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    Moved again

    I haven't moved recently. But my family in the States has moved from Texas to the San Jose California area. I need to get a yearly check-up and I don't know of any good neurologists in the area. I'd like one who preferably specializes in MS. Any suggestions? I've been looking on line and found that there is a clinic attached to Stanford in Palo Alto which is a little north of San Jose but I don't know anything about it.

    I will have to have family make the appointment and they can only help so far. I will make a choice soon but a little feedback is always nice. I hate going to see a new doctor without knowing anything about them.

    On another note, I've been really grumpy lately and have found that making silly little positive affirmation statements seems to help. I don't always remember to do it. But I can tell when I don't because I seem to slip into a funk and a pity party. I HATE that. So, silly little positive affirmation statements are here to stay.

    Here in Paraguay its running 100 degrees + every day. Yikes it makes me tired just thinking about it.

    It's hump day! MaryLiz

    #2
    Have you looked at this place where patients rate their MS neuros?

    Only registered and activated users can see links., Click Here To Register...

    Also, if you have a good primary care doctor, that person could refer you to a neuro who specializes in MS patients.
    Last edited by agate; 03-07-2012, 06:39 AM.
    SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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      #3
      Hi Mary Liz, good to hear from you again. How is your disease doing with all of that heat? Do you acclimate? It must be a challenge.

      I'm stuck to the East Coast, but good luck with a new Neuro,
      ANN
      Last edited by stillstANNding; 03-07-2012, 08:12 AM.
      There comes a time when silence is betrayal.- MLK

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        #4
        Hi Mary Liz, nice to see you again. I am in the South, so no help as far as Neuro is concerned. Do not envy your weather, but I am wondering what ours will be like this summer. Our winter was so mild we almost didn't have one. I just hope that it doesn't mean we are in a pattern to have a really hot summer.

        Good luck on your search for Neuro.

        Virginia
        Virginia

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          #5
          Thanks for the linc Agate. But there wasn't anything for Californis-sigh Making uninformed decisions is not to my liking

          Ann. I have acclimated somewhat. But mostly I crawl from one airconditions spot to another. I try not to plan anything mid day. And I thank God that I am able to soldier on before I colapse. Evey summer I feel like that I just can't do it any more but luckly I do. If this wasn't such a great job, I'd consider going back to the States. As it is, I'm trying to make is a few more years and then retire.

          MaryLiz

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            #6
            MaryLiz, I'm puzzled because when I look at the Website, I find three pages of posts about neuros in California.

            Please let me know if you're having a problem finding them.
            SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

            Comment


              #7
              I tried also and even though it says there are 49 posts, when I entered to see them it says there are no posts!
              Disappointing.

              Comment


                #8
                nuthatch and MaryLiz, maybe it's because you haven't registered at the site? You won't see anything much unless you've registered.

                If that isn't the problem, please let me know and I can contact the board admin and see if it's having difficulties.
                Last edited by agate; 03-09-2012, 07:33 AM.
                SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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                  #9
                  Agate is right. I just went there and it wouldn't let me see anything until I logged in. There are quite a few in CA but I'm not really familiar enough with the area to know how close they are to San Jose.
                  Last edited by Frog42; 03-09-2012, 08:42 AM.


                  Whatever happens around you, don't take it personally. Nothing other people do is because of you. It is because of themselves. -- Miguel Ruiz

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                    #10
                    Thanks for all the info
                    And yes I did figure out that you had to register before you could get into the site. How ever, most of the posts are old or negative. I'd encourage everyone who has a doc they think is great to post positive things.
                    I'm not sure that it helped except to steer me away from a few places.

                    Since I really only use a doc from the States to write my prescriptions, I guess it could be anyone. But, it would be very nice to have someone that knew all about what was going on. I not really eligible for any trials since follow up is close to impossible. And Copaxone has been working for me so I expect to keep with it.
                    Oh the joys of living overseas!
                    Thanks again for the info.
                    MaryLiz

                    Comment


                      #11
                      Have you tried this list? Even though it was last updated in April 2011, some of the information might still be useful.

                      Only registered and activated users can see links., Click Here To Register...
                      SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

                      Comment


                        #12
                        Hiya.

                        Stanford has an excellent medical school with tons of very qualified specialists
                        teaching and in practice.

                        I have been fortunate to land myself in a medical school with smart, energetic
                        teachers who, having chosen to work where they do, are under a lot of ethical
                        scrutiny. Their residents are sponges for information.
                        Specialities are a team brain.

                        If under the care of other specialists you expand the team
                        because they have easy access to what the others are doing.

                        I'd go to the Stanford site, check out its extensive neurological staff and
                        read up on the clinics, too.
                        I cannot imagine you coming away with anything less than good care.
                        The personalities of some docs mesh better with mine than others but I know that
                        everyone is on on my side.

                        Comment


                          #13
                          Hi Renee,
                          I did think about Stanford but the site talks a lot about research and since I live out of the country I am Ineligible for any research. I don't want to be only tolerated as a patient because I can't be of use.

                          I agree with you that teaching hospitals generally have up-to-date docs. They have to be on the ball.
                          So, I will consider it!
                          Thanks!!!
                          MaryLiz

                          Comment


                            #14
                            The people I see are often involved in research.
                            The research- for which I am not eligible-
                            has never made me a second class patient.

                            Good luck finding what you need sooner than later.

                            -r

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