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ECTRIMS Webinar on aging and MS that didn't work well for me

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    ECTRIMS Webinar on aging and MS that didn't work well for me

    Anyone watch a lot of Webinars? I've watched only a few but felt I was capable of looking at one on aging and MS that was offered by ECTRIMS and featured 4 experts on MS.

    If you couldn't make it at the actual time for the Webinar, you were told that there would be "unlimited viewing" of it afterwards though you wouldn't be able to submit questions. I tried to see it that way.

    I was able to watch about half of it (and one of the experts stated that a patient 89 years old had recently been diagnosed with MS--that must be some kind of a record for late-onset MS) but then it froze up on me. I tried to restore it, and a few hours later tried starting over. I couldn't get back to the Webinar using the options that were available and so I guess I've missed the rest of it.

    There were no captions/subtitles, and two of the speakers had foreign accents and weren't easy to understand.

    --This has just been a little rant.
    SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

    #2
    Sounds frustrating.
    Virginia

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      #3
      I've tried a number of these presentations, and they've been produced by several different organizations, not necessarily ECTRIMS. Each time there have been problems with understanding the speakers, who often were foreign or who just didn't speak well, as well as with the sound or the visual. Maybe the problems are all with me and my computer, but sometimes I wonder if the experts on MS are trying not to be very comprehensible--maybe because they're afraid we'll find out how little they really know?

      If that happened, we might be even less willing to take their medicines.

      What I did get out of this Webinar was that those experts felt that people over 50-65 would tend to have a progressive type of MS and might not be helped by the disease-modifying therapies. They agreed that more should be done to help such people.

      Amen to that.
      SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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        #4
        I'll second that Amen!
        Virginia

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