The progressive forms of MS haven't had sufficient attention, and it looks as if the International MS Federation is taking steps to correct the situation.
From the International MS Federation newsletter, July 5, 2012:
From the International MS Federation newsletter, July 5, 2012:
| International Progressive MS Collaborative | ||
| Mission To expedite the development of effective disease modifying and symptom management therapies for progressive forms of MS. Background Our strategic plan 2012-2016 identifies progressive MS as one of the three key priority areas for MSIF's international MS research going forward (along with paediatric MS and stem cells). This important research area has also been identified as a key focus for our global fundraising strategy. Since July of 2011, MSIF and volunteer and staff leaders from the MS Societies of Canada, Italy, the Netherlands, the United Kingdom and the United States, have been engaged in discussions centered on creation of an international collaboration that would leverage financial and intellectual resources to meet the unmet needs of people living with progressive forms of MS. This group is now seeking to engage the international MS research community to develop strategies and priorities in the following areas for research related to progressive forms of MS: • Experimental models for improved preclinical evaluation of novel therapies, • Targets/pathways identification and validation/repurposing of existing therapeutic agents, • Proof-of-concept clinical trial strategies, • Clinical outcome measures and trial designs, • Symptom management therapies and rehabilitation strategies. Community Engagement The collaborative is convening working groups, focused on each of the priority research areas identified in its initial discussions. Working groups will be chaired by a research leader and will draw on expertise of additional experts from academia and industry. These groups will be asked to identify gaps in the priority areas and suggest funding strategies and collaborative models that can most effectively address these needs. These groups will share their findings/recommendations at a meeting in London in the last quarter of 2012. Members of the collaborative will then prioritise strategies and begin to formulate plans to fund research in the identified areas. The vehicles for funding of this research will be determined by the members of the collaborative in consultation with their respective organisations’ scientific and executive leadership. In an effort to create momentum around the critical issue of progressive MS, the collaborative also intends to host an International Scientific Conference on Progressive MS, tentatively scheduled to take place in Italy in January of 2013. Collaborative Members Dutch MS Research Foundation Italian MS Foundation Multiple Sclerosis International Federation MS Society of Canada National Multiple Sclerosis Society, USA UK MS Society Steering Committee Peer Baneke, CEO, MS International Federation, UK Doug Brown, PhD, Head of Biomedical Research, UK MS Society, UK Dhia Chandraratna, PhD, Head of International Medical and Scientific Research, Multiple Sclerosis International Federation, UK Timothy Coetzee, PhD, Chief Research Officer, NMSS, USA Giancarlo Comi, MD, Director of the Department of Neurology, Scientific Institute San Raffaele, Italy Anthony Feinstein, MD, PhD, Professor of Psychiatry, University of Toronto, Neuropsychiatrist, Sunnybrook Hospital, CA Robert Fox, MD, Medical Director, Mellen Center for MS, Cleveland Clinic, USA Raj Kapoor, MD, Consultant Neurologist, National Hospital for Neurology and Neurosurgery, UK Karen Lee, PhD, VP of Research, MS Society of Canada, Canada Marco Salvetti, MD, Director, Center of Neurology and Experimental Therapies, La Sapienza University, Italy Kersten Sharrock, MA, Director of Strategic Alliances, NMSS/FF, USA Alan Thompson, MD, Dean, University College London Faculty of Brain Sciences, and Chair, International Medical and Scientific Advisory Board, MSIF, UK Paola Zaratin, PhD, Head of Scientific Research Department, Italian MS Society, Italy Kim Zuidwijk, PhD, MS Research Foundation, Netherlands |
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, But am so happy for those this will help.
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