NMSS

[agate]

The MSAA can be a useful resource too:

Only registered and activated users can see links., Click Here To Register...

[Lazarus]

Thanks agate. I forgot to put up the link. What they do is more like what I had THOUGHT NMSS did, but doesn't seem to do.

When I was diagnosed the Society had support groups here in the western part of my state
. Several years later the Society abruptly cancelled them all by combining my area into a general category including 3 states! We would have to travel many miles to get to programs they run.

The Society runs many programs nearer to Boston and surrounding areas but we are forgotten and we have not forgotten. There is not even real effort to inform MSers out here about services we could use. I could go on and on. Raw nerve. I will stop ranting.

[Sunshine]

How self insulated and callous of them.

I wonder if they get big donations from the pharmas and if so, how much. Also wonder what their criteria are for donating to research.

As a young woman, I was involved in lobbying legislature on my own time and own money, for changes in a law that impacted children negatively. In my kids school, I also worked hard to correct health hazards at the school and set up after school programs.

So, it's natural to pursue these issues. With retirement, I can imagine doing something similar about MS, or perhaps a totally diff issue near and dear to my heart and expertise.

Or not! Could end up just watching waves, cooking and reading. ....

[jendie]

I got more help from MSAA than NMSS. The only help I ever got from NMSS was coloring books that helped my kids understand MS. My older sons were 5 and 7 when I was finally dx.