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**stillstANNding** · 10-01-2012, 11:43 AM

Hi Doggygranny.:) Welcome and thanks for coming out of hiding.

I read your post and think I understand. You used to work and be active and raised 2 children and now the family says you talk to much- irritatingly so. Is that about right?

First, your daughter is wrong. Drugs do do this. It happened to me on CNS stimulents, Provigil and Cylert in particular. It also happened to me on Neurontin. On the Neurontin, I couldn't let anyone get a word in edge wise- I was talking so fast, I would forget what I wanted to say if I didn't get it all out. So, instead of conversations, I was talking in monologues- long ones.

Another thing to consider is the reaction of all the drugs you are taking together. One may potentiate the other.

And lastly, there is a well known MS symptom of crying or laughing inappropriately. I think you touched on that. That is call psedobulbar affect or PBA. There is a drug that helps if it is interfering in your life: nudexta.

I hope this helps some. Others will add to it. I do hope things get better for you- you have had many difficulties.

Best to you,
ANN

**agate** · 10-01-2012, 12:39 PM

Hi doggygranny,

I'm sorry that you've had so much trouble, and your family definitely isn't helping.

I don't have a lot of know-how in neurological and psychological disorders, but compulsive talking may be a form of OCD or obsessive-compulsive disorder. Have you ever been to a counselor or psychologist about the problem? There might be some help there.

Sometimes it takes a while to get hooked up with a helpful, understanding therapist but if you keep at it, you should be able to find one.

Meanwhile, there is your family's cruelty. Is there any way you can put some distance between yourself and them? Less contact with people who are being hurtful is often a good idea even if it means you have to pass up some opportunities for doing something enjoyable. How enjoyable is it when someone is poking fun at you?

I'm not saying you should cut off all ties. But maybe find some activities that will keep you too busy to have much contact with them.

And if you hear any more remarks, such as the one about you as a woman who talks to her dogs all the time, maybe you could let it roll off you. Join in the joke if you can. People find that unsettling but it's not always possible to do. Just say, with a laugh, "Yeah, I'm the woman who talks to my dogs all the time--they like to be talked to." Or something witty.

So you'll probably want to work on getting the talking under control, if it means cutting out first one medicine and then another and seeing if that helps, or if it means finding a therapist who can work with you. And life would be much easier if you could develop a thicker skin so that what people say won't bother you. Why should it, after all? It's their problem if they're getting their kicks from taunting someone else.

I hope this helps.

**Braindead** · 10-01-2012, 01:40 PM

Originally posted by stillstANNding View Post

Hi Doggygranny.:) Welcome and thanks for coming out of hiding.

I read your post and think I understand. You used to work and be active and raised 2 children and now the family says you talk to much- irritatingly so. Is that about right?

First, your daughter is wrong. Drugs do do this. It happened to me on CNS stimulents, Provigil and Cylert in particular. It also happened to me on Neurontin. On the Neurontin, I couldn't let anyone get a word in edge wise- I was talking so fast, I would forget what I wanted to say if I didn't get it all out. So, instead of conversations, I was talking in monologues- long ones.

Another thing to consider is the reaction of all the drugs you are taking together. One may potentiate the other.

And lastly, there is a well known MS symptom of crying or laughing inappropriately. I think you touched on that. That is call psedobulbar affect or PBA. There is a drug that helps if it is interfering in your life: nudexta.

I hope this helps some. Others will add to it. I do hope things get better for you- you have had many difficulties.

Best to you,
ANN

I must agree 100% with the statement that

"On the Neurontin, I couldn't let anyone get a word in edge wise- I was talking so fast, I would forget what I wanted to say if I didn't get it all out. So, instead of conversations, I was talking in monologues- long ones."

Even when I was aware on the problem I could not control myself. I stopped taking the Neurontin. The Neurontin also just stopped working for me. I was unwilling to increase the dosage to higher levels. I do NOT like this drug. There is lots of negative comments about the stuff being overused for things not approved.

I understand that the rest homes gave it their residents to make the more "social".

Braindead

**Virginia** · 10-01-2012, 07:09 PM

You have gotten some good answers so far and I am sure you will get others.

Just one thing I would like to add at this time - for some people (I realize not all) Provigil and drugs that act in the same manner keep people from sleeping well and can cause them to be somewhat agitated at times. I have noticed that some people on this board have used it with good results, but this might be something you want to keep in mind.

Also, I wonder if there is one Doctor you trust a lot to go over all the medication you are currently on and try to see if any of it overlaps or if some can be cut back on. This would obviously be for the Doctor to decide. I have heard Oxycontin can cause some change in personality while on it.

I definitely would pay attention to Ann and Braindead about the Neurontin. I have not taken it, but when thinking back I had a friend who did take quite a strong dosage and she talked a lot and some of it was skipping from subject to subject. I just thought at the time it was the way she was and didn't think any more about it, but now I realize that when she was able to get off the Neurontin she calmed down a lot.

Sorry I can't give you any scientific evidence to back anything up.

**doggygranny** · 10-02-2012, 07:24 PM

Forgive for delay but forgot to reset email to notify of your kind remarks and help

Also fantastic new feature of thanking people, I suppose this is done even if one does not respond... I appreciate all info and even though not long length, meds mentioned are very important starting points for searches (plus your own experiences) and I will do that tonite/tomorrow.... So also as I explained my new nature of not only speaking too much but my incredible long posts which I had in the past been chastised about ... Hopefully breaking this last one up with all my drugs and conditions didn't bother too much..

So I have a few questions and comments
stillstANNding

First, your daughter is wrong. Drugs do do this. It happened to me on CNS stimulents, Provigil and Cylert in particular. It also happened to me on Neurontin. On the Neurontin, I couldn't let anyone get a word in edge wise- I was talking so fast, I would forget what I wanted to say if I didn't get it all out. So, instead of conversations, I was talking in monologues- long ones.
Another thing to consider is the reaction of all the drugs you are taking together. One may potentiate the other.
And lastly, there is a well known MS symptom of crying or laughing inappropriately. I think you touched on that. That is call psedobulbar affect or PBA. There is a drug that helps if it is interfering in your life: nudexta.

Thanks for the above stillstANNding.. I hope my daughter is wrong and I have begged her to remember what her Mom was like (as in my job and my closeness to her and teenage and college friends).... As to the drugs, Provigil was only 2 or 3 years and I've been off since 2009, now the Nuvigil which is the extended release form has yet to really do much except keep me up a little too long so I am hoping that will work itself out. I am however interested in the Neurontin as a possible one in that I did only use it for a couple years starting in 2000 but I was on Topomax (my understanding that it is the 2nd choice or sometimes first after Gabapentin (Neurontin) is used.. .Many don't like the Neurontin weight gain so they switch. I don't know about the Psedobulbar or PBA as my emotions aren't really at highs or lows like that but I want to do a lot of research on the Topomax as I believe it damaged me in a number of ways.... Certainly it is known to cause Short Term Memory problems. My own sister (2nd of two and younger but 48) has spent the last year battling a rare form of migraine called Basilar ARtery Migraines and although headaches are certainly a factor, they never give the standard Immitrex as first of all, it is almost unheard of to start at her age since it is based on hormones in teenagers.. It is so bad that the headaches are not even as bad as the seizures which she gets after the auras which are nausea auras and the seizures are proven to not be epileptic which is how the confirm the diagnosis after MRI's, Lumbar Punctures, etc... When she talks about her deep fear when experiencing Aphasia (I may be using the wrong word here) but the inability to remember the word or even say the word you had on the tip of your tongue and has recently been almost in tears when telling me she couldn't grasp where she was at a time during the day.. Apparently thinking menopause as opposed to teenage hormones is causing this, they are telling her it will go away (I feel horrible for her but not one time have I said, Oh I know how you feel, happens to me all the time) because as many of us know, each person's symptoms are personal and hearing stories when requested as I do here helps but unsolicited advice...I've been there, sometimes is hurtful... But you would think that she of all people who for years has been embarrassed when I couldn't remember the names of her friends or what she said the day before... that she would understand how drugs can sometimes do more harm than good as the only drug she can take for her Basilar Migraines is "TOPOMAX".... SO I would not wish here illness on anyone but would have thought they would offer an I'm so sorry for criticizing you all these years. I was up to 400 mg per day and she cannot barely take 50 mg... And she's been tried on every other drug they recommend for that illness.. So my quest in searching will start with Topomax (Neurontin is in the same class of drugs) and now that I have had to start Zanaflex XR... I believe I better be very careful... So thanks for bringing up the Neurontin and of course letting me know that you yourself had the non stop monologue type of speech...

To Agate, other than thank you for being here still as I remember that moniker:

Code:

I don't have a lot of know-how in neurological and psychological disorders, but compulsive talking may be a form of OCD or obsessive-compulsive disorder. Have you ever been to a counselor or psychologist about the problem? There might be some help there.

Sometimes it takes a while to get hooked up with a helpful, understanding therapist but if you keep at it, you should be able to find one.

Meanwhile, there is your family's cruelty. Is there any way you can put some distance between yourself and them? Less contact with people who are being hurtful is often a good idea even if it means you have to pass up some opportunities for doing something enjoyable. How enjoyable is it when someone is poking fun at you?

I'm not saying you should cut off all ties. But maybe find some activities that will keep you too busy to have much contact with them.

My daughter, after a long weekend of harsh words about my talking has agreed to see someone with me which will be helpful as she knows my sisters well and that brings up another issue ....the family cruelty... My Daughter and son-in-law offered upon moving to their brand new 3200 sf home (since I let them stay in my home for long enough to save a down payment) after their wedding to move me in and create a mother in law suite in the additional 1300 sf basement so being away from the cruelty is hard, another reason to have my Daughter come..I do so much for those kids (likely my problem in them thinking I am okay to say anything to and a money pit since my daughter is already with child after not even married a year and I want down in the basement soon so of course, I took out an extra loan which I really can't afford.. I give and give and truly want my old daughter back.... I did approach one sister about her own comments to me and could only do it by text...YOu see she is giving to a fault but will not accept anyone criticizing her and simply stating that maybe it's inappropriate to bring up my health and past etc., etc., is hurtful and wish she would stop... I had to ask her to stop after receiving a very foul language text using the word neediness (sorry wrong person)... Calling her is out as she has an admitted history of screaming and my text of course was too long as is my unfortunate nature right now and the remarks regarding that text were more cruel than the first. Sadly, I am with a husband and was divorced when my kids were 3 and 6 and so very proudly raised them alone in Philly til they were 10 and 13 (then to hometown in mid PA) and got them both to and through college.. But focus seems to linger around the one issue they think I can help..I realize that I need an outlet... I don't have Joe or Phil, Bob whoever to turn to who if it was anyone I found worthy or even dating much less marrying would have put a stop to this long ago.. And no I never dated as my Progression (that's what I call the symtoms that took me out of the workplace) took their nasty turn in 2000 to 2002 when I had to finally leave work and that was the age I promised myself as that young single Mom that I would start dating again (as in truly looking,, no bars for me)...

This is where I should also state that I don't consider myself a victim at all of MS.. I do get angry that the blood disorders and other things heaped upon me (not neurogenic bowel and bladder) but the heart attack and DVT's blood mutations, all the unrelated stuff has taken a toll on confidence, self esteeem But no victim... I truly stayed away from anything MS related for a while as I wanted to make sure I was dedicating as much time as I could to me, understanding me and of course I found an awesome church, regained my faith and led an Outreach Ministry which touched me deeply for 3 years and was incredibly happy (that stopped after the Heart Attack as I can no longer drive and believe it or not I am still working on trying to find a way to be able to get up for CHurch on Sunday morning.. Saturday I don't have a ride but I do early sunday.. My general wake up time is 11:00 on a semi bad day and 9:00 on a great day and that doesn't fit my small Parish... But that is at least a goal which is important....

And Braindead,

Code:

I must agree 100% with the statement that 

"On the Neurontin, I couldn't let anyone get a word in edge wise- I was talking so fast, I would forget what I wanted to say if I didn't get it all out. So, instead of conversations, I was talking in monologues- long ones."

Even when I was aware on the problem I could not control myself. I stopped taking the Neurontin. The Neurontin also just stopped working for me. I was unwilling to increase the dosage to higher levels. I do NOT like this drug. There is lots of negative comments about the stuff being overused for things not approved.

I understand that the rest homes gave it their residents to make the more "social".

Gosh, these Neurontin statements are OMG words of hope in an answer for me.. I have been told by one doctor that they are very very similar so I will pray that searches will lead me to the right info... If it's there on Neurontin (I believe considered an anti-convulsant but of course not why we take it)... Topomax is suppose to also be AntiConvulsant so I pray I find even a paper on Neurontin.. Your statements about monologue speaking is me... identical and Tompomax has lots of literature about affecting short term memory but I have to believe it's doing the same thing or a combination of perhaps my 20 years of taking Klonopin and the Topomax high dosage has done this so thanks so much

Lastly Virginia,

Code:

You have gotten some good answers so far and I am sure you will get others.

Just one thing I would like to add at this time - for some people (I realize not all) Provigil and drugs that act in the same manner keep people from sleeping well and can cause them to be somewhat agitated at times. I have noticed that some people on this board have used it with good results, but this might be something you want to keep in mind.

Also, I wonder if there is one Doctor you trust a lot to go over all the medication you are currently on and try to see if any of it overlaps or if some can be cut back on. This would obviously be for the Doctor to decide. I have heard Oxycontin can cause some change in personality while on it.

I definitely would pay attention to Ann and Braindead about the Neurontin. I have not taken it, but when thinking back I had a friend who did take quite a strong dosage and she talked a lot and some of it was skipping from subject to subject. I just thought at the time it was the way she was and didn't think any more about it, but now I realize that when she was able to get off the Neurontin she calmed down a lot.

Sorry I can't give you any scientific evidence to back anything up

Again, the Neurontin experience so I might search even this board for that and you mentioned personalities and attitude and ovbiously the combination of being alone for 24/7 for 10 years before I moved in with my Daugher and Son-in-law (that's hard til basement done)... would cause someone's personality to change. I was in customer service for a number of years yet am told I am mean to waitresses (NOT) but when I think about yes I could have been more patient and also Sisters say I am short with nurses, well only the bad ones but as a good person (and a Christian) I don't ever want to think that I have belittled or hurt anyone... I try and the last thing anyone would have called me 12 years ago and before was short or mean.. .As I try to remind people,,, I could not have had the jobs I had, teaching (questions can be redundant from people not listening) but I was awesome and loved it and miss it dearly... 7 promotions in 7 years at my final job.. doesn't happen to people who are agitated for sure.....But one very important thing you brought up is I did mention these fears to my primary (didnt' mention how my family treats me or the fears) but I talked about newly taking both Nuvigil and Zanaflex so primary went over all 22 pills per day (actually only 14 different ones) but we decided Lyrica was only started for some bone pain I have not felt for a while and I tried titrating slowly off of it and have had no problems. It was the best CNS depressant class of drug to go off since I didn't need it for the Myoclonus for sure and it was originally developed (according to her for the nerve pain from Fibromyalgia) but is being off-label (as in my case) prescribed as it's being found to do many things (she didn't go into detail) but will be seeing her in November and she, although not my neurologist, is fantastic at managing my 6 different physicians and their care and prescriptions so I may have her as a resource even if I have to get her to write a letter to my family if she will do it....

Thanks to all of you so very much.. I now have so many better search words (Monologues great..... Neurontin Class drugs, etc).... Will update all and thanks so much for being here..

**Gabriella7** · 10-02-2012, 09:05 PM

Drugs are responsible....

Definately the drugs are the cause. For myself I take Hydrocodone 5/500 for pain and have taken it for a number of years. It definately causes me to have diarrhea of the mouth or the fingers. If you would break up your sentences into paragraphs of no more than 4-5 lines it would be a lot easier for those of us with visual problems (due to MS?) to read your post. The problem we have results in not being able to continue to read line after line without a break of the sentences into spaces between the paragraphs such as I have done here. Reading a long sentence causes me to have mental fatigue and forget what I have already read.

Thanking you in advance of posting the next time and welcome back to the board. I do remember you from the past. Sorry you have such an inconsiderate family to live with. It's enough to have this disease to live with without having to be ridiculed because of the side effects of the medications. I don't know of a link to any site that could support my hypothesis but I am certain if you do a "google search" you may turn up something. Since I have gone off all the other neuro drugs with the exception of the narcotic and I notice the effects within 20 minutes of taking Hydrocodone look at what happens after you take the Oxycontin.

Blessings,
Gabriella

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Help me show my family a link, a story, statistics anything please re: Speech

Help me show my family a link, a story, statistics anything please re: Speech

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