I. Copied this post from Richard Cohen's Blog... Someone coping with MS responding

[Lazarus]

I did not write this but liked it. Richard Cohen's blog is wonderful. He underwent stem cell procedure in what we hope will be the MS breakthrough of our lives! Others with MS etc. respond to his blogs....


"Coping mechanisms. It’s complicated. Denial works. So does hope, humor, hard work, swearing, risk taking, love, escape, inspiring others, and being inspired, For me, it can sound something like this in my head: “That wasn’t too bad, it could be worse. Better than the time before? Don’t eat that. Sit. Stop. Go ahead, lift it; careful. Higher, longer, slower…watch it. Let them pass you. Smile. Stop, breath, chi. You have to pee, again? Do it now. Take it with you. Be prepared. You can do it. 1,2,3,4… Keep going. Nope, no way in hell. Not today. Not those shoes. Not worth it. Damn it. Where’s a chair? Where’s my stick? That’s worse. That’s better. That’s weaker. That’s weirder. Try harder”. It’s a great day if I can put my pants on without sitting down (be honest), without falling down. It’s exhausting. It’s boring. It’s maddening. Call me crazy, but it’s also quite fascinating – this mind/body relationship. I think of it as the inside me, and the outside me. Backstage and the front of the house. We work together, and it takes all we’ve got to get up, figure it out, put a smile on, and face the day. The show must go on."

[agate]

I know what he means. Very well put.

Just doing ordinary things can be a challenge. I spend time thinking up ways to make little tasks easier.

Each day's show must go on.

[Gabriella7]

Thanks

Thanks Linda for the link up to Richard Cohen's blog. I didn't even know he had started a blog. I read both of his books and just finished "Strong at the Broken Places". I will certainly enjoy keeping up with his progress via his blog.

Blessings,
Gabriella

[SalpalSally]

Go to Richard's blog. He was on the today show today,
I missed it, but he has a video of it on his blog page.
It was great.

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[agate]

That video was very good. He's so right about the way people don't talk to you if you're in a wheelchair. They'll talk to others who are with you as if they're the ones who are able to communicate on your behalf and you're not.

They also will tend to use your wheelchair like their own furniture. They lean on it and don't mind at all if they jostle it. They almost never apologize even though they've shaken me up considerably, not just the chair.

[Lazarus]

That video was very good. He's so right about the way people don't talk to you if you're in a wheelchair. They'll talk to others who are with you as if they're the ones who are able to communicate on your behalf and you're not.

They also will tend to use your wheelchair like their own furniture. They lean on it and don't mind at all if they jostle it. They almost never apologize even though they've shaken me up considerably, not just the chair.

~~~Hi Agate
I managed to write a tiny response on the thread you read and he does read them! I got a brief response! Read the comments which are also interesting. I am the Lazarus who responds.