I am a 24-year-old pre-medical graduate who has unfortunately been out of work on medical leave for the past 5 months after a sustained 7-week period where I had severe insomnia with OCD and anxiety rumination over trauma but tried to power through work for the most part.
I ended up in the ER twice in April with what my PCP described as “catecholamine storms,” where my heart rate and blood pressure were extremely high and I demonstrated other symptoms indicative of severe over-activation of my sympathetic nervous system (including an inability to defecate despite the urge and urinating clear water throughout the whole crisis, and loss of sensation across my entire body).
Since the ER, I have been having extreme symptoms of autonomic nervous system blunting. Most of the symptoms from the crisis phase have resolved, but my main symptoms now are that my blood pressure and heart rate, although normal, do not appear to be adjusting properly to my physical or emotional activity, like they once did.
I have been having intense, constant brain fog that makes it almost impossible to focus on any tasks, I have felt extremely low in energy and emotionally flat without improvement, and I have almost constant head and chest pain and nausea. None of these issues respond to typical interventions that I used to utilize before this crisis to manage depression and anxiety.
In short, it is very difficult to function on a daily basis.
I have consulted multiple neurologists, but have not received any advice except for managing my OCD and anxiety and a diagnosis of “somatic symptom disorder.” Most neurologists don’t know how to deal with post-stress nervous system conditions, and psychiatry has been inadequate.
However, despite working on my OCD, anxiety, and depression from a psychiatric standpoint for the past several months, I have not really had any improvement in my bodily, cognitive, or energy symptoms.
I contracted COVID for the first time around 3 months before all of this occurred and had not felt right ever since.
I had a normal head CT scan, neurological exam, and cognitive evaluation despite a substantial subjective decline in functioning.
I had extremely nuanced emotions, social intelligence, and high intellect before all of this, and my quality of life has become very poor in such a short amount of time (I am literally unable to connect with others emotionally and have not even been able to smile or genuinely laugh for months behind the pain and head pressure). Nothing at all is able to distract me from how I am feeling physically.
My relationships now feel very shallow compared to the past, and I fear that I will never be able to feel love or romantic or sexual attraction again.
My internal clock is completely messed up, and I cannot even feel the normal cues that alert you to time of day or year, my energy level’s just a constant low flatline, no matter how much I sleep.
Close to the 6-month mark after all of this occurred, I am starting to become very discouraged and am desperate to return to some semblance of normalcy after these very difficult months.
At this point, I can’t imagine ever feeling the same again.
I live in the Boston area and am wondering if anyone has any suggestions or knows of any specialists experienced in such complex cases.
I ended up in the ER twice in April with what my PCP described as “catecholamine storms,” where my heart rate and blood pressure were extremely high and I demonstrated other symptoms indicative of severe over-activation of my sympathetic nervous system (including an inability to defecate despite the urge and urinating clear water throughout the whole crisis, and loss of sensation across my entire body).
Since the ER, I have been having extreme symptoms of autonomic nervous system blunting. Most of the symptoms from the crisis phase have resolved, but my main symptoms now are that my blood pressure and heart rate, although normal, do not appear to be adjusting properly to my physical or emotional activity, like they once did.
I have been having intense, constant brain fog that makes it almost impossible to focus on any tasks, I have felt extremely low in energy and emotionally flat without improvement, and I have almost constant head and chest pain and nausea. None of these issues respond to typical interventions that I used to utilize before this crisis to manage depression and anxiety.
In short, it is very difficult to function on a daily basis.
I have consulted multiple neurologists, but have not received any advice except for managing my OCD and anxiety and a diagnosis of “somatic symptom disorder.” Most neurologists don’t know how to deal with post-stress nervous system conditions, and psychiatry has been inadequate.
However, despite working on my OCD, anxiety, and depression from a psychiatric standpoint for the past several months, I have not really had any improvement in my bodily, cognitive, or energy symptoms.
I contracted COVID for the first time around 3 months before all of this occurred and had not felt right ever since.
I had a normal head CT scan, neurological exam, and cognitive evaluation despite a substantial subjective decline in functioning.
I had extremely nuanced emotions, social intelligence, and high intellect before all of this, and my quality of life has become very poor in such a short amount of time (I am literally unable to connect with others emotionally and have not even been able to smile or genuinely laugh for months behind the pain and head pressure). Nothing at all is able to distract me from how I am feeling physically.
My relationships now feel very shallow compared to the past, and I fear that I will never be able to feel love or romantic or sexual attraction again.
My internal clock is completely messed up, and I cannot even feel the normal cues that alert you to time of day or year, my energy level’s just a constant low flatline, no matter how much I sleep.
Close to the 6-month mark after all of this occurred, I am starting to become very discouraged and am desperate to return to some semblance of normalcy after these very difficult months.
At this point, I can’t imagine ever feeling the same again.
I live in the Boston area and am wondering if anyone has any suggestions or knows of any specialists experienced in such complex cases.