will be back

[Jo6]

Pati dear, some thing bad has happened to you and my heart hurts for you. I can assure you, all your friends at Brain Talk love you dearly.

I can tell you, it is ok if the wrong words come out. This happens to me all the time. It is hard to take sometimes, but I know others just looks over any mistakes. I don't have a hard time understanding you, maybe it's because I make so many mistakes myself. lol

Some times I just burst out crying , don't have a clue why. But Dr. tells me to get all the crying out, it would be good for me. I wonder? I have a new group of Drs. I like the one I've been seeing. She looks so young, but I saw a picture on her counter top, 4 little blond headed girls, cute as can be. She will have a time with them when they get to be teenager's. lol

Pati, if you can keep working on the therapy. I'm still working at it and it is so hard some day's I have a hard time doing some of them. I keep puffing away . The speech therapy is the hardest, but you wouldn't think so.

I will look for your post. That is good for you too. Pati dear, just keep on working at it. You will see progress soon and it will be worth it all. You take care and write whenever you feel up to it.

I send you many s Jo (((((( Pati))))))

[joy]

Julia I know you have had a lot of therapy so I am letting what you say help make me feel better about pati. I can remember a feiwn who said that strokes are worse sometimes than cancer. why, well because cncer will either get better or will take you. after seeing how long it is that Donna is doing with terminal cancer I don't believe that saying would hold up to what it was bak in the 60-80's. he now has cancer himself. I just know that with strokes a person has to do some therapy to help their bodies relearn things. my daddy had cncee then a stroke so he had it bad and I have nothing good to say about either one. they do terrible things to people.

pati you try and do what you can (if the have you doing stretching or any kind of movement) and dear friend you are in my prayes.

[tic chick]

(((pati))) ,

you are doing very well with your typing and your sentence structure, spelling and getting out your thoughts! just keep on writing, even if you have nothing much to say. the stroke doesn't seem to have affected your language center, maybe just your motor center, which makes it hard to do things physically. everything works together though, so keep up your therapy. i am so proud of you and happy to see you recovering so quickly!

i am sorry to hear old uncle is dying. i am rather fond of him, although i don't know him, just because you have written about him.

you never mentioned that your housemate had a gf. you said that he felt guilty about something and that he thought he had caused your stroke. i'm sorry you have to deal with that along with recovering from your stroke. i hope things settle down and maybe you won't have to move. bad situations sometimes get better if we give them time. if you have to move, it might be too stressful for you? i don't know. just keep us informed and maybe we can be helpful.

keep on getting better, pati! you are still you. i hope the phone calls with your mom aren't too stressful, either. are you having problems swallowing? if you are, that might be causing your weight loss. maybe eating a soft food diet will help you regain some weight. you do need strength for physical therapy. you are probably losing muscle mass, which is not a good thing for women, as we have so little to start with compared to men. maybe you should ask one of your therapists for a session with a dietician, who might help you with choosing foods that are healthy for you and easy to eat.

we all care about you and always think about you. we send our love and care your way...

jeannie

[dawnmn]

Oh Pati I'm so sorry that you have to live with your HM when you don't want to. Keep up the therapy. You sound like your improving by just the way you are writing here.

I had a stroke and I know it's a lot of work to get thru. Did you know that most stroke patients have depression? It's very common. The brain was working too hard to make you feel good and it just can't anymore. I don't know if you are on meds but maybe you need to change your meds.

We all care very much about you. sending my love and hugs to you.

[Buttons2]

thank you all so much. means alot to me, applied for SSA today or whtever disability is through SS. hope it goes through have already been turned down on medicare cause of my age. going back to when I had myoclonus. had a hard time with dates ( it was a phone interview). sorry I've given impressio n still in therapy-just cant afford it all improvement is my doing prbaby time itself. cannot wait to shower by myslef. can eat with right hand now & typing isn't too bad but lots I cant do. never had sny speech therapy at all but was carged for it. hard to live here but am warm & roof over my head. planning to have my hair cut off like Ellen De Generes really short.

[joy]

I am remembering dawn's stroke and how bad she was. I hope her being here and telling about trips and all will make you see that there is recovery from stroke. it may be hard, take a long time and all that but you are so worth the trouble it takes. I am happy each time I come here and see just who all has visited since my last visit. m I am quite fond of all the folks on emotional support forum.

and just now looking at my typing, it is better than some days. some times I make so many typing mistakes I just know that I cannot go back and correct them all. I just don't have the energy. and I hope that everyone can figure out what I am trying to say those days spelling and typing is so bad.

haircut, yed a short hasircut is good. right now mine is very short. I found a lady that is not afraid to use the razon on the back of my hair and wow, zip it is gone, lol. she thins it out. some mornings I get up and all I need to do is run a brush down the backside. if I did not have a knot yhere I probably would no even have to do that. I wish I had gotten that knot off back last summer when it was scheduled. I did not want to go to Chicago with stitches in my head so called it off. then drat it all was in hospital anyway because of cellulitis. sheesh win some lose some it seems. just keep trying is what I am doing and hope everyone else is too.

[Jo6]

Pati, I'm hoping you are feeling some better today. Some thing you posted in your last post caught my attention. You said you had not had speech therapy, but had been charged for it. If you remember Beth my daughter, is a physical therapist at the hospital I was at. She stressed to me over and over to make sure I did not get charged for test and such more than once. She said it was a problem there and some of the other hospitals in that area.

As it turns out mine were screwed up. I had therapy ordered, then scratched----, but was charged still. Before I finally got the therapy started I had 3 different counties calling me and telling me they were on their way, one actually came to the house. So, you see how it goes. It would not surprise me if this was a common practice. They HAVE to give you an itemized bill. They will complain, but they are required by law to do so.

I will give you my opinion, you don't have to take it Try to find an advocate that works especially with the elderly or handicapped or both. I was home by then and was so give out I could hardly put one foot in front of the other. This same person that had screwed up my therapy had made appointment's for me with Drs. all over this town that takes me at least more than an hour & 1/2 to get there and back.

If I didn't have Beth and Ken and son Harvey helping me do the least of these I would just been up the creek. I cannot drive because I had started having seizures(grand mal) I'm still trying to work out of this hole.

Mostly I'm still trying to get the energy to get from one day to the next. I was looking over some records and counted I had been to the hospital I think 5 times to get my gallbladder out. One was a transfer from one hospital, getting a specialist to finish getting the largest stone's out.

The last visit to hospital they thought I was having a heart-attack, then stroke and some where along I had Symptom's of Dysphagia .That was why I had to have speech therapy. I still have a time with right hand and arm, have to be very careful about swallowing and the list goes on. I had to have everything I ate and drank nector nector thick. I still have some trouble with right hand and arm, and trying to get my strength back.

That was not pleasant, but better than chocking to death. The physical therapy is to help me get back on track. I was just beginning to feel some better from the surgery.

I'm concerned about you not having any help. The Drs. would not let me come home until they were sure I had some one to be with me at all times. When I did get home I realized how much I did need someone.

Pati, I realize you have some special problems and more than anything you do need the extra help. The Home Health should not be charging you if the Drs. ordered it. I would at least get someone look into this for you. TELL them you NEED it!! I know what it's like to have to have help bathing yourself. To me that is the ultiment indignity. Then it is worse if it is someone that is unpleasant to start with. I know States and hospital's are different, but I sure would try their patient's.

Find that Advocate and get them among all this other get you some help and some rest so you can work on getting better. If I have offended you in any way, please forgive me in advance. What I want for you and me both, is get well and stay well.

Many s for you, dear Pati

[Buttons2]

thanks both of you. i do need help. and i looked over the hospital bill & none of it makes sense to me especilly the outrageoutotal. over 90,000 for 2 weeks! no wonder people go bankrupt. ive been told i have to move out cause i won't keep quit about the lady that lies & cheats-yes she is married. of course i cnnot keep my mouth shut. he lies about everything. my problem-not yours but i need to vent. wish it was summer alredy.

had the ss interview yesterday & gave her an earful which is what made housemte so mad last night. i'm careful cause know how far i can push him. nobody eems to care or else they all think i'm just bonkers. i'm not crazy didn't make it all up.

how can anyone treat other people like that? how can she treat her husband like a fool? i know nothing about her except where she works (for the fire dept) she's rich & fat. he tries his best to make me think it's all in my head of course.i get my info from the cleaning lady -and i never put her in the middle. would like to but not fair to her.

i talk better these days unless on the phone. i am sleeping a little better. can dress myself mostly. last night i tried to cook-bad idea. grateful for what i have & can do so many can't do a thing. hope i get the ssa-could use the bucis for one thing. therpy is over 300 for nothing much. without ins. or medicare you get nothing.

have lived here almost 18 yrs. hard to leave plus have to leave my pets.tired now.

[Jo6]

Pati dear, here's hoping you are feeling much better today. Please be careful with steps and stair's, it is very easy to fall there. We have a ramp on the side of the house and I use it all the time. If it sounds like I am telling you what to do, I'm not. Just trying to share some tips with you and you may have some to send to Joy and me.

I can tell you have made a lot of progress since you first started posting. If you need to let some hurt and anger out, then by all means do it. WE all vent at times.


I don't want to wear you out so won't write as much today, but if you need to call me, please do. We all love you Pati, never forget that!!

Many s for Pati my love, Jo

[Buttons2]

cleaning lady was here yesterday. always enjoy her. she told me about something to wear that doenst cost much so i can walk ouside by myaelf. old uncle eomes home today even if bed not there yet. he spent almost a week in hospital. poor old guy. housemate got over his fit so took back telling me to leave here. i feel so weak & tired of not being me. i'm very careful with steps & stairs i do have fto use. dont want anyone of worry about me at all. called mom yesterday too. she says shes ok but still rely on neighbor to tell me thruth. gotta go now.

[Jo6]

good evening, Pati. I hope today has been good. I know what I need! A cleaning lady. It sounds like you have you a jewel there. I'm glad for you.

It's been a dark and dreary day here. I would also be happy to see spring get here. Not wishing my life away, just would love to live where it is warm and the sun would shine. I haven't forgotten that bus trip you and I were planning. I've made a list of all the things I don't want to leave home without!

I know old Uncle was happy to get home today. Does he live close to you? If so it could be nice to have him around. Just be careful and do what Pati knows what she needs to do. I have long since give up on people telling me what I could do and what I couldn't do. I know Pati knows what she needs to do. I think you are like me in many ways, you know what's best and you need people to just care and let you do what you need to do.

If I sound too bossy just put it down to trying to get well. I think that is where you are. lol I came across this picture of you and the cleaning lady "cutting a rug" *hobbesnobbin

Hope you enjoy this. all my love, Jo

[Buttons2]

thnaks jo, had my hair cut off today,sure is differnt! asked to meet her Weaten Terrier cause I'd never seen one. got my eye brows waxed too. like her & she's cheap! I look so different it will take awhile to get used too. more cold, deary weather here today. haven't fogotten the bus trip. go Seahawks for now. keep losing weght. dog has chewed another top upbe out of clothes pretty soon. tired gotta go now.

[Jo6]

Pati, been trying to remember to tell you my hair is cut very short. I have worn it this short for a long time. It's easy to shampoo and fi it a little, but I don't do that too much.

My picture is on FaceBook. I don't know who registered me or put my picture on there but I was shocked when someone told me to go there and look. Well stupid me didn''t know it would be there forever, but I have tried for several years to get them to take my name off and they won't. I even told them someone else put it on there,,,,,, but to no avail.

Anyway, when certain people post things on FB it comes up in my email. I just ignore it but it is a real pain in the arse to worry over.

Anyway my hair is short and if you want to see it just go to FB! Pati, I know you hate BF about as much as I do. I don't know who put my stuff up there, but I don't like it one little bit. So, what to do? Forget it and hop it will disappear one day.

Bet your hair looks great. Send me a picture and yes, it is easier to care for it and when you get older than dirt it makes me glad I got it cut one day. Now I go about every 6 weeks.

take care and I bet you look great!! ((((hugs)))) for Pati

[joy]

HELP help there is a lot of people missing! it is good to see when someone posts. I will admit that I have not been posting much here myself. but we don't wasn't to all just disasppear now do we? I know I am feeling bad and that is taking its good old time of making me all wishy washy and weepy.

I just hope everyone is doing okay and just so darne4d busy that they don'y have time to post.

so slow down and come post here and tell us what you have been doing. myself, well I have been staying in recliner with feet up because they have been swelling even in this cold weather. now how is everyone else?

Pati I hope you are getting better all the time. and jo I hope you are not having so many doctors visits.

we have a brand new hospital and it sure is nice. I am not anxious to go there but my doctor has his office there so will go soon. my hubby was their first patient ( with an awfully sore finge). well take care and do as the title of t6his post says....will be back.

[Jo6]

where did my post go? nothing goes right for me anymore! I stay so tired all the time, even when I do nothing all day. I have not gained any strength since I had that first seizure several years ago. The last 2 just about finished me off. I don't think I could live thru another one.

I'm still here Joy. Like you, I don't seem to have anything left in me. Maybe our age? I know I am older than dirt, but I didn't think I would just fall apart so fast. What I can't figure out is after all these years I started having the seizures. What caused them? Surely it wasn't just with holding my meds. for so long? How long was too long? why can't remember anything before , during and after?. It felt like I "was away" a long time, but my thinking and families thinking aren't the same.

I know they kept me in the hospital so many days and they didn't seem to be doing anything to help me get back on my feet. I should just stop thinking on it and move on, no peace for the weary.

Gee, we had 's yesterday. Still got snow on the ground. Doesn't snow here too often, but it's nice to watch it coming down. Better give Jonathan a buzz to make sure he and the girls are ok. We've had enough snow here for Jon to know the do's and don't things about driving in the ice and snow. Bet the girls are

Dawn, give us the plans on the wedding. I like details. I did about any kind of wedding you can think of. One was a small wedding in the "Little Wedding Chapel". Bride wore a Madonna style dress. Well, guess you could call it a dress. It looked like a very short girdle with her boob's hanging over the top. The groom had a lavender tux with high top purple tennis shoes.

Don't mean to insult anybody, it was just different. Well, I'll tell you all some dozes when I fell better.

Joy, you feel better, ok? I do wonder where everybody ran off to though. Dawn, Joy and I seem to be to be the only poster.

Love you all, s