I haven't been on here in ages, and was just curious if anyone was still around from "way back then."
Brion L
Brion L
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Diagnosed with stomach/esophageal CA in 10/99. Surgery opening abdomen and chest to remove stomach, esophagus, and spleen. Surgery about 10 days later for with lung infection. Was given about a year to live. 5 more surgeries in as many years, for hernias and adhesions, including removing about half of the colon. Thoracic problems from radiation, upper left abdominal pain from adhesions. Pump implanted in 2000. Shiny new pump in 2011. Oldest son diagnosed with stomach CA in 9/2000. Died 9/22/2001 -
Still Here
Remember the great flood?
Hope this finds you well and pain free - the name rings bells.
Blessings
Alex44
Skypilot -
Brion, still around hoping to talk to more people from the old days or get more new people coming in.1979 spinal issues, 1993 lumbar microdisectomy L3-4, 1996 360 3 level lumbar fusion L2-5, 1999 open thoractomy fusion T8-9,
2002 C3-7 herniations and T4-7 herniations, 2004 total disability, a new limited lifeComment
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Hi Brion....don't know if you remember me. I joined around 2003 or 4 I think. How have you been? What I most remember about you is how strong
you have been with issues that would have put most of us under. I am glad to hear from you. Please tell us how you are doing. This forum could use
some of your amazing drive and optimism despite incredible obstacles. Looking forward to hearing from you.
All my best, DiandraComment
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hello Brion. I remember you. I joined back in 1999. Is that far enough "back"?ack
Good to see you and hope you will stick around. Hope your health is on the positive side.
take care, Jo6 aka Issy aka several other names, just can't
remember them all. Also, I am JuliaLast edited by Jo6; 09-27-2012, 02:27 PM.Did you ever know that you're my hero and every thing I would like to be I can fly higher than an eagle
'cause you are the wind beneath my wings
for my brother BenComment
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I first came here in 99, looking for information to help with a wrist injury from an auto accident. We had already been through round 1 with Greg's cancer in 95-96, and thought we were in the clear. Cancer had other plans, and hell followed with it.
I'm not really sure what brought me back here, and why I decided to share my life with complete strangers, but Braintalk became a refuge in the storm. I could open myself up to the people here, something I couldn't do anywhere else. I took a huge risk putting myself and my family online for all to see, but the love and support we received truly gave me renewed hope in humanity. Just like anyone with chronic pain/health issues, I continue to go through ups and downs, but the fact that I'm still alive and able to enjoy my children and grandchildren diminishes whatever problems I have to put up with.
Several people (including a couple of professional writers) have suggested I write a book about our experiences, using my Braintalk and email updates and posts as the basis. Somehow, I had the presence of mind to save all my posts and updates, so it would be possible. I think I have reached the point where I could deal with it emotionally. For the first time in over a decade, I looked at a few of those posts and emails. They are still very painful to read, but I didn't completely fall apart. I'll keep you posted.
Brion L
Diagnosed with stomach/esophageal CA in 10/99. Surgery opening abdomen and chest to remove stomach, esophagus, and spleen. Surgery about 10 days later for with lung infection. Was given about a year to live. 5 more surgeries in as many years, for hernias and adhesions, including removing about half of the colon. Thoracic problems from radiation, upper left abdominal pain from adhesions. Pump implanted in 2000. Shiny new pump in 2011. Oldest son diagnosed with stomach CA in 9/2000. Died 9/22/2001Comment
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Hi Brion, i am real old timer. I spoke to you on the phone back in maybe 2004 after years of corresponding about my son Nick's pain. You were very kind. Do you remember us? Nick, my son is 24 now!!! Hope you are well!Donna, Mum to Natalie (22), ablebodied, kind and beautiful and Nicholas(26), severe CP, non-verbal, tube fed, multiple surgeries, chronic pain, happy kid except when the Liverpool football club or the Ottawa Senators Hockey Team are losing!
Check out my blog: http://www.donnathomson.com
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Julia, I haven't seen you around for quite a while and it was a pleasant surprise to sign on and see your post. Donna, you are another I used to see posting all the time but it seems like forever since the last post I read from you.1979 spinal issues, 1993 lumbar microdisectomy L3-4, 1996 360 3 level lumbar fusion L2-5, 1999 open thoractomy fusion T8-9,
2002 C3-7 herniations and T4-7 herniations, 2004 total disability, a new limited lifeComment
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Donna, yes I do remember speaking to you, although I must admit I don't remember the particulars. Did it concern a baclofen pump? So glad to see he is doing well.
Diagnosed with stomach/esophageal CA in 10/99. Surgery opening abdomen and chest to remove stomach, esophagus, and spleen. Surgery about 10 days later for with lung infection. Was given about a year to live. 5 more surgeries in as many years, for hernias and adhesions, including removing about half of the colon. Thoracic problems from radiation, upper left abdominal pain from adhesions. Pump implanted in 2000. Shiny new pump in 2011. Oldest son diagnosed with stomach CA in 9/2000. Died 9/22/2001Comment
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There are quite a few old timers that come in frequently and keep up with how everyone are doing but don't post and then there are others who keep changing names every year or so for personal reasons. It is neat to bump into someone who goes back to the mid 90s. Everyone have a good evening.Comment
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What's considered advanced? LOL My join date says something like recent, but I joined back in 06 or 07.
Ah never mind, after I posted I see that it now says 06. Maybe I was dreaming:-)Last edited by Boxerlover; 10-05-2012, 10:32 AM.Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.
Dx: Cancer(stage 3 Melanoma), Sarcoidosis, Chronic Kidney Stones, Endometriosis(post hysterectomy), DDD, Fibromyalgia Raynards, Hypermobility Syndrome, Osteoporosis, Hypothyroidism, TMJ, Neuromas, PTSD, CoccydyniaComment
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I'm still here though I do not visit often. I remember your posts Brion, always ready to help in spite of your own problems.If no pain, no gain is true, where is everything I should have gained?
DDD, Fibro, CFS, pain for 20 years. ADR c 5/6 Feb. 2018 doing well.
Back to pain management, fibromyalgia getting worse.Comment
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hi!
i've been tic chick ever since there was a chatroom for everyone back in 1999. it was a big white page, you typed what you wanted to say at the bottom and hit "send". there were the names of the people who were in the chatroom along the bottom or side. you could pm people. then it changed to new chatrooms that were brown and beige. then no more live chatrooms:(. i started posting in the forums about 2004. then bt died for awhile in 2006. about 8 months later it was back and so was i.
i don't think i'll ever leave here. you are all incredible people. i have received much more than i have given and i am blessed.
thank you for sharing and caring,
jeannieLast edited by tic chick; 10-06-2012, 09:46 PM.WE ARE BT!
"The world is a better place when you're barefoot." Mark
"Don't go there unless you know the way back." TC
"...there will be an answer. Let it be." Paul McCartneyComment
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The original chatroom format worked better for most folks. The only serious drawback was that one could flood the individual chatrooms by hitting a post with "enter" over and over. Each room seemed to come equipt with a nutter that liked to play that sort of game at least once a day. It came with a privacy button so two or more could chat privately w/o setting up a private room or going to one that was seldom used. They totally revamped the chats after the first big crash that pulled the entire site down for weeks/months. All of the new features that were security oriented made posting a bit more complicated and the chats went to black. The boards are great for the distribution of info and really educated me concerning my developing problems and options but aren't free flowing relative to conversation. Of course, they aren't designed for that. Hugz all around.
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