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Autoimmune Disorders/Immunosuppresion and COVID Vaccines

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    #16
    Linda

    Yes, the -mab at the end of rituxamab stands for “monoclonal antibody.”

    ANN
    There comes a time when silence is betrayal.- MLK

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      #17
      I just heard Fauci talking and he said that people who received monoclonal antibodies should maybe weight for 3 months before getting the vaccine. Isn’t that what rituxan is? Monoclonal antibodies?
      I was just watching the PBS evening news, where Dr. Fauci was being interviewed. Replying to a question about why the President was delaying getting the COVID-19 vaccine, Dr. Fauci said that that was probably because when the President had the virus he received a monoclonal antibody.

      He went on to say that anyone getting passive infusions of a monoclonal antibody should wait 90 days before getting the COVID-19 vaccine, and he explained why.

      I apologize for not having time just now to find a link to his exact words.
      SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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        #18
        Originally posted by Lazarus View Post
        I just heard Fauci talking and he said that people who received monoclonal antibodies should maybe weight for 3 months before getting the vaccine. Isn’t that what rituxan is? Monoclonal antibodies?
        I'm no expert, but I believe Dr. Fauci is likely referring to the monoclonal antibody cocktails specifically developed for and available under emergency authorization for covid, not monoclonal antibody treatments in general.

        Monoclonal antibodies are laboratory-produced molecules, and used to treat numerous illnesses.

        I could be wrong, but I just can't see why he'd mean all monoclonal antibody treatments. I think he was using a shorthand because people were wondering why Trump has to wait to be vaccinated. Most people assume "monoclonal antibodies = Trump's elite treatment". That's probably what Dr. Fauci was responding to.
        Please Note that my posts may have been arbitrarily altered by a Moderator and may not reflect my original content.

        Per Mike Weins: "...the admin/mod team doesn't have to provide a forewarning/warning/mention about altering a members post. It doesn't matter if they fix a link, remove a link, fix a typo, or whatever...."

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          #19
          Found it:

          You know, there is a reason for him not to, Judy, because he received a passive transfer of monoclonal antibody when he was sick.And that makes the level of antibody very high in your body, which can interfere with the efficacy of a vaccine. So, it is recommended that, if you do receive a passive infusion of monoclonal antibody, that you don't get vaccinated for about 90 days. So, he is still within the limit of 90 days.
          So, I think, sooner or later, he should ultimately get vaccinated, but the fact that he is not vaccinated now, I think, is not inappropriate. I think it goes along with the recommendations of when someone should be vaccinated.
          Only registered and activated users can see links., Click Here To Register...

          It's not clear to me whether he means all monoclonal antibodies or just those used to treat COVID-19.
          Last edited by agate; 12-21-2020, 09:07 PM.
          SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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            #20
            I, too, is still undecided whether it will be good for me and my family to get the vaccine. Hopefully, in a couple of months, we will have a well-documented report of the effectiveness of the vaccine.

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              #21
              Welcome to the forum SweetChoco. It's the first time I've seen you here.
              "Given the millions of billions of Earth-like planets, life elsewhere in the Universe without a doubt, does exist."

              Albert Einstein

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                #22
                Welcome, SweetChoco!
                SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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                  #23
                  Originally posted by agate View Post
                  I was just watching the PBS evening news, where Dr. Fauci was being interviewed. Replying to a question about why the President was delaying getting the COVID-19 vaccine, Dr. Fauci said that that was probably because when the President had the virus he received a monoclonal antibody.

                  He went on to say that anyone getting passive infusions of a monoclonal antibody should wait 90 days before getting the COVID-19 vaccine, and he explained why.

                  I apologize for not having time just now to find a link to his exact words.
                  Yes. That is what I heard him saying but, as they gather new information their advice will probably adjust. I bet even my farmers market next spring will consider making vaccination a requirement for the farmers.

                  Time will tell
                  Linda~~~~

                  Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"..

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                    #24
                    The National MS Society has convened a group of experts who have decided that as of now, nobody knows whether people with MS were included in the trials of the COVID-19 vaccines, and so they can't say for certain that any of the vaccines would be safe and effective for people with MS. More information should be forthcoming in January.

                    Only registered and activated users can see links., Click Here To Register...
                    SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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                      #25
                      A pharmacist destroyed some vaccine doses on purpose Only registered and activated users can see links., Click Here To Register...
                      Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
                      My website for my original short films! http://cripvideoproductions.com/astrokeofendurance.php

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                        #26
                        What a story, funnylegs. They can't speculate about the motive. What sort of person would do such a thing?

                        Pharmacists can be as twisted as anyone else, I suppose, but this is pretty twisted. And malicious.
                        SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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                          #27
                          Originally posted by agate View Post
                          What a story, funnylegs. They can't speculate about the motive. What sort of person would do such a thing?

                          Pharmacists can be as twisted as anyone else, I suppose, but this is pretty twisted. And malicious.
                          Amen to that! This is so messed up and I hope whoever this is is kept far away from the medical field.
                          Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
                          My website for my original short films! http://cripvideoproductions.com/astrokeofendurance.php

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                            #28
                            People with Cancer who receive immunotherapy, which are monoclonal antibodies, are given the COVID vaccine by their doctors at prominent Cancer institutes. I think they try to space 10-14 days between the monoclonal treatment and the Covid vaccine.

                            My neuro suggested spacing IVIG 10 to 14 days away from the Covid Vaccine. So I will miss a couple of IVIG sessions if and when the vaccine becomes available.

                            The research is continually changing, just do the best you can.

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                              #29
                              ((((((Hugs to All)))))) ~

                              Sunshine ~ Thank you for the link.

                              A close friend of mine and her 97 year old mom were vaccinated about 2 weeks ago. My friend has developed pain in both arms and her knees, which her doctor called sedimentation and inflammation. He's sending her to a rheumatologist. Her mom has been in tremendous pain after her chiropractor visit, which is unusual. Her mom is remarkably fit, however, she did have a fall prior to the shot, and she may be declining now just by virtue of her age.

                              Naturally, I'm wondering whether the vaccine exacerbated an existing condition for both of them. Jim was in an RA flare (pre-cancer), when he had the pneumonia vaccine, and he was in bed for 10 days. Opdivo, immunotherapy, immediately caused an RA flare for him, requiring Prednisone for the rest of his life.

                              This just contributes to my ongoing angst about the vaccine for me. I'm already in pain, and I fear I'd be incapacitated by more pain, as Jim was.

                              I'm just going to continue to stay isolated and avoid everyone, except John, who is now wearing 2 masks. The next time I see him, he will bring my new iMac upstairs and place it on my office desk to set up the equipment. Another very dear friend will walk me through setting up the computer innards via speakerphone.

                              Oh, I also saw news reports today that the second dose vaccines are running behind. I'm sure we all saw this coming with the first roll out. Of course, efficacy of the vaccine has been linked directly to the second dose. There are so many ways in which this could have been handled more efficiently.

                              I just pray for everyone on the planet, because this is so difficult to remain calm and centered, and to trust what we're told, during this pandemic.

                              Be safe and stay well everyone ~

                              Love & Light,



                              Rose

                              *Virtual Hugs Are Germ-Free!
                              Mom to Jon, 49, & Michael, 32, born with an undiagnosed progressive neuromuscular disease. Angel Michael received his wings in 2003. Angel Jon received his wings in 2019. In 2020, Jim, their Dad, joined them.

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