From old days, been gone, used "pain" forum HELP

[hoops2u]

I have not been on this site for a few years. Have been in and out of hospitals and unable to focus or write much. Had been doing so much better and working hard on a couple of books and back to calling on hospitalized patients. OIt felt good to be back.

Now great concern has dropped it's ugly head in my lap and I need help. Is Steve the Pharm. guy still around? I recalool the name Mark, don't know if it's the same. Also there was a Mrs/ Doubtfyre.

Here's the scoop. Have been on narcotics for about 15 yrs solid, off and on prior to that another 6 to 8 yrs. The issue is, my innards don't seem to be working well after this long term use of opiates. My Gastro Dr. says I need to go off all pain meds ASAP.
My stomach has two very large ulcers, bleeding and I do not use NSAIDS. I did until about a year ago when this same Dr told me under no circumstances NO NSAIDS. I have no way to control my severe arthritis pain at this time. But now he wants me off the pain med. Through the years I have not increased my usage, rather i Titrated down to 180 mgs day of a 24hr med, Not OXY.

I am petrified at the very thought of going off completely. I vividly recall the pain riddled days and nights when I would rock my body back and forth in horrific pain. When I was finally able to settle on the meds that worked and maintain a happy balance and live a life again not just that of a zombie, I was so very happy.

This Dr. says my stomach is paralyzed form yrs of opiate use and doesn't work at all. If I doo not get off meds soon i may be on a feeding tube within a year. I have been having digestive problems for a long time and just now I have gotten someone to listen. But I am freaking out. I am on total soft diet, mostly liquid, get little if any nutrients from food, mostly liquid diet. Or chew and spit I learned from others, but i am not likely to go that route as i think it is disgusting. I have lost 40 lbs since Thanksgiving. Still losing of course.
Help, does anyone have any experience with long term narcotic use? My pancreas is also failing rapidly. Whats so really awfu;l and ironic is that I just recently started to feel really GOOD! Any suggestions or infop would be greatly appreciated.

I do intend to get another GI opinion.

Thank you all, and God Bless You, Hoops

[hoops2u]

Looking for help Please

I have not been on this site for a few years. Have been in and out of hospitals and unable to focus or write much. Had been doing so much better and working hard on a couple of books and back to calling on hospitalized patients. OIt felt good to be back.

I did not make myself clear i guess. I am looking for help or input from anyone who has been on long term opiate based medication for pain management and has either gone off or told they needed to go off or should go off all pain med.
I have found clinic in my aarea that works with folks such as mysellf but have not spoken with any individuaols wha have actually had to do this or are experience organ shut down due to long term opiate use for control of central pain syndrom. I would be grateful for any advice or input. thank you soooo much. I am scared, frightened , petrified. please please please can you give me some input. I thought I was doing good. Geesh.
Now great concern has dropped it's ugly head in my lap and I need help. Is Steve the Pharm. guy still around? I recalool the name Mark, don't know if it's the same. Also there was a Mrs/ Doubtfyre.

Here's the scoop. Have been on narcotics for about 15 yrs solid, off and on prior to that another 6 to 8 yrs. The issue is, my innards don't seem to be working well after this long term use of opiates. My Gastro Dr. says I need to go off all pain meds ASAP.
My stomach has two very large ulcers, bleeding and I do not use NSAIDS. I did until about a year ago when this same Dr told me under no circumstances NO NSAIDS. I have no way to control my severe arthritis pain at this time. But now he wants me off the pain med. Through the years I have not increased my usage, rather i Titrated down to 180 mgs day of a 24hr med, Not OXY.

I am petrified at the very thought of going off completely. I vividly recall the pain riddled days and nights when I would rock my body back and forth in horrific pain. When I was finally able to settle on the meds that worked and maintain a happy balance and live a life again not just that of a zombie, I was so very happy.

This Dr. says my stomach is paralyzed form yrs of opiate use and doesn't work at all. If I doo not get off meds soon i may be on a feeding tube within a year. I have been having digestive problems for a long time and just now I have gotten someone to listen. But I am freaking out. I am on total soft diet, mostly liquid, get little if any nutrients from food, mostly liquid diet. Or chew and spit I learned from others, but i am not likely to go that route as i think it is disgusting. I have lost 40 lbs since Thanksgiving. Still losing of course.
Help, does anyone have any experience with long term narcotic use? My pancreas is also failing rapidly. Whats so really awfu;l and ironic is that I just recently started to feel really GOOD! Any suggestions or infop would be greatly appreciated.

I do intend to get another GI opinion.

Thank you all, and God Bless You, Hoops

Please see the above in bold print. I have been off this site so long i have forgotten how to work it. I am a bit nuts right now with fear and oh i cant even think....

[Earth Mother 2 Angels]

((((((Hoops)))))) ~

Welcome Back to BrainTalk!

I'm so sorry for the pain, fear and anguish you are enduring. I have no personal experience to share with you, but I have some thoughts.

You might consider visiting a Naturopath or a holistic practitioner for natural alternatives to your narcotics, a detox program, acupuncture, and other methods of controlling pain and regaining a healthy body. Reiki, Healing Hands, and other ancient healing practices might benefit you.

A friend of mine with metastatic cancer is finding relief through holistic healing. It can't hurt, and it may help.

A nutritionist or dietitian might be able to help you find healthy foods to boost your immune system and give you the right nutrients to strengthen you.

I pray that you don't ever need a feeding tube, but I will tell you that it isn't as awful as it sounds. It is a relatively simple procedure, done endoscopically. And a feeding tube doesn't mean that you can't eat orally. It can be in place to supplement oral intake. And, you can eat real whole food, blenderized in a powerful blender, like a Vita Mix, and put that mixture of real food through your feeding tube. Should you ever have questions or need advice about feeding tubes, please post a new thread on the Child Neurology forum, as several of our members have vast experience with feeding tubes and will help you gladly.

With regard to your question about former members:

Pharmacist Steve posted this in the Chronic Pain forum, and you can PM him by clicking his name in his profile:

Only registered and activated users can see links., Click Here To Register...

I don't think that Mrs. Doubtfyre posts here any longer. But Mark N does, and so does HellBound Troll.

Sending healing prayers your way, Hoops ~

Love & Light,

Rose

[alex44]

hoops2u - Welcome Back. I have never personally heard of any of the problems you are having but I am not a doc so..... Hopefully someone with more knowledge will stop in with some help. And yes, I do remember you. Hope things get better - I would definitely get a second opinion.
Blessingsalex44
Skypilot

[Mark N]

hoops2u welcome back I just wish you had better news. With your dr's diagnosis I would get a second opinion right away as there are ways to improve your motility. I use Miralax everyday to keep my system going and unfortunately need to use an enama to have a BN due to nerve damage. Before facing life without pain meds I would find a dr willing to try other things to get past your stomach problems. I would think that having a morphine pump would have the medication avoid your stomach. I hope you get some answers soon as I have always been told that opiates, taken correctly, don't case this kind of damage to our systems.