Briumvi - antone trie it yet?

[Harpist]

Greeting folks,

It has been many years since I have been on this site but I see several I recognized from the old days (circa 1998). Recently, my sister was diagnosed w/MS (after decades of symptoms) and her neurologist recommended Briumvi. Most of us old timers are on the ABCs so I know of no one on Briumvi. Can anyone share their experiences with it?

Good Rads
Harpist

[Virginia]

Harpist, I am on one of the old drugs - sorry can't help with Brimuvi.

I did want to say I am glad you remembered us and welcome back. I remember you and your user name.

[agate]

I remember you too, Harpist. Welcome back!

I haven't had any personal experience with Briumvi. You probably found the thread about it here:

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There's also this, indicating that the infusion time for Ocrevus is twice as long, and so maybe people taking Briumvi will find taking it easier or at least less time-consuming:

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Too bad about your sister! I hope she'll be lucky and have a milder course.

[Ikoiko]

Hi, Harpest. I was taking Rituxan until my new neurologist decided I was too old and the risk was too great. I am back on Avonex and hate the side effects. I miss the days of twice yearly infusions.

[Harpist]

Hi, Harpest. I was taking Rituxan until my new neurologist decided I was too old and the risk was too great. I am back on Avonex and hate the side effects. I miss the days of twice yearly infusions.

Hej Ikoiko,
My sister is 67 (two years older than me). What concern did your neurologist have regarding your age and Rituxan?

I was on Rebif for over 20 years and Avonex before that. Aleve (Naproxen) was the only thing that handled the flu like symptoms for me. Before I tried Aleve, it was Tylenol pr Advil - neither of which touched the side-effects. To this day - if I forget my Aleve when I take a Rebif injection, I will have a rough night.

Good Roads
Harpist

[Ikoiko]

I use Advil for Avonex side effects. I never tried Aleve, so I will give it a try.

I am 64 and my new neurologist at John’s Hopkins thinks the new stronger immune suppressing drugs are too strong for older people, although I am sure that my old neurologist at Beth Israel in Boston would disagree.

Also a factor, I had shingles twice when I was on Rituxan, once before I had the vaccine and a milder case after the vaccine. Then the new neurologist told me a scary story about one of his patients who had shingles spread to the brain, with disastrous results.

[Ikoiko]

Harpist, do you find that Rebif has less side effects than Avonex? It is the only ABCR that I haven’t tried.

[Virginia]

My Neurologist does not want me to change from Rebif to a newer drug because of my age. Most of them lower B cells which can cause infections to set in, or so they tell me. I went on Rebif two months after it was introduced in the U.S. Before that I was on Avonex.

[Lazarus11]

Hello Harpist
i have been on something for 30 years. Rituxan for 8 years and a year ago I switched to kesimpta. I inject myself with a prefilled syringe that is a very clever device and easy to use. My neurologist considers rituxan, Ocrevus and kesimpta to be te same and told me tooconsider them interchangeable.

t is nice to go from Long days of infusion to a one minute click and go….kesimpta. I have no reactions. I have never had problematic reaction.
best of luck to you and your sister.

[agate]

These financial reports on MS drugs tend to be just puffery for whatever drugs are being discussed. However, it looks as if Briumvi is starting out by being very popular, and maybe it says something about how eager people are to stop their MS from getting worse, preferably in a way that isn't too disruptive. One-hour infusions twice a year, compared to the other options, would appeal to many people.

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