I am so happy to see that this group is still here and thriving. I see some names that I remember from the last 10 years (at least). I was really a lurker as I have been diagnosed for 20 years but had about 5 years in between where there were questions. Things have gotten pretty bad and so many other health issues popped up that I am now in the hands of a University MS Centre and have all of my physicians at the same University system. I don't want to make this post too long as I wasn't sure how much to put in the Biography section and I now see that I have included a lot but it really seems easy to get to a profile and gets to the heart of my personal health story. I only say health instead of MS since I deal with quite a few illnesses having no relation to this disease.
I was visiting as a lurker last time I was on here and a heart attack in November of 2010 plus some actual wonderful family events have kept me away from the wonderful people on this board. So I am now called Doggygranny as my living situation has added two new dogs to my life in addition to my little angel (a Bichon Frise). My MS currently keeps me in AFO's and a walker when I don't have to go too far but a long mall day for example would require my power chair. I have had to be taken off of several chemo type drugs for the MS as my bone density became quite diminished. Other than the typical spasticity and pain meds, I am on Copaxone which is easieast on my system. I think that although it is probably not as strong as some therapies I would require at my 20 year stage, my other health problems won't allow too many of the therapies.
So as not to be too long (something I use to do quite often), I will end my re-introduction by just saying that I would love to get to know some people who understand what daily life is like for me and I suppose some online friends. Hope to also find out if there are things I haven't heard about since my focus has been on so many other issues I am dealing with. If someone would like to share with me how to upload a photo (couldn't find out how), that would be great if it's something many of you do. Blessings to you all..
I was visiting as a lurker last time I was on here and a heart attack in November of 2010 plus some actual wonderful family events have kept me away from the wonderful people on this board. So I am now called Doggygranny as my living situation has added two new dogs to my life in addition to my little angel (a Bichon Frise). My MS currently keeps me in AFO's and a walker when I don't have to go too far but a long mall day for example would require my power chair. I have had to be taken off of several chemo type drugs for the MS as my bone density became quite diminished. Other than the typical spasticity and pain meds, I am on Copaxone which is easieast on my system. I think that although it is probably not as strong as some therapies I would require at my 20 year stage, my other health problems won't allow too many of the therapies.
So as not to be too long (something I use to do quite often), I will end my re-introduction by just saying that I would love to get to know some people who understand what daily life is like for me and I suppose some online friends. Hope to also find out if there are things I haven't heard about since my focus has been on so many other issues I am dealing with. If someone would like to share with me how to upload a photo (couldn't find out how), that would be great if it's something many of you do. Blessings to you all..


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