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    Hi Everyone

    It's been a long time since I posted, on the old forums Happy New Year. I hope that there are some of the old members still around.......EA, Mark N, and some of the others........
    Life has been busy, of course as it always is for all of us. As for my spine, well, I was doing as well as I could be considering everything that has gone on since 2005, but in the fall, I managed to tweak my back pretty well trying to go in a door.......that set off a flare up that just seemed to go on and on. I saw my physiatrist and she decided to send me for a new MRI......the results weren't good, of course and then was told that I needed to get a CT scan as well since they saw some new problems. I talked to my physiatrist after the MRI and the CT , and she is pushing for me to consult with a couple of surgeons. Seems the bmp caused some major issues, as in the overgrowth is all over the place, including the canal , which is significantly narrowed, and I have two spondylolysthesis, this time at L3-4, ( grade 2 or 3, depending on the view), and at L5-S1, which is only a grade 1 thankfully......
    I will see if I can include some of the images ....that being said, I have two appointments with complex surgery revisions and consults for ideas about what to do.......but the images and reports aren't looking good. In the MRI report, they mention that the facet joints are "perched" on L4.....amongst other issues.
    It seems that I can not get much of a break.......the good news is that the nerve pain isn't bad, but my physiatrist seems to think that it is because of the extensive damage to the spinal nerves...
    Anyway, just thought that I would update since it's been a long time and ask for some well wishes on the 14th and 16th......think that I am going to need them.
    Only registered and activated users can see links., Click Here To Register...

    Sandi
    Bi-lat Nerve Damage, Post L4-5 PLIF/TLIF
    Revision L4-5 PLIF for broken and bent screws 8/07-failed fusion,collapse of L4 on 5 vertebrae
    tethered cord,CES Post original fusion

    #2
    Hi Sandi, sorry to hear about the new issues with your spine. Dealing with revision surgery isn't easy and I hope there is a way for you to avoid it. It is strange how a bump into the door can trigger all the pain but or spines are unpredictable. I will be thinking of you on the 14th and 16th and hoping you get some good news.
    1979 spinal issues, 1993 lumbar microdisectomy L3-4, 1996 360 3 level lumbar fusion L2-5, 1999 open thoractomy fusion T8-9,
    2002 C3-7 herniations and T4-7 herniations, 2004 total disability, a new limited life

    Comment


      #3
      Thanks Mark.........I am glad that you are still here. I gotta admit, seeing these new images has made me a bit nervous....and my pm nervous as well. Her expression changed significantly when she saw the images. I am going to be seeing her on Wednesday, a week before I see these surgeons, so it will be an interesting conversation once I do see them and what they have to say.
      The PM is pretty confident that they are going to recommend a multi level fusion ( L 2 or 3 down to S1)and revision of the mess created by the bmp, but there is concern over the bmp that adhered to the dura....so who knows. They may not want to touch me, and honestly, I am not sure that I want to go down the road of another surgery.
      It took me awhile to even find two surgeons with experience in both sci , complex reconstruction and revision, and I was able to email them both images of some of the issues, so they were really rather good about getting me in rather fast. One of them emailed me from home on a Sunday and the other first thing on Monday morning and wanted me to come that day.......so I was a bit surprised at that, but I guess that could be good or bad.
      Anyway, I hope that life is treating you well? How's the family? How are you feeling?
      Sandi
      Bi-lat Nerve Damage, Post L4-5 PLIF/TLIF
      Revision L4-5 PLIF for broken and bent screws 8/07-failed fusion,collapse of L4 on 5 vertebrae
      tethered cord,CES Post original fusion

      Comment


        #4
        Sandy, the look on your PM face along with the surgeons getting back to you so quickly would make anyone nervous. You have had enough struggles with your lumbar spine and I can't imagine going through more surgeries to try and fix it now. I suppose that with improved surgeries and materials they could do much better this time and you would be in far better shape after surgery.

        I get by the best I can each day. I have a few days now and then that are good days and I can remember what it was like to be productive. I feel good though having a few hours in a day that I can get some things done but I have accepted my situation and don't pine away for better days. Our two granddaughters brighten my week up as I seen them once or twice a week. They are 4 and 2 so they are still adorable especially since they go home when they get tired and cranky. That is one of the good things about grandkids is we get them when they are at their best and mom and dad get to take them home when they aren't doing so well.
        1979 spinal issues, 1993 lumbar microdisectomy L3-4, 1996 360 3 level lumbar fusion L2-5, 1999 open thoractomy fusion T8-9,
        2002 C3-7 herniations and T4-7 herniations, 2004 total disability, a new limited life

        Comment


          #5
          LOL Mark............yeah I can understand that regarding the grand kids. Don't have any yet, don't want any yet...but I can clearly recall my husband's parents saying the same thing......
          I have misgivings about the whole thing of even seeing the surgeons for consult......but I will do what they want to appease them. I did tell the pm doctor that I am not really considering surgery, since I just am not sure that I want to put myself through that again..
          It's taken my 8 years to get back what I lost, and I am in no hurry to go down that road again......especially given the complexity of what all of it looks like on the images. I just don't know......and the whole osteopenia thing is going to create issues so I am unsure what they are going to suggest.........it may be that there is nothing that can be done.
          It's been a rough road for many of us, in the last decade. It's hard to believe it's been that long....
          I am glad that you are still here........I've missed talking with you.
          Sandi
          Bi-lat Nerve Damage, Post L4-5 PLIF/TLIF
          Revision L4-5 PLIF for broken and bent screws 8/07-failed fusion,collapse of L4 on 5 vertebrae
          tethered cord,CES Post original fusion

          Comment


            #6
            Sandi, it is good seeing you here again although I was reviewing my FB account and saw you on my friends list so we can fall back on that. I understand how you feel about seeing the surgeons for a consult as I got to the same place myself after my decade of surgeries. It just gets to the point that we say enough is enough and live with what we have for a spine.

            The granddaughters were over tonight as mom and dad went grocery shopping; we took them all out to dinner earlier. The girls had a great time with us and my wife does a really good job entertaining them. Of course we make sure we teach them about sharing and taking turns. Everyone had a blast until right at the end and the 4 yr old was half an hour past her bedtime and she was ready to go home RIGHT NOW:).

            Good luck with the consults Sandi, I know you will make the choice that fits you best as you have the experience to choose the right approach.
            1979 spinal issues, 1993 lumbar microdisectomy L3-4, 1996 360 3 level lumbar fusion L2-5, 1999 open thoractomy fusion T8-9,
            2002 C3-7 herniations and T4-7 herniations, 2004 total disability, a new limited life

            Comment


              #7
              Thanks Mark..........the first one is Wednesday afternoon in NYC , so it will be a bit later than I would like getting back.......and the next is on Friday......
              At least they will be over with at the end of the week.
              The time you guys get to spend with the grandkids sounds like fun.........I have come in from time to time to check to see how you were doing.....so I have read some other posts about the grandkids.
              Gotta love the past bed time, I wanna go NOW's..........I remember those.......seems like yesterday at times.
              I'll let you know how I make out........
              Bi-lat Nerve Damage, Post L4-5 PLIF/TLIF
              Revision L4-5 PLIF for broken and bent screws 8/07-failed fusion,collapse of L4 on 5 vertebrae
              tethered cord,CES Post original fusion

              Comment

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