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I copied this from another MS site...important good MS news

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    I copied this from another MS site...important good MS news

    "Here is the link to the Phase II study.
    Only registered and activated users can see links., Click Here To Register...

    Results of one Phase III trial is coming out on the 24th. They have a second Phase III trial that will post results at the end of the year.

    The good news is that you can buy biotin yourself if you so choose. They treated patients with 100-300 mgr. Improvements were seen between 2-8 months of treatment. All patients were treated but the evaluator was blinded in evaluating increase or reduction in EDDS.

    Very promising. Plus MedDay is making quite a bit of a fuss over the release of this study it is hard to think they have bad results to report, though I guess anything is possible."
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"..

    #2
    I posted this info here at the end of March, and have been taking biotin since, albeit at a much lower dose.

    Here's my post, it's just at the bottom of this page:

    Only registered and activated users can see links., Click Here To Register...
    Please Note that my posts may have been arbitrarily altered by a Moderator and may not reflect my original content.

    Per Mike Weins: "...the admin/mod team doesn't have to provide a forewarning/warning/mention about altering a members post. It doesn't matter if they fix a link, remove a link, fix a typo, or whatever...."

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      #3
      Originally posted by SuzE-Q View Post
      I posted this info here at the end of March, and have been taking biotin since, albeit at a much lower dose.

      Here's my post, it's just at the bottom of this page:

      Only registered and activated users can see links., Click Here To Register...
      As soon as I hit the button to post it I remembered that you had posted about it.

      I will ask my neuro about it this week. I think we will stay on rituxan but I did have a 3 month flare and am afraid that after years on rituxan it may be losing its positive effect. So I am lining up other meds to have in my pipeline if I do switch down the road.
      Linda~~~~

      Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"..

      Comment


        #4
        Let me know what your neuro says, or if you take it, how it goes. Not sure yet if I have the guts to try it at the dose taken in the study...wonder how they came up with such a large dosage as the proposed range to test?

        Still, it's cheap enough (so far), and as long as it's safe, wouldn't hurt to try. I'm just not gutsy enough just yet, I'm taking 3,000 mcg a day and will leave it there until other study results are published.
        Please Note that my posts may have been arbitrarily altered by a Moderator and may not reflect my original content.

        Per Mike Weins: "...the admin/mod team doesn't have to provide a forewarning/warning/mention about altering a members post. It doesn't matter if they fix a link, remove a link, fix a typo, or whatever...."

        Comment

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