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    ? for me

    Hi, I need your knowledge again, New strange thing when laying down in bed I get this tingling with like slight vibrations thru me, with a very cold feeling and it lasts
    for more than a hour and it just stops. Am I going crazy or what? MS dx since '97 I have a Baclofin pump. Thanks
    Jan
    "never let it be too late"

    #2
    I have something similar going on but instead of a cold feeling I get a "world spinning around" feeling, along with the all-over tingling.

    I don't have this much at all any more but back when I was still trying to do too much, I had it often.

    I have no idea what this is about or how to prevent it. I did gradually learn to slow down, and that might be why I hardly ever have it any more.
    SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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      #3
      I had a similar happening, more like Agate's, back when I was still having reg. exacerbations.
      Love, Sally


      "The best way out is always through". Robert Frost






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        #4
        A doctor told me one time that MS effects the brain and the brain controls everything so anything could happen.

        I get some really strange Sx especially when I have 'overdone it' or when I get over heated. I can sit in my chair and experience some of the same things you mention. I sort of vibrate and my fingers get cold I mean so cold they hurt. Usually passes in a 1/2 hour or so and then sometimes the same thing will happen to my leg and/or feet.

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          #5
          Thanks I knew it was another MS thing, I will just have to live with it so I am not crazy (maybe) .
          Hugs
          Jan
          "never let it be too late"

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            #6
            Sorry. Crazy would be the easy way out.

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              #7
              Amen Renee. Some times I wonder if that isn't the road to go.
              Love, Sally


              "The best way out is always through". Robert Frost






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