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    #46
    So many questions, so little time!! it's so nice to be back in touch with y'all!!

    Thanks once again for your continued support. It really means a lot to my mental, spiritual and emotional well-being! (OMG. Did the ol' Cat go mushy on us???? She MUST be sick....Cat is NEVER mushy. Maybe she's gettin' old...yeah, that's what that was...a senior moment...)

    The mysteries of the modern health care billing system... frankly I've stayed as far away from the billing crap as I can. I have enough stuff in my litter box just to stay alive; I don't need that, too! Here's what little I know:

    We have a private health insurance plan. A good plan. Got it through Tom Cats company, and when he retired, could keep it (but of course pay the premiums ourselves). Which we do, now. Send off $880 a month, $440 each. Tom Cat and I are also on Medicare, parts a,b,c,d. Premiums come out of what otherwise would be cash sent to us.

    Before TC reached actual retirement age --he retired at age 57-- his medical bills were submitted first to the insurance company, and then to us. Fortunately he was quite healthy so most of his medical costs were paid for by the insurance company, and we had only a little we'd have to pay. Now that he is well past "normal" retirement age, bills first go to Medicare, which is considered his primary insurance, then to our insurance company, then to us. Only a few have gotten that far far down the money chain; mostly all his stuff so far has been paid for entirely. (Our private policy does have co-pays for medicines, some tests, but basically for now, most everything for him has been covered.) Mushy alert: Thanks for thinking about and asking about him. That means a lot to both of us. As you know, he has a bunch of ugly health issues going on, too. Getting old ain't for cowards.

    Then there's Cat. I've been on social security disability income, SSDI, for a lot of years. While TC was working, MY medical bills first went to Medicare (which is what SSDI is -- Medicare, the amount you receive based on your working history (how many years worked before becoming disabled, and how much you salary was before being declared disabled). The rest of the charges was then sent to the company's plan, then to us. SSDI (medicare) was my primary insurer, then the private insurance, then us. Again, we paid very little for anything, a few co pays, a few random things over the years. For the first 4 years after diagnosis there were a lot of medical costs: a few major flares threw me into the hospital, then I developed pulmonary embolism, had other issues. Then everything, including the MS settled down. For years, there, we had almost no issues: see a doctor once a year for an annual physical, flu shots, other usual stuff.

    Fast forward to the present. One that we're both past 65, my SSDI has "converted" to straight Medicare, and Medicare has become our primary insurance, then our private plan, then us.

    So now I'm in the hospital. If I'd stayed less than 3 days, bills could have gone several routes: if the doctor coded my stay as "for observation", Medicare won't pay anything, so the bill would go directly to private insurance (pi), then to us. A different code, "treatment", sends the bill first to Medicare, then pi, then us. Another code sends the bill directly to the patient.

    I stayed five days. Medicare will be billed for the entire stay, and will pay for it. But there are restrictions. Once I was out of surgery, wounds recovering, no fever, no other underlying health issues, everything stable --no fever, blood pressure stable, blood work looking good, etc. Medicare essentially said, "OK, she's stable, all you're doing now is maintaining her: that can be done elsewhere".

    In other words, a nursing home, as expensive as these are, is cheaper than staying in the hospital. Going home and having visiting nurses come in, and relying on a patient's family/friends to provide support, is cheaper yet. Medicare pays for visiting nurses, home health aides, so long as the patient "shows signs of improvement". So it pays to be nice to, even befriend, visiting nurses: they have to d o an assessment every 6 weeks to Medicare, so it is up to them to decide just how much you're improving, whether to extend their services for another 6 weeks,etc.

    I'm coded (and this probably the exact wording of it) as " stable but medically complex". Meaning, needs lots of support to stay that way, and improve. You think???? Now, if I HAD lots of support, I could have gone home: visiting nurses could come in 6 days a week during "regular hours", for emergencies on Sundays. But of course, they would be at my bedside 24/7. So except for the hour a day they would be there, Tom Cat would be responsible for the rest: monitoring the antibiotics iv; the wound vac (which, if it breaks down, which it does often, breaks at night or on Sunday afternoon), the colostomy bag (of poop; changing bags, changing the whole appliance), the urinary catheter. Feed me. Dress me. Do my laundry. Clean up my messes when the catheter leaks, or the colostomy bag leaks. General housekeeping. We have small, elderly family nearby. No kids, no younger relatives who could help. So home support is clearly not in place.

    So I'm in this nursing home where all that maintenance support is provided. Medicare will pay entirely for this for 21 days. Then they'll start splitting costs with my private insurance, then us. I and my home situation will be assessed every 10 days after that. If I'm still medically complex and the home situation stays the same, Medicare and private insurance will pay. Once the complexity starts to diminish -- the antibiotic iv ends, and/or the wound vac removed, I will be assessed again. And again, assuming I continue to improve, the situation assessed again.

    So I'll be here awhile. Ideal situation: antibiotic iv ends (in 6 weeks, how long it's supposed to be attached) and I go on oral antibiotics. The wound either heals entirely, or at least the wound vac is disconnected,and daily dressings are tended by TC. My legs regain at least enough strength to be able to transfer from bed to wheelchair, at which time I can tend to my urinary catheter and colostomy by myself, dress myself, get back some description of "normal" in my life. If I reach that point, then I can go home, get visiting nurses, aides, physical therapists to come in. Tom Cat jumps up and helps ( but is not fully responsible). I'm not there yet, on many levels. So I'm here for 6 weeks at a minimum, longer as necessary..

    Isn't insomnia a wonderful thing. Fell dead asleep at 8 pm, woke at 1:30 am, still awake. Haven't seen anyone in my room. But then, no alarms have gone out, iv is quietly hissing, wound vac quietly humming, catheter, and colostomy bags doing their jobs, just me, wide awake....boring you.

    Comment


      #47
      Well, I'd say you MUST have a fever (that would get you back into the hospital) because you went all mushy on us.

      But here you then go all extremely articulate and detailed in the middle of the night about your insurance situation to contradict any suggestion of you not being in your right mind or anything! So, I think you're stuck there! It's a pity some of these interventions weren't introduced earlier though...but no point looking backwards now, only forward, to healing and recovery...

      Ok. So, it sounds like you're probably in good hands there, it might even be better than the hospital in terms of comfort, which could aid in expediting your recuperation. Home isn't an option now because of the level of care you're needing, being attached to a long-term IV and all..

      So, be a good patient! Just an idea, but how about doing some writing? Besides personal tales, you could write some meaningful pieces that could really help people navigate both the medical AND insurance realms! You have a tremendous amount of knowledge that you can tap into that could be of great benefit to others; I'm sure pamphlets could be sponsored by and made available on behalf of social workers or disability groups to others trying to navigate their way through the system. I know you used to work in the field and thus, have the contacts and background to give your proposal some credibility...might interest you to keep your mind active while you recuperate? You have a wealth of wisdom there, Cat. It could sure help those new to the system...

      Just MY late night ideas!

      Try to get some sleep! Hope those abx are kicking in and beginning to lower your pathogen load! If a nurse is just going to sit there monitoring you...maybe s/he could massage and stretch your legs, keep the bloodflow and flexibility at their best levels?

      Does your Kindle support Skyping, so that you and TC can have facetime, plus you can see your cats regularly too?
      Please Note that my posts may have been arbitrarily altered by a Moderator and may not reflect my original content.

      Per Mike Weins: "...the admin/mod team doesn't have to provide a forewarning/warning/mention about altering a members post. It doesn't matter if they fix a link, remove a link, fix a typo, or whatever...."

      Comment


        #48
        :) Hi Cat, the information you posted is very helpful. I just got a letter from Care Plus that they will not be renewing my policy. I called Medicare for info and it was before the 15th so I was not able to do anything until the window for registering opened on the 15th. I want to keep my primary doctor.

        I think I am going to call my doctor's office and see what policies they are accepting so I am sure he will be covered. Then I will call Medicare again. It is annoying to me that you cannot sign up one time for the best policy for yourself and keep it for life. My memory is not wonderful and things like this add stress for me.

        My son Andy is here doing my yard and he is going to come tonight to be here when the trick or treaters come. With 3 gangs in the neighborhood he does not want me being alone to do it. We used to get over 200 on Halloween, but last year I only had about 50. Many churches and malls have events and parents take the kids there.

        I am glad you are doing okay Cat. Keep up the good work and I am praying your recovery is fast. Jeanie :)
        Last edited by Jeanie Z; 10-31-2015, 08:43 AM. Reason: typo

        Comment


          #49
          Hi Cat,

          Well, sorry you didn't get a good nights sleep last night, but guess since you are kind of stuck where you are the days and nights don't mean quite as much as if you were home and able to be up.

          Very interesting stuff about the insurance and how Medicare works, at least in your case. I assume it is about the same for the rest of us, except that most of us do not have private insurance. I have a Medicare Supplement policy which would be considered the same, I guess. I pay separately for my drugs through Medicare Part D. I guess all this works about the same way. You laid it out very nicely for us, so that it is understandable. When you are feeling a bit more like it SuzeQ might have a good idea about you doing some writing and possibly having everything you have learned put into some kind of pamphlet that can be given out to those who need to know.

          You are right it does pay to be nice to the nurses - for a number of different reasons. When you are home and that is your only medical care you really have to depend on them to do as much as they know how to do to help you.

          I hope the temperature is comfortable for you in your room. I assume you have a private room and can make as much noise as you want, though I don't think you are able to make much yet. I guess you are laying on your side and being turned periodically. If so, I hope all of this heals as fast as is possible for something like this and you can get the pump and other stuff removed or at least you can take care of the other things on your own. However, I would not want them or you to rush things or you might be back in the same situation you are in - Heaven Forbid!

          I hope TC is holding up with his medical problems. I know he must be feeling relief that you are at least this far along, but I know it is lonely for him. We think of you both all the time.
          Virginia

          Comment


            #50
            Yeah for internet access! With that you also have more news sources to access than the tv.

            I do know you are medically fragile, but it's hard to associate that term with you.

            Both you & TC need medical and housekeeping support when you return.

            Mly internet Time's finished. Goot luck.

            Comment


              #51
              Cat,
              I experienced similar when I was in the hospital last week. No "fever" and white count "normal". I personally have a fever if my temp is above 98 as my norm is 96.4. My white count is normally 3.0-3.5 with normal 4.1-10. So, despite the fact that my temp was 99.2 and white count 6.3, I was discharged but had been admitted for treatment and not observation so Medicare will cover all of it.

              Jeanie,
              If you call an insurance company or go on their web site they will tell you which docs in your area are covered. United Health traditionally does not cover specialists in MS so my Neurologist was not covered if I wanted to switch to them for lower premiums.

              Comment


                #52
                Things are so complicated that everyone here could use a well-trained and experienced personal assistant just to keep track of our appointments and procedures and meds and especially whether there is coverage of whatever we're having in the way of medical (or dental) care.

                Every time I present myself for a medical appointment I'm asked which is my primary and which is my secondary insurance. This seems to change in mysterious ways, and so I usually don't even know. The problem is that Medicare is the primary and Medicaid is (always) secondary to that BUT the insurance people (United Health Care in my case) who came into the picture a while back, a few years before Obamacare, decided that they should be primary, followed by Medicare, followed by Medicaid. Sometimes.

                Um, I think.
                SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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