What symptoms contribute most to PwMS perception of health?

[stillstANNding]

Agate, I think that is because we only attend to the one thing. An MS Specialist put it this way: (paraphrasing) It is not that you don't remember but that your brain doesn't record the information.

Like in the thread where we are talking about pills. She said it is not that we "forgot" whether we took them or not but that our brain didn't record it so it's impossible to remember.

ANN

[agate]

I think you're right.

If someone tells me something that I know is going to be very important, I sometimes get so wrapped up in thinking of how important it is that I don't get what the person said. I wrack my brain afterwards and usually have to ask for a repeat or find some other way of getting the information I didn't receive.

I might hang up the phone after this kind of conversation and wonder, "Now what did that person say?" It's just not there. I didn't forget it. I never got it in the first place.

[Catdancer]

I had difficulty in crowds because my hearing was so bad. And watching tv. I couldn't distinguish voices from other noises, especially music, so missed most of the dialogue. Once just got hearing aids that was much better. My neurologist swears the hearing loss is not related to MS. Several friends....who do not have MS ...agree with me that people talk faster these days, particularly young people....I'm forever telling people to slow down, repeat themselves...so I wonder if that is more age related?

I've never experienced much pain with MS, but was physically disabled early on, and when I lost bladder control I knew I was moderately disabled. Now I suppose it's worse than that.

[Virginia]

I thought of this thread this morning while laying in bed unable to sleep. The bottom of my feet were burning so bad, I just kept turning over and over thinking maybe I could get more comfortable, but was unable to. I have had the creepy/crawly stuff for years and years, but the bad burning has started lately and I can't get away from it. I don't know anyway to get it to stop.

[stillstANNding]

Virgina, I have been treated for that in the past. One way was a short course of steroids or a day or two of IV steroids. The other way was taking nortriptyline or neurontin (can't remember which) for a number of months.

I am sorry this symptom is keeping you awake.

ANN

[Lazarus]

There is also something that happens in the car. I "feel" like we are going way to fast. Scary. I say, "Hon, I know this is probably wrong but I feel like we are really going too fast."

He says he will try and tells me our exact mph. It doesn't help.

It's a once in a while thing. Anybody else have it?
ANN

Yes! And I always think we are too close to the car in front of us. It is so frightening to ride with my husband driving even though I know it is perception. My neurologist told me I had a faulty depth perception and I am sure the speed sensation is a similar MS related problem.

My husband keeps telling me that I am wrong, that we are not close to the car in front. But that does not help me and I am still scared to death. Same thing with speed. It is an unkindness to simply tell someone their perceptions are incorrect. I still have the panic. It is a problem that needs accommodation.

Oops. Another nerve touched by this thread!

[stillstANNding]

Twice today I thought I had lost the "thanks" button. Turns out that both times I was agreeing w myself. MS or no?
ANN

[SuzE-Q]

Twice today I thought I had lost the "thanks" button. Turns out that both times I was agreeing w myself. MS or no?
ANN

No, ANN, you just think that "stillstANNding" person who comments is really quite clever and knows what she's talking about!

[Sunshine]

Yes! And I always think we are too close to the car in front of us. It is so frightening to ride with my husband driving even though I know it is perception. My neurologist told me I had a faulty depth perception and I am sure the speed sensation is a similar MS related problem.

My husband keeps telling me that I am wrong, that we are not close to the car in front. But that does not help me and I am still scared to death. Same thing with speed. It is an unkindness to simply tell someone their perceptions are incorrect. I still have the panic. It is a problem that needs accommodation.

Oops. Another nerve touched by this thread!

Unless the two husbands are gaslighting you :)

[Sunshine]

I thought of this thread this morning while laying in bed unable to sleep. The bottom of my feet were burning so bad, I just kept turning over and over thinking maybe I could get more comfortable, but was unable to. I have had the creepy/crawly stuff for years and years, but the bad burning has started lately and I can't get away from it. I don't know anyway to get it to stop.

Medical marijuana. Also, try wearing snug but not tight sox, the sensation of snugness outcompetes the faulty signal of burning through the pain gateway

[Virginia]

Have tried the sox BBS, but thanks for suggesting them again. The medical marijuana - I can't get.

[agate]

I've heard that some OTC remedies like Tylenol can relieve burning feet for some people. I'm guessing you tried those and they didn't work. You're not diabetic?

[Virginia]

Not diabetic Agate. This is strictly MS symptoms. Tylenol I have tried to no avail. I have also rubbed some cream on my feet that was supposed to help, but did not. Sometime it is worse with the weather - I have always felt like maybe the weather pressure going up and down, but then I really don't know.

[Sunshine]

So, MMJ not legal in NC?

[Virginia]

BBS - Nope not legal!