Couple donates brain of daughter who died of PML/MS complications to NIH

[agate]

This story, which was aired on WLUC, a TV station in upper Michigan, might illustrate the importance of donating an MS brain to science. This couple, whose daughter died of PML or complications due to MS, donated her brain to the NIH and were sent a letter of appreciation. The story headline is misleading as the brain hasn't led to any medical breakthrough that I know of, or at least it isn't reported in the story, but it might lead to a medical breakthrough.

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In the past people have expressed curiosity about the people who got PML while taking Tysabri. There's hardly any information available but this is one of the rare instances--a sad story though.

[Frog42]

Impressive. How very hard for them and what a great way to honor their daughter.

[agate]

The mom seems to be writing a book, quite possibly about Tysabri (judging from the title). I don't think anyone would blame her for being angry.

[SalpalSally]

How sad and how great of Mom.

[Lazarus]

Agate,
What makes you think the mom is angry?

[Frog42]

It seemed to me she thought Tysabri is what killed her daughter. I think that could be where the "angry" aspect comes in.

[agate]

That's what I got from the article too, Vicky. The title of the book the mom is writing: The Legal Lethal Drug--about her daughter's experience sounds as if she regards Tysabri as far more dangerous than many people do, because of the risk of PML.