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AFFORDING THE DMDs!

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    AFFORDING THE DMDs!

    This is partly in response to the post by Heidi, but I am starting a new one so that anyone who might need this information will have it.

    Some months ago there was an article in my home town newspaper. It was written by a man who has MS. He was on Avonex and his
    insurance had been paying most of it. His insurance changed what they would pay and his co-payment was going to be over $800.00 per
    month. He said he could not afford it. He had called numerous people and tried different avenues to try and get help.

    One day he got so frustrated that he picked up the phone and call Biogen directly and they told him not to worry. He said he was getting the
    drug for just over $8.00 per month, which is much less than the co-pay he had when the insurance was covering it.

    He did not say how much he makes and what his circumstances are, however he obviously is still working. I am sure a lot of things could play into what they will do.

    Anyway, it would be worth a try for anyone who can not get the medicine.

    Also, I am on Medicare with AARP supplement and Prescription Part D. I have a "decent" income, obviously not high income, but Rebif is
    really helping me tremendously. I am concerned because I think I know what their cut off is and my income is getting dangerously near
    that amount. Not sure what I will do at that point. It could happen within the next couple of years. Just depends on how much the cost
    of living raises are.
    Virginia

    #2
    It looks as if there's a lot of belt-tightening going on in the US when it comes to medical costs, and of course questions are being raised about the costly MS drugs. There was an alarming article in Newsweek recently, for instance:

    Only registered and activated users can see links., Click Here To Register...

    (Newsweek-- The Daily Beast, May 6, 2012)

    Also, there have been serious questions about whether the DMDs need to cost as much as they do in the US:

    Only registered and activated users can see links., Click Here To Register...
    SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

    Comment


      #3
      When I started using Avonex in '99 it cost approximately $700/month.
      I was appalled.
      When I stopped using it in early '11 it was over $3000/month.

      I am still appalled but I no longer feel guilty.
      The price feels artificially inflated.

      With the near inevitable arrival of a Biogen oral MS drug their stock is riding at
      ~$130/share since the post Tysabri crash that sunk it to~$38/common stock.

      Biogen Idec is fine.
      If they choose to share their wealth, more power to the patient.

      Pharma industry is very healthy.
      Get what you need if it is what you want.

      Comment


        #4
        Duplicate response.
        Last edited by renee; 06-13-2012, 09:31 PM.

        Comment


          #5
          Renee, I absolutely agree. I would find it extremely difficult to have sympathy for any of the drug companies.
          Virginia

          Comment


            #6
            I would love to know how some people get approved for assistance and others (including me!) don't. I have a 50% copay for drugs with my self-pay insurance, costing me $815 per month for an individual policy. Copaxone is now about $4500 per month (last I checked) I can't afford $2250 a month for copaxone (let alone the health insurance premiums, other meds - some which I can no longer afford as well...)

            Comment


              #7
              newone, sorry I can't help with your question, but it's probably a case of someone in charge of assistance going over an applicant's financial information and figuring out what resources are available for aid and who seems to need the most help.

              I've never tried this but I found a Website that lists online pharmacies that offer Copaxone for less:

              Only registered and activated users can see links., Click Here To Register...
              SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

              Comment


                #8
                Also, Newone, it might be the drug company you are dealing with. A very long time ago (I've been on Rebif for since June 2002) I was on Copaxone. I found it the hardest of all to get any help. In fact I couldn't. Rebif I think might be a little better and also Avonex to some extent. I am not sure of this but have found it to be true in my case. However, my insurance has changed since I was on Copaxone. I was on a private policy at that time and I am now on Medicare. That might have a lot to do with it. I was on Avonex for a year before Copaxone. I got just a little help but not much.
                Virginia

                Comment


                  #9
                  Originally posted by agate View Post
                  newone, sorry I can't help with your question, but it's probably a case of someone in charge of assistance going over an applicant's financial information and figuring out what resources are available for aid and who seems to need the most help.

                  I've never tried this but I found a Website that lists online pharmacies that offer Copaxone for less:

                  Only registered and activated users can see links., Click Here To Register...
                  Can't get onto that website - what is the name of it? Thanks!!!

                  Comment


                    #10
                    Hi newone,
                    I'm sorry! Something must have gone wrong. I try to check links to make sure they're OK but I can't get it to work now either. If you do a search for PharmacyChecker, you'll get to it, I think (I did).
                    Last edited by agate; 07-02-2012, 06:07 PM.
                    SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

                    Comment

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