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Thank you for pumping up the Stiff Person Syndrome sub forum

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    #1

    Thank you for pumping up the Stiff Person Syndrome sub forum

    The traffic is increasing. There is even a new member, kickingIt. She even posted question for Rose and funnylegs.

    Thanks to all. I truly hope to attract more people with SPS. It’s such peculiar symptoms that it’s hard for friends to understand it.
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    #2
    That must make it much more difficult, not to have a support network of people going throuhh the same thing.

    I admire your initiative!
    Please Note that my posts may have been arbitrarily altered by a Moderator and may not reflect my original content.

    Per Mike Weins: "...the admin/mod team doesn't have to provide a forewarning/warning/mention about altering a members post. It doesn't matter if they fix a link, remove a link, fix a typo, or whatever...."

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      #3
      Sunshine, I hope you do get some traffic that can truly relate to what you are going through. Although, having known you for quite awhile I feel that, to the extent we can that we here on this forum understand. I have read some about SPS since you were diagnosed. Until then I had never heard of it. I can only imagine from MS what is going on, but then you have that to contend with in addition to the SPS. The symptoms seem to me to be somewhat alike.
      Virginia

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        #4
        ((((((Sunshine)))))) ~

        I love your new name!

        You have done a stupendous job in creating the SPS forum, and I truly hope that people, who have SPS or love someone, who has SPS, will find this forum and feel welcomed, understood and loved. We all know how important support and compassion are on our journeys. While we aren't numbering in the thousands here, those of us who are here, offer that kind of support and compassion.

        It doesn't matter how common or rare the disease or condition is, we all need people, who "get it."

        You have done a wonderful thing creating this place for people, who need us to travel beside them on their journeys.

        If you visit SPS websites with articles that have a comment section, you might consider posting in the comment section and give the link to this forum. Just a thought about advertising to get more members. Are you on social media? You could create an SPS Twitter account, or Instagram account and possibly attract more members.

        I love that you are being proactive. And you don't give up.

        You deserve a round of !!!

        Love & Light,



        Rose
        Mom to Jon, 49, & Michael, 32, born with an undiagnosed progressive neuromuscular disease. Angel Michael received his wings in 2003. Angel Jon received his wings in 2019. In 2020, Jim, their Dad, joined them.

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          #5
          Thanks! I don’t know much about Instagram or Twitter. Actually know zero about them.

          Didn’t want to link to FB due to lack of anonymity .

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