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    Hello

    I have not been around for awhile. My husband had been ill for a few months but is better now. One good thing is that he got an iPad as a gift when he was in the hospital and bored.Finally I have a way to use Braintalk that a makes it a lot easier than webtv. !!
    So, I stopped in to say hello.
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"..

    #2
    Welcome back Linda, nice to see you. Happpy yor DH is better and for your ipad..
    Love, Sally


    "The best way out is always through". Robert Frost






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      #3
      Hi Linda :)

      I hope your husband continues to do well.

      I missed your reports from the garden, greenhouse and farmers' markets.
      ANN
      There comes a time when silence is betrayal.- MLK

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        #4
        Greetings Linda.
        Ditto on your farm reports.

        Be well.

        la R

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          #5
          Welcome back! I'd been noticing your absence and wondering about you. I'm sorry your husband was ill but since he's better now, it's great that you can be back here.
          SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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            #6
            The farmers, market was a welcome diversion from John,s difficult summer. He missed his Amherst MA farmers market but SSusan and I did every single Northampton market. We lost many outdoor crops but another farmer and I shared the greenhouse watering each day and 3 of us dug fingerling potatoes which was the one crop that we fully harvested.

            I had two infusions of rituxan right as John entered the hospital and I had immediate and strong improvement again. But the blood test they do to check for PML antibodies showed that I had them and that increases the danger of getting the virus. My previous rituxan infusions helped for about 8months so I have time to figure out what to do.

            Anyway, It is wonderful to see your names and hear your voices once again.
            Linda~~~~

            Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"..

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              #7
              Originally posted by Lazarus View Post
              I had two infusions of rituxan right as John entered the hospital and I had immediate and strong improvement again. But the blood test they do to check for PML antibodies showed that I had them and that increases the danger of getting the virus. My previous rituxan infusions helped for about 8months so I have time to figure out what to do.
              So sorry about the news about the antibodies. Still, the PML risk is very, very low. I don't know if you saw this:

              Only registered and activated users can see links., Click Here To Register...
              SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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                #8
                Hi Linda, welcome back home. I also missed your farmer's market reports.

                Sorry to hear about your husband, but glad you can now get back on even though it is at his misfortune.

                What you had to say about the Rituxin is interesting. Somehow I had not realized that you got that much good from it. I assume you are R/R and maybe people
                who are Secondary Progressive would not see the same results. But as with all the drugs I guess that can vary from person to person. I hope you get at least the 8 months that you got before and hopefully more.
                Virginia

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                  #9
                  Hi Linda

                  Abby
                  Stand for something or you will fall for anything

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                    #10
                    Hey Laz... good to know I'm not the only one M.I.A....
                    Brain/Pit tumor=17 brain surgeries 20year csf leak(Feb, 1993) After initial tumor removal!, SPMS , Hydrocephalus from a intraventricular hemorrhage! Panhypopituitary, Diabetes Insipidus, tension pneumatocele, ( air under the skull next to the brain), 2 craniofacial craniotomies, several shunt revisions, 7 bifrontal craniotomies ... Dag "If I started crying I wouldn't stop!

                    Comment


                      #11
                      Hi Connie--
                      Good to "see" you again too. Would that be you in the avatar photo? Nice to know what you look like instead of just seeing a name on a screen!
                      SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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