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Edwards syndrome; fressreflex loss

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    Edwards syndrome; fressreflex loss

    Hello, our 7 month old son being diagnosed with edwards syndrome have lost his fressreflex though on his 4th month it slightly started to develop, but in a month after that dissapeared again. Can someone give an answer or advise: is it possible to get it back somehow? Maybe there are some methods to develop a fressreflex again?

    #2
    ((((((firefall81))))))~

    To BrainTalk!

    We're glad that you found us!

    I am unfamiliar with the term "fressreflex," so I Googled it. I found this definition:

    Sucking and chewing movements elicited by stimulation of the face and lips.

    My first thought is that your son would benefit from an Early Childhood Intervention (ECI) program. ECI programs offer a multi-disciplinary approach to assisting children with developmental delays, including speech therapy. Speech therapists have assorted techniques to improve oral aversions, swallowing, chewing, etc. Try Googling Early Childhood Intervention to see whether there are any programs offered in your area. Or ask your son's Pediatrician for a referral.

    I invite you to join our Child Neurology forum, where you will meet moms of children with special needs, and adults, who have cerebral palsy. We have lots of experience, and we are here to support you and your son on your journey.

    Only registered and activated users can see links., Click Here To Register...

    Just post a new thread in the Child Neuro forum. We're a bit slow right now, as we're still in the holiday season. But, we'll pick up again soon.

    Looking forward to getting to know you and your son.

    Love & Light,

    Rose
    Mom to Jon, 49, & Michael, 32, born with an undiagnosed progressive neuromuscular disease. Angel Michael received his wings in 2003. Angel Jon received his wings in 2019. In 2020, Jim, their Dad, joined them.

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      #3
      I'm not sure what the fressreflex is but I had PT via early intervention for my reflex issues. A therapy called CME is supposed to be good for reflexes. I'm not sure how early in age a baby can start CME. Edwards Syndrome is Trisomy 18 yes? I follow this blog about Trisomy 18 here Only registered and activated users can see links., Click Here To Register... Look at the older posts where they mention Nora's development etc. It might provide some answers.
      Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
      My website for my original short films! http://cripvideoproductions.com/astrokeofendurance.php

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