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PT Not Lookink Good for Me!

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    #31
    I'm so sorry.

    I'm hoping there are solutions, I've known a few people who are wheelchair dependent and have homecare come 3x a day, to get them in and out of bed, then meal prep or bathing, etc. Homecare is always preferable (and cheaper).

    Please know I'm thinking of you and how distressing this must be. Sending lots of chocolate too.
    Please Note that my posts may have been arbitrarily altered by a Moderator and may not reflect my original content.

    Per Mike Weins: "...the admin/mod team doesn't have to provide a forewarning/warning/mention about altering a members post. It doesn't matter if they fix a link, remove a link, fix a typo, or whatever...."

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      #32
      SuzE-Q, I've known a few people like that too. I recall that helpers came in 3 shifts of 8 hours each, and the person staying overnight often lived there but not always.

      One man with MS lived at home with his parents, and they did the night shift but helpers came in the daytime. He had a Hoyer lift for getting him in and out of bed. The parents grew older and died, and at that point he probably got a third helper--I can't recall.
      SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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        #33
        Yes, these people all had hoyer lifts too.

        If they were able to get around on their own in the wheelchair, they didn't stay. If the person couldn't and was alone, they stayed, or had another service come just to remain with the person, but no health services, those people still came at regular times to do the health care functions.
        Please Note that my posts may have been arbitrarily altered by a Moderator and may not reflect my original content.

        Per Mike Weins: "...the admin/mod team doesn't have to provide a forewarning/warning/mention about altering a members post. It doesn't matter if they fix a link, remove a link, fix a typo, or whatever...."

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          #34
          ((((((Sally)))))) ~

          Where do you want to be? Would you rather be in your own home? Or are you content to be where you are now?

          If you can have the care you need in your home, would that be your preference?

          Have you (or your DD) explored home care options?

          Here's a link to the Ohio Area Agencies on Aging, which might provide you with support in determining whether you would be able to remain safely at home:

          Only registered and activated users can see links., Click Here To Register...

          A representative from this agency would have access to all of the resources you'd need, as well as financial information.

          If you are paying for the nursing home, then you might discover that home care would be less expensive. That was the case for my 88 year old Aunt/Godmother, who had end stage cancer. She hired two caregivers for 12 hour shifts. It cost less than the nursing homes in her area.

          It's absolutely possible to live at home regardless of the level of disability or dependence. Jon is a good example that this is true, and even if we couldn't care for him, he has two programs, which pay for his care, so others could step in and take over. Jon's nurse has had many patients at home on ventilators and TPN (IV nutrition). So, the level of care needed shouldn't be a deterrent to living at home.

          Just ponder this for a little while, and then decide where you want to be. If home is your choice, then pursue your options. You may well be surprised what's available.

          Most of all this is your decision. Along with all of your friends here, I support your choice and want the very best for you.

          Healing prayers continuing ~

          Love & Light,

          Rose
          Mom to Jon, 49, & Michael, 32, born with an undiagnosed progressive neuromuscular disease. Angel Michael received his wings in 2003. Angel Jon received his wings in 2019. In 2020, Jim, their Dad, joined them.

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            #35
            Grateful that you at least have Internet and can stay in touch with us and the outside world.

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              #36
              ((((((Guys n Gals)))))) I will never give up hope n faith.

              Did the 24/7 help at home and had to go to hospital when too weak
              to get up on my own with help. I didn't have a hoyer at home, then.
              DD has not sold home yet n I still pray for the possibility of going home.
              Don't know what I'd do without you all.l
              Love, Sally


              "The best way out is always through". Robert Frost






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                #37
                :) Sally did you find out if the nursing home has an Ombudsman? Or Social Worker? I am praying that someone can help you get what you need to go home. Love, Jeanie :)

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