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Crowd-funding as a way of getting needed mobility equipment or other adaptations?

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    Crowd-funding as a way of getting needed mobility equipment or other adaptations?

    A while back someone on another board needed a new van, or maybe it was a costly adaptation for an existing van, and set up a crowd-funding Website for that purpose. The last I heard, she'd had quite a few donations though I don't know if she actually got the van that way. My guess is that she did.

    I've never tried this. I'm interested in opinions about it. I'm of two minds myself.

    I'm not going to be doing this in the near future and I hope not at all but it's an interesting concept that seems to be working.

    It might even be a way to get some funding for BrainTalk.

    I'm talking about sites like GoFundMe and Kickstarter--I believe there are quite a few others.
    SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

    #2
    I don 't know what I'd get funding
    Other than a cure????
    Last edited by SalpalSally; 10-28-2016, 06:09 AM.
    Love, Sally


    "The best way out is always through". Robert Frost






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      #3
      I've heard of one person who used crowd-funding to finance a trip to Russia for HSCT (hematopoietic stem cell transplantation).
      SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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        #4
        I was thinking of crowd source funding for that NYU Tisch center stem cell research phase 2. But then agate found articles that they got their funding.

        Ann Romney has been active in funding MS in Boston

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          #5
          Originally posted by BBS1951 View Post
          I was thinking of crowd source funding for that NYU Tisch center stem cell research phase 2. But then agate found articles that they got their funding.

          ...
          I doubt that the NYU Tisch Center is all set for funds. I believe they're starting to launch a Phase 2 trial and are looking for funding for another phase of the trial.

          There's some information about funding towards the end of this interview, which took place some months ago:

          Only registered and activated users can see links., Click Here To Register...
          SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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            #6
            More on crowd-funding--with some words of caution:

            Only registered and activated users can see links., Click Here To Register...
            SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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