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    July chitchat

    It's July and looking like summer here.

    How are things going for you?

    People don't drop in here as much these days, but just in case there is anyone reading, I am perking along. Today I'm headed to the lab for what I hope is routine lab work.

    I'm still crocheting hats in my spare time, while watching movies that come to me on DVD from the local library. The rest of the time I'm going about my "ADL" which I understand is short for "activities of daily living." Those have a way of taking up a lot of time.

    Carry on. Hang in there. Stay up. And if you have a moment or two, why not add some content to this forum?
    SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

    #2
    Had Doppler test done this morning . All is OK for carrying on with compression stockings. They were pleased I'd lost some weight. Need to put my legs up more, and be less sedentary though. I can put my legs up on the recliner, while watching Law and order SVU.

    My late wife, up until the vascular dementia she was a great one for crocheting and knitting.

    Have felt a bit frustrated and demoralised, because I'm getting next to nowhere with the genealogy. In my case - ADL < IQ, which is quite common for an autistic person.
    Yet inside there is this perpetual nagging doubt;
    the feeling we are possessed by a 'subtle lack of togetherness''.

    Comment


      #3
      I don't know if the condition you're being treated for is similar to mine (leg swelling) but I was told to elevate my legs for 15 minutes a day but to make sure that my lower legs were higher than my heart. Something about the way blood circulates? Does the recliner get the legs in the "right" position?

      Confession: Actually I was told to elevate my legs for 15 minutes twice a day but I do this only once a day.

      I lie down on my back and use an upside-down plastic laundry basket under my knees and lower legs. It puts the legs at about the same elevation as the foam block that the physical therapist used, the PT who recommended this regular routine.

      I tried hard to get a foam block like the one she used but couldn't find one.
      SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

      Comment


        #4
        Mine is lymphoedema. I have just been told to put my legs up. What you say makes sense though. I checked prices -high!. No HP so far has suggested getting a medical grade recliner. Thankfully it's been much cooler today. A good Summer's day.
        Yet inside there is this perpetual nagging doubt;
        the feeling we are possessed by a 'subtle lack of togetherness''.

        Comment


          #5
          Prices of medical grade recliners are high? Yes, somehow I'm not surprised. Ordinary recliners seem high-priced to me. Not so easy to get in and out of for some of us.

          I'll get around to posting the June Keep On Moving thread soon. I've been overly busy in recent days.
          SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

          Comment


            #6
            If you want true lymph drainage elevation, you’re realistically looking at £1,995–£2,995.
            Via AI
            Yet inside there is this perpetual nagging doubt;
            the feeling we are possessed by a 'subtle lack of togetherness''.

            Comment


              #7
              Is AI saying that that is the approximate cost of a recliner providing true lymphatic drainage elevation?

              The last time I looked, even ordinary recliners weren't exactly cheap. AI has this to say:

              • Entry-Level ($150 – $350): Basic manual push-back or lever-operated recliners. Brands like LACOO and Bestier offer budget-friendly options on Only registered and activated users can see links., Click Here To Register.... [Only registered and activated users can see links., Click Here To Register..., Only registered and activated users can see links., Click Here To Register...]
              • Mid-Range ($350 – $700): These feature more durable fabrics, rocker/swivel mechanisms, or basic single-motor power reclining Only registered and activated users can see links., Click Here To Register.... The popular IKEA GRYTERYD ($399) and SKULNÄS ($499) are great local examples you can pick up at the Portland IKEA on NE Cascades Pkwy.
              • Premium ($700 – $1,500+): High-end models often include top-grain leather upholstery, dual-motor power functions, power headrests, heat, and massage features. Iconic La-Z-Boy rockers and lift recliners typically fall in this tier Only registered and activated users can see links., Click Here To Register.... [Only registered and activated users can see links., Click Here To Register..., Only registered and activated users can see links., Click Here To Register..., Only registered and activated users can see links., Click Here To Register..., Only registered and activated users can see links., Click Here To Register...]
              I didn't realize you could get one at those entry-level prices. Probably not at all what you're looking for.

              SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

              Comment


                #8
                Ideally I need a high range/premium one. But it would really slash the amount in my account. Had another go at making liver casserole. Put liver in at end.60 mins on low, as recommended. Powdery

                I wish more people would join us. I remember when Braintalk would have had 40-50+ respondents to a thread like this. I struggle with things to say. That's because I don't do lots of different things.

                On the plus side , the pelvic etc pain has eased. I was getting more than a little worried about that. The therapist doesn't think it reaches the level of being health anxiety though.
                Yet inside there is this perpetual nagging doubt;
                the feeling we are possessed by a 'subtle lack of togetherness''.

                Comment


                  #9
                  hi nothing new

                  Comment


                    #10
                    Originally posted by Prot View Post
                    Ideally I need a high range/premium one. But it would really slash the amount in my account. Had another go at making liver casserole. Put liver in at end.60 mins on low, as recommended. Powdery

                    I wish more people would join us. I remember when Braintalk would have had 40-50+ respondents to a thread like this. I struggle with things to say. That's because I don't do lots of different things.

                    On the plus side , the pelvic etc pain has eased. I was getting more than a little worried about that. The therapist doesn't think it reaches the level of being health anxiety though.
                    I wish there were other people chiming in too. Some are reading but not saying much, I believe. clouds z just checked in in this thread.

                    Those were the glory days here when there were crowds of people, weren't they? You could come here at 10 AM and see a thread at the top of page 1, and by noon it might be on page 5.

                    I'm afraid the novelty wore off as time passed. People must be spreading themselves very thin these days as they join Reddit, Instagram, Zoom meetings, listen to podcasts and TED talks and do YouTube videos--not to mention sharing photos on their phones of meals they've been eating. I don't think I'd like that much variety but many people seem to love it.



                    SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

                    Comment


                      #11

                      Got you, Tim — this is the “map please” you meant earlier, not a visual map. You want the symbolic, low‑crowding, text‑structured map option I offered (Option 5), because that fits your cognitive profile and avoids visual overload.
                      So I’ll proceed with a symbolic map, not an image.

                      ️ Symbolic Map: Why Braintalk Lost Its Members

                      I. Core Failure Nodes
                      • Server instability → repeated outages → trust erosion
                      • Data loss → disappearance of key medical reference posts
                      • Login failures → users locked out → break in continuity
                      • Fragmentation → Braintalk → HastyPastry → NeuroTalk
                      II. Migration Pathways
                      • Early adopters moved to NeuroTalk for stability
                      • Moderators/content creators followed
                      • Medical‑support clusters (B12, PN, autoimmune) re‑established themselves there
                      • Critical mass reached → Braintalk hollowed out
                      III. Collapse Dynamics
                      • Low posting frequency → fewer replies → fewer returns
                      • Loss of expert contributors → decline in informational value
                      • Community identity weakened → no shared centre
                      • NeuroTalk dominance → Braintalk became redundant
                      IV. Terminal Phase
                      • Braintalk activity dropped to near-zero
                      • NeuroTalk became the de facto successor
                      • NeuroTalk itself closed in 2025, leaving the whole ecosystem archived

                      Timeline Map (Symbolic)
                      • 2003–2006: First major outages; content loss
                      • 2006–2010: Migration to NeuroTalk accelerates
                      • 2010–2020: Braintalk becomes mostly inactive
                      • 2025: NeuroTalk shuts down; ecosystem ends

                      Structural Summary (One‑glance)

                      Instability → Fragmentation → Migration → Attrition → Archive

                      If you want, I can also produce:
                      • A causal chain map
                      • A timeline with branching pathways
                      • A network map showing how user clusters moved
                      • A comparative cultural map (Braintalk vs NeuroTalk)
                      Just tell me which structure you want next.


                      Yet inside there is this perpetual nagging doubt;
                      the feeling we are possessed by a 'subtle lack of togetherness''.

                      Comment

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