Ocrevous scheduled Yay!!!

[ssusan]

Almost 6 months have gone by.
Scheduled for 1/23. Can’t wait!!!
Whatever benefit I got from first infusions didn’t last more than a few weeks.
Has anyone done 2nd one at six months?
How long did it take, how did full dose feel?

[Sunshine]

Good luck and keep us posted! Hoping this coming infusion does the trick

[agate]

I seem to recall that Peg was about to have the second infusion but there was a possible glitch in the arrangement. Not sure how that turned out. Peg?

[Pegakafarmgirl]

Hi,, its in the works,, I have been adment about being done at my hospital, and they want it done in Des Moines,, so the people here at my hospital told them it will be done here,,,, its time for it,,.... I think I am going to be looking for another neuro, if this makes me go to DM,,
frustrating

[petpuppy]

I have not heard about this. My neurologist has a side office where infusionsbare performed
But I have not needed it yet. Anyway I assumed it was like liquid Prednisone

[Lazarus]

I have not heard about this. My neurologist has a side office where infusionsbare performed
But I have not needed it yet. Anyway I assumed it was like liquid Prednisone

Ocrevus/rituxan and other chemo meds used for ms are usually give at an infusion center that is fully staffed with experienced nurses in a place where doctors are around to get immediate attention. I have had prednisone infused in my home by a visiting nurse. I have only had a serious reaction once in the 17 years I have been doing chemo for MS but I was immediately surrounded by many professionals.

The standard dosing for Ocrevus/rituxan is to get 2 infusions every 6 months. The two infusions are separated by two weeks. After them you are set for 6 months.

[agate]

Linda, I don't know about Rituxan but for Ocrevus isn't it 2 infusions 2 weeks apart at first, then 1 infusion every 6 months after that? I got this from the Ocrevus Webpage:

Administer OCREVUS under the close supervision of an experienced healthcare professional with access to appropriate medical support to manage severe reactions such as serious infusion reactions.

• Initial dose: 300 mg intravenous infusion, followed two weeks later by a second 300 mg intravenous infusion.
• Subsequent doses: single 600 mg intravenous infusion every 6 months.
• Observe the patient for at least one hour after the completion of the infusion.

[Ikoiko]

My Rituxan dosing has switched to one infusion every six months. It used to be a set of two infusions every six months.

[Sunshine]

My Rituxan dosing has switched to one infusion every six months.

Hey Ikoiko! How are you doing on Rituxan?

[Ikoiko]

I would say that I see no improvement on Rituxan, but my MRIs are stable. I have been on it about two years. It beats having to have more frequent treatments, such as Avonex and Tysabri. Oh, and I did get shingles a year ago, which I think was due to being immunosuppressed on Rituxan. I am terrified of getting it again.

[agate]

I would say that I see no improvement on Rituxan, but my MRIs are stable. I have been on it about two years. It beats having to have more frequent treatments, such as Avonex and Tysabri. Oh, and I did get shingles a year ago, which I think was due to being immunosuppressed on Rituxan. I am terrified of getting it again.

The stable MRIs are probably taken as a sign that the Rituxan is working even if you're not feeling any better.

When I was on Copaxone, I'd had a baseline MRI and then I had a later one to see how I was doing on the Copaxone. When no new lesions showed up, the neuro said that that indicated that the Copaxone was working. I hadn't noticed any improvement in my symptoms or in how I felt in general.

[Ikoiko]

The great thing about Rituxan, besides its efficacy, is no side effects.

[ssusan]

Peg, I had to get a second neurologist who Has prívleges at hospitals in my region

[ssusan]

Peg, I had to find a neurologist in our region of Massachusetts who has privileges at local hospitals. It took calling a lot of offices to find somebody. It is very worth it, so I don’t have to travel an hour and a half.

[Sunshine]

I would say that I see no improvement on Rituxan, but my MRIs are stable. I have been on it about two years. It beats having to have more frequent treatments, such as Avonex and Tysabri. Oh, and I did get shingles a year ago, which I think was due to being immunosuppressed on Rituxan. I am terrified of getting it again.

There is a new more effective vaccine called Shingrix. The CDC rec it even if you had the older one already.