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(NMSS update) Now 159 Tysabri-related PML cases

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    (NMSS update) Now 159 Tysabri-related PML cases

    The National MS Society updated its information about Tysabri-related PML cases in MS patients. As of September 21, there were 159 PML cases:

    Only registered and activated users can see links., Click Here To Register...

    The thread from September 6 recorded 157 cases.

    Only registered and activated users can see links., Click Here To Register...
    SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

    #2
    I wonder what the true ratio is now? Are there more or less TY users today than say, last year? Are the TY users deminishing or increasing. I know what the business pages report, but I wonder how true that is.

    If there are less users and yet more PML cases, that changes the ratio!!!
    Love, Sally


    "The best way out is always through". Robert Frost






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      #3
      This won't answer your question, Sally, but it may provide some other information. I just ran across it:
      Only registered and activated users can see links., Click Here To Register...
      SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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        #4
        Thanks Joan!!:)
        Love, Sally


        "The best way out is always through". Robert Frost






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          #5
          Additions of PML

          I read a report here somewhere that would make the number increase by 9 or 10 just in the past month. I'll have to call my friend who has been on it since it was back on the market and see if her doctor has offered her the JC virus testing.

          Gabriella
          Progressive/Relapsing MS, Myasthenia Gravis, Spinal Stenosis, Degenerative Disc Disease, Diabetes, Hypertension, Hashimoto's Thyroiditis
          Advocate for ADA, Artist's Community for Change, ADAPT, Universal Living in Place, HopeKeepers, Complementary and Alternative Medicine

          "Life is mostly froth and bubble, two things stand like stone. Kindness in another's trouble, Courage in your own"........Adam Lindsay Gordon

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