Ccsvi

[Virginia]

Anyone hear anything more about this lately? Our board has been so slow I don't think we are staying up on some of the current research. I just wonder what is going on. The last thing I remember is one of the hospitals stopped doing it because they were not having the results they had heard about, and they were planning to go to another hospital that supposedly was getting good results and see how they were performing the procedure. I can't remember the hospitals. Someone told me today that they had heard of a man who feels he has been helped by this procedure. I don't know more than that, but will probably be in a position to find out more this week-end.

[Frog42]

I haven't been researching this but just now looked it up. There are links on the national MS society website that appear to be up to date: Only registered and activated users can see links., Click Here To Register...

[stillstANNding]

Our very own Lady had it unless I was hallucinating!
ANN

[Virginia]

I think you might be right about that. I have not heard anything more.

[MS Bites]

i follow it religiously on TIMS. Only registered and activated users can see links., Click Here To Register...

[Virginia]

Thanks MS Bites, I do not have time tonight, but will few some of the before and after tomorrow.

[Lady]

Ann is correct. She wins the long-term memory contest.

Virginia dear, yes. little ole me had it done almost a year ago and I am doing great. There is so much going on now with clinical trials, discussions, facebook, and many forums that discuss only CCSVI.

Your head will be spinning, like mine does, when reading these last three years of all the CCSVI news. It boggles the mind.

[stillstANNding]

I have watched some great youtubes from people who think it is miraculous. I haven't seen or heard from people that it did nothing for though their must be some out there. I am waiting to see if it helps the many.

Did it help you, Lady?
ANN

[Lady]

Yes Ann, the CCSVI procedure did help me a lot. The real statistics are 1/3, 1/3, 1/3.

It doesn't matter if you are RRMS or PPMS, or in between. Some see dramatic improvement right away. Some see results improve but more slowly, and the rest of the people ( 1/3 ) don't see any improvements at all.

Some have to be treated more than once. You need a good doctor, one who finds all the defects you were born with in the veins and treats the condition of blockages in the veins as the disease, which it is.

MS improvements are the bonus to getting these veins unblocked. It is not a cure, but some people are three years now and don't feel like they have MS at all. I have a few good improvements. More energy is a miracle, better balance too, and more. A few nasty symptoms like burning feet/legs are still there.:ambivalence: It's not a cure.

We have to wait for the double-blind Clinical trials to be completed. That will be the proof people want to see, otherwise you pay for the procedure and you are a pioneer. It's cheaper to be a volunteer.


.

[stillstANNding]

Lady,

Thank you for this information. I am glad that it helped/is helping you! I didn't know anything about the 1/3 1/3 1/3. Somehow it makes sense. Thanks for being one of the first and letting us know your experience.

Best to you,
ANN

[Virginia]

Thanks so much for posting this Lady. I did not realize that much more was being done with CCSVI. I don't know how far away I would have to go or how long the procedure would take. I need to find out all that I can before I get any worse. Traveling is becoming a problem for me.

Thanks,
Virginia

[boston/maine]

I had CCSVI proceedure

I had this done on 6/02/11 I have noticed only slight changes vibrations in legs, fewer headaches sleeping better/ It has only been 4 months, hope for improvements to come.
Jan

"never let it be too late"

[stillstANNding]

I'm happy that you had some progress, Jan. I hope it continues.

BTW, we have an electrician around here and every time I see their trucks, I think of you. "ReJan" is plastered on the side, ha! And I think, "What about Jan?"

Love & Chocolate,
ANN

[Lady]

Jan, that's great. I saw improvements slowly but surely. In fact, some family and friends noticed them and I didn't. They would see no naps at home, more energy, and I could last longer while out shopping or visiting. I am 10 months out since the CCSVI procedure and holding. So far so good. Still have some good days and bad days if I overdo things, like clean the whole house..twice in one day. Lol

I pray you see so many more as time goes on. Your brain and body are draining now correctly, so iron deposits around any lesions will take time to regulate itself. Good luck Jan!

[Jeanie Z]

L) My friend Frannie sent me this link to a 2006 article about ccsvi. It has an explanatory diagram. Jeanie :):o