue is that it is a disabling symptom. It is a warning that the body gives. The body tells you not to strain because you do worse.
Therefore, there may be several symptoms snubbed by doctors, because they do not fall under a known pathology. Fortunately, it is only a night problem.
The problem with this blog is perhaps that it needs some neurologist or curious scientist who dialogues with interested people. However, there is a counter, so I can know how many people read the post.
But it would also be useful to find someone who has a similar problem.
Because, if you have lived for years with a unique problem, you can be sure that you can read until 7 in the afternoon approximately (it can vary by a few minutes, depending on the day), and you have to turn off your computer in time in an ordinary way because otherwise, you have to turn it off with the main button.
And you have to lie down in silence at a certain time, so as not to worsen the situation of the neck and general well-being, when until a few minutes before you listened quietly to the radio.
Maybe it’s a stress problem. It’s a scientific singularity for sure.

Thanks again.
Bye for now

[agate]

Just to clear something up, BrainTalk isn't a blog. It's a message board, also known as an online forum. Some time ago it had a feature built into it where any registered user could set up a blog here at BrainTalk but each blog was just a small part of the larger message board activity. BrainTalk no longer offers that blogging feature. Apparently there wasn't enough interest in it, or maybe there were problems with getting it to work right.

[Piergino Pedrocco]

Hello and happy new year to everybody

Perhaps mine isn't a functional neurological disorder.

Given that:

- in the neck there are also non-flexor-extensor muscles, and that the AI Artificial intelligence seems to suggest that there can be dystonia without abnormal posture if it involves some internal muscles.
- AI says that chronodipendent dystonic syndromes exist, that distonias can become sensitive to external stimuli (and my disease is sensitive at night), but also be induced by maintaining a standing posture,
I wonder if it’s possible that mine is a dystonia (where perhaps the sulpiride was a concause) limited to the innermost muscles of the neck, and working on time.

According to the AI, you can measure the activity of internal muscles even without needles, but in a less precise way. The measurement, in my opinion, should be done at critical times, with a little effort on my part, but not too much.

In addition (perhaps an important clue), the artificial intelligence, speaking of spasmofilia, suggests that in spasmofilia the nucleus soprachiasmatico (central biological clock) can influence the regulation of calcium concentration, and calcium is an essential mineral for muscle contraction.

Greetings to all.

Piergino P

[agate]

Since you refer to AI several times, I hope you realize that AI information is only as reliable as the sources AI has used. You do need to check out the sources. For instance, when I looked up "spasmophilia" I found one source that looked as if it was a mainstream medical journal but it was from 1929. Most medical information older than 10-15 years can usually be disregarded because it's no longer current.

As for sources, I haven't had enough experience with ScienceDirect to know how reliable its information is but notice that AI has drawn some of its information from that Website for "spasmophilia." The more trustworthy sources of medical information are well-established journals like The Lancet, JAMA, the New England Journal of Medicine, Neurology, and information from the National Institutes of Health and the Centers for Disease Control in the US. The UK has other very highly regarded journals--the British Medical Journal is one.

Maybe you knew this already but just in case you didn't...

Sorry I can't address the medical questions you raise. I don't have enough experience with the conditions you describe.

[Piergino Pedrocco]

Hi Agate

Thank you for your valuable and thoughtful advice.
I’d like to say this.
I didn't know that it was so easy and affordable for almost everyone to query the search engines of artificial intelligence.
As soon as I realized it, I started to make some questions to it, after a life with a disorder, not serious , but which is still practically undiagnosed.
Currently it is disabling, but only at night. If I get up, I do it for some emergency, and I stay on as little as possible. I must not to hear music or talk. I cannot read, or focus attention long intentionally on written words (but I can read the alarm numbers, which are not small; it would be worse if I had to interpret the distance between hands).
But the exceptional thing is that I can read until about 19.03, solar time, and I have to lie down at 20.23, solar time. I can’t delay a minute, because, if I do, my neck becomes a little sore, even the next day, until I rest enough lying down. If instead I stop reading in time, go to bed in time, never get up during the night, I can start reading the phone at 7.14 in the morning, solar time, not two minutes before. After one neurologist had written the word dystonia, and another had written that the symptoms would be attributable to distonic syndrome with chronodipendent mechanism, several others denied that it was dystonia.
So I recently told a neurologist that I consider myself a scientific curiosity. But probably, if I stop working, the situation should improve, because I have a stressful job. That said, it doesn’t matter to me if it’s one disease or another. I’ve heard many doctors in my life. Often the definition of a disease is just an excuse not to try to understand the mechanism that disturbs. And artificial intelligence warns that you need to hear from doctors. Of course, the results of artificial intelligence should be read with caution. But they should be considered. It is a very powerful tool. The best doctor can't keep in memory and process all those data simultaneously. Doctors must be humble, and admit that artificial intelligence is useful to them too. It isn't a competitor.
So I asked it some questions, like:
Can cervical dystonia exist without abnormal posture?
Are there any dystonic syndromes with a chronodipendent mechanism?
What disorder may make it necessary not to use the antigravitary muscles of the neck?
In which disorder there may be involuntary movement of the neck during relaxation (during a particular exercise of biofeeback, in my case).
And again:
spasmophilia may exist only in a particular part of the body?
can spasmophilia be chronodipendent?
And at last:
Is there a relationship between cervical dystonia and the regulation of calcium by the biological clock?

To conclude.
I don't claim to have a disease. Only, what I am going to ask the family doctor and the next neurologist is:
Is it possible that in my case there is a bad regulation of calcium at certain times of the day in certain parts of the body?
Perhaps the electromyographic measurement had to consider the muscles more inside of the neck.

Good bye.

Piergino

[agate]

You mention "reading the phone" and so I wonder if you're doing most online activity on a phone? I would find that almost impossible. A typical mobile phone is just too small a space. My eyesight isn't up to it, and my fingers aren't up to hitting the right spot on that phone at the right time either. I use a stylus instead of my hands but I still have problems.

Is there any chance that you could switch to a larger screen--maybe a laptop or a desktop?

[Piergino Pedrocco]

Dear Agate

Fortunately during the day I can read the cell phone. I could even if it was smaller. But it is wide enough. At night I could not read intentionally and continuously larger characters, even if I happened to read unintentionally short sentences big enough in the evening.
It is not a problem of sight, but of relationship between reading, or hearing sounds, and mechanisms that would worsen the muscular situation of the neck. It is only at night (in recent years). The time can change, but the mechanism is mainly time-dependent.
Today I asked Gemini if an excess of calcium in parts of the body at certain times of day can give symptoms similar to dystonia, and I understand that it is possible. But it’s only a hypothesis I have made, for now.
Thank you for your concern.

Piergino

[agate]

So calcium levels in the body seem to vary according to the time of day? That's an interesting idea.

I can think of a reason why your symptoms might be worse at night but it is so obvious --most people are more tired by the end of the day. I'm absolutely sure that fatigue does a number on me every time. Symptoms get worse, and any pain I might have been noticing is worse. This seems to be the way it is for a lot of neurological disorders--far more so than for people who don't have a neurological problem.

[Piergino Pedrocco]

Dear Agate,

the only thing certain about my condition is that it is connected to the biological clock, but I believe the mechanismis is not known. However, I will have a visit soon.
Bye for now.