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1 Year and Still Walking

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    #16
    50,000 IU taken once a week. My level was extremely low, needless to say. I am glad she had it checked.
    DAR
    R/R 1993
    Draw close to God and he will draw close to you. - James 4:8

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      #17
      Wow, Dar, you were low. Best health to you.
      ANN
      There comes a time when silence is betrayal.- MLK

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        #18
        Sounds as if you have a good PA who is addressing your problems. I think it's very important to have a medical professional who takes time with you and actually listens to what you're saying.

        Is physical therapy part of your routine, Dar?
        SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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          #19
          No I don't have the energy but if that ever changes I would love to do so. I exercised often in the good old days and I know how much it helps.
          DAR
          R/R 1993
          Draw close to God and he will draw close to you. - James 4:8

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            #20
            I've heard of physical therapists coming to homes. Would that be a possibility? A PT who could put you through some exercises, maybe gradually build up to more strenuous ones?
            SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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              #21
              Well my PA arranged for the phelophist (spl?) to come to my home to draw my blood, so I could talk to her about a physical therapist and whether our insurance would allow it. Thanks for the suggestion Agate.

              My blood pressure is also very high, exercise would certainly help me with that.

              Curt just finished up pt for his ankles and it was very helpful. The therapist told him that my neuro shared information about how to help pwms. So they are qualified to help me.

              My neuro is so liked and well-known. I am planning to tell him that he is held in high esteem by many in the medical field.

              Infact it might be better to ask him about pt. Maybe he could get approval for home pt. from our insurance. I will ask him on Dec. 4th.
              DAR
              R/R 1993
              Draw close to God and he will draw close to you. - James 4:8

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                #22
                Dar, I've had at least 6 "courses" of PT over the years, and all were completely covered. I have United Health Care Medicare Complete but also have the Oregon Basic health plan, which seems to be Medicaid Light, or what Medicare "QMB Beneficiaries" get instead of the more comprehensive form of Medicaid.

                I did have to go to the PT place--it was usually twice a week for an hour each time, but I know that some people get PT at home.

                The primary care doctor often was the doctor prescribing the PT but a couple of times the neuro did the prescribing.
                Last edited by agate; 11-20-2018, 11:39 AM.
                SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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                  #23
                  My mom is getting PT at home now. She also has had labs drawn at home and even an abdominal ultrasound at home.

                  It’s worth a shot for anyone here who could use it.

                  ANN
                  There comes a time when silence is betrayal.- MLK

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                    #24
                    When my older brother was at home he was getting PT. He is in rehab right now, but I feel sure when he goes home he will again have PT at least a couple of times a week and possibly three times.
                    Virginia

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                      #25
                      Good to know, thanks folks l will give it a try.
                      DAR
                      R/R 1993
                      Draw close to God and he will draw close to you. - James 4:8

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