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Proposed 2013 revisions of the 1996 classification of MS types

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    #16
    Gabriella,

    There is a family here of adult sons (or mostly sons) who lost one parent to MS and one to Alzheimer's disease. They raise money and fund research on the cause of these diseases. And I can't remember their family name.
    ANN
    There comes a time when silence is betrayal.- MLK

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      #17
      Originally posted by stillstANNding View Post
      Gabriella,

      There is a family here of adult sons (or mostly sons) who lost one parent to MS and one to Alzheimer's disease. They raise money and fund research on the cause of these diseases. And I can't remember their family name.
      ANN
      ANN, might that fund-raising effort be this?

      Only registered and activated users can see links., Click Here To Register...
      SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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        #18
        Yes, it is the 7 McCourt brothers. They have educational events in the Boston area.

        I do see on the home page that the do receive money from sponsers and some of those look like drug companies.
        There comes a time when silence is betrayal.- MLK

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          #19
          Thanks Ann for the information about the foundation the McCourt family has established to raise money for research. It appears all these neurological diseases have a familial or environmental link in some families. In my family....my Mother died of Alzheimer's, I have MS, my youngest son was diagnosed with Parkinson's at age 35 and my husband died last year of ALS.

          I have given some thought to starting a foundation to raise funds for all of these diseases as there has got to be a link of some sort. I have Dr. Howard Weiner's book "MS Cure" and appreciate all the research he has done over these many years.

          I hope we see a "cure" in our lifetime.

          Blessings,
          Gabriella
          Progressive/Relapsing MS, Myasthenia Gravis, Spinal Stenosis, Degenerative Disc Disease, Diabetes, Hypertension, Hashimoto's Thyroiditis
          Advocate for ADA, Artist's Community for Change, ADAPT, Universal Living in Place, HopeKeepers, Complementary and Alternative Medicine

          "Life is mostly froth and bubble, two things stand like stone. Kindness in another's trouble, Courage in your own"........Adam Lindsay Gordon

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