Small Fiber Neuropathy, anyone??

[LIZARD66]

Hey, everyone.

I'm losing what's left of my mind. I started getting these severe spells of neuropathy the day after my third Covid booster, in December of '21. My neuro has my dx as Small Fiber Neuropathy, and I started Gabapentin about a month ago. It's helping. They're generally shorter and less intense, and I don't get them as often, but they strike at such random times. I just had one hit at 12:30! Good thing I was still up! (They have never hit during sleep.) I'm trying to determine any triggers, but no luck so far. Any suggestions are welcome and appreciated! Thanks!

[agate]

Hi, LIZARD66--Welcome back!

I haven't had any experience with small fiber neuropathy and don't know if this dense article in Science will be something you care to wade through, but if you scroll down to the "Therapy" section, you might find some helpful information even though the article is a bit old (2006).

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You mentioned having seizures in an earlier post. Has there been any change in them?

[LIZARD66]

Hey, Agate!!

My szs finally stopped several months after I eliminated gluten after being dx'ed with Celiac Disease in '08. It took months, but then I realized they only occurred if I accidentally ate gluten or got "contaminated." The frustrating thing about my CD is that even a crumb can trigger them now. I'll check that article out. Thanks!

[agate]

My DIL's father and nephew both have celiac disease, and have to be very careful about what they eat. On the bright side, I'm noticing more and more products advertising themselves as "gluten-free."

[LIZARD66]

Sadly, you can often get away with labeling something GF even if it's got a certain amount of gluten in it.

[agate]

That is disturbing. I keep learning about instances where the labeling is misleading, and nobody does anything about it.