PML from my understanding is due to a relatively rarely activated virus. MS is an autoimmune disease and Tysabri lowers your immune system in the brain. Tysabri is one of the few drugs to cross the blood/brain barrier which is why it is so effective. I have been told that only fifty percent of all people even have this virus latent in their brain. My neurologist is going to have me take a blood test available in September that will determine if I even have the virus. I will continue to use Tysabri regardless of the results. Tysabi is that good and MS sucks that much. I have reduced infusions to once every seven weeks to limit risk since it is seven weeks before I notice fatigue.
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Ty is the best thing to happen in YOUR MS world, but not for all. You are one of the lucky ones and you have chosen to take the *acceptable* risk factor. For the families of the TY patients who have died or are forever hospitalized with disibility from PML, there is NO acceptable risk.
I pray that TY keeps working it's magic for you with no danger of PML and for all the others, but it is still scary as heck,
Love, Sally
"The best way out is always through". Robert Frost
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Hi lifed! I'm glad that you're having success with Tysabri!
I was on Ty for a little over a year. I was enrolled in the stratify study, and know that I do NOT have the JC virus that causes PML. However I'm no longer on the drug because it wasn't helping me.Comment
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