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    #16
    The last time Howie came to dinner the cats made a mess. But after a few Vodka Tonics it didn't seem to make a lot of difference. I had a lot of answers to come up with when my wife came home.

    I am thinking about going to the Dr. this afternoon. I dont think that this is a regular MS thing. Usually MS doesn't start at my feet and hands and work its way up it is usually the other way around. My legs feel weak and and my back is killing me tried all the regular stuff for MS and doesn't seem to be making a difference. I hate (REALLY HATE) being the one that runs to the Dr every time I sneeze twice. But after the bug a week or so ago I felt pretty good considering all the antibiotics I has I should! Any ideas folks?

    Good thing I have spell check as I seem to be hitting all the wrong keys today. I used to have it set to automatically correct things but it corrected stuff I did not want corrected so now it just underlines things.

    Its only in the mid 80's today supposed to be getting hotter the next few days.

    Be healthy and stay cool or dry depending, everybody.

    Cherie did you get your sign in fixed? Haven't seen you check in and YOU are the one I usually ask for computer advice.

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      #17
      How is everyone getting their avatars back? I tried to edit my profile and there doesn't seem to be a place to add a profile picture.

      We've had 5 inches of rain in the past couple of days...more 2 miles south of us on the ocean than right here in town...and have slept with windows open and blankets on the past couple of nights. Day time highs 75 and down to 60 at night. I didn't realize we were so dry till I now see how green everything is.

      I did make the decision to stop Cytoxan. Still have not missed a dose and still feel poorly but that will change with time. It seems the neurological symptoms are ramping back up. Balance, dizziness, ringing in ears, black floaters in visual fields, some trouble walking. I think I've just become toxic from 25 months on high dose Cytoxan and my body needs a break. Both PCP and neuro are cautiously supportive but I'm doing labs more often and seeing both a bit sooner than I normally would. And the port needs to be maintained in the infusion unit every 4 weeks so I'll have my trusted nurse's "eyes on the prize".

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        #18
        Cherie, that is big news about your decision to stop Cytoxan. Maybe you can go back to it after a break.

        Lady, you wrote:
        Hi agate,

        To get a paragraph break go to settings, then general settings, then the last choice for editing, which is Enhanced Editing I think ,and click on that one, then save chnages on the bottom. That is the one that I have to use or it's impossible to get paragrahs broken up. (humph!)
        Thanks so much for the advice. Actually I had it set to Enhanced (WYSIWYG) editing. I went and looked at the settings page again and found that for some people that won't work. I changed it to the "Basic" setting, the second choice on the list. All of a sudden I'm getting paragraph breaks!

        But I probably won't ever be able to do the italics or other nice things you get with the Enhanced mode. And my IE7 browser isn't so antiquated really. Maybe this will be fixed later.

        nuthatch, welcome back! I think it's great that so many long-time members are showing up here so soon.
        SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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          #19
          Agate,
          That is part of the point of stopping now. To hold something in reserve if I need it in the future. But I have decided that as a post menopausal woman, My MS is no longer active and does not probably need to be treated (wishful thinking?). Anyway, I need a break and will go back on meds if it seems necessary at some point in the future.

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            #20
            Link to old August Chitchat thread

            Here is a link to the August Chit-chat thread from the other board:

            Only registered and activated users can see links., Click Here To Register...

            Links to archived threads can be posted as I just did above. If anyone wants any particular threads restored from the old board, this is one way to do it.
            SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

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              #21
              The air conditioner has come on twice this evening. On the two days before this the heat came on.

              MA weather is driving me up the wall!


              Whatever happens around you, don't take it personally. Nothing other people do is because of you. It is because of themselves. -- Miguel Ruiz

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                #22
                Vicky- it was a hot and sticky day here, for sure. We had a light rain around 5 PM that was quick but ushered in some dry air. Home you got some of that.
                ANN
                There comes a time when silence is betrayal.- MLK

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                  #23
                  More energy today than I've had in months. Went to three stores to return items, got my hair trimmed (what little there is now) and a wig reshaped, went to an office party art show at David's office then out to dinner with several of David's co-workers. Labwork done today shows some normalization. I can't remember when I've felt as good as I have today.

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                    #24
                    Cherie, it's really sounding like stopping Cytoxan must have been the right decision for you!


                    Whatever happens around you, don't take it personally. Nothing other people do is because of you. It is because of themselves. -- Miguel Ruiz

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                      #25
                      Have to wonder if there is a psychological component. My dose was due today.

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                        #26
                        Hi All,

                        I am having a lazy Sunday at home (well accept for cleaning closets and mopping a couple of floors). I wish that Peg could get back in. I don't know why some of us have had no problem with the url working and others seem to have. Is there a possibility they are trying the old one, or trying to go in from their bookmark?

                        The weather looks pretty here today, but since I have not been out and do not plan on going out, I guess I will not find out how it feels. Isn't it strange how some days we feel like if only we felt better we would just give anything to go out, and then others there is some contentment about being in.

                        I am surprised that no one has checked in on the chit/chat thread in days.

                        Well, I do hope that all are doing well. Gary, hope you are not too worn out and sad. I know that you were to attend and speak at a funeral today.:(

                        Cherie, sounds as though you are doing extremely well right now. Hope is continues on.

                        I have had much more fatigue for the past couple of weeks. Have no idea why. However, speaking of that it is time for me to do my Yoga exercises.

                        Virginia:)
                        Virginia

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                          #27
                          I hope everyone is enjoying the weekend!

                          I'm trying out the new flag feature. Did you know you can have your country's flag appear under your user name? There's an announcement at the top of the screen. Just go to your Profile and you'll find it. You have to click on the teeny-tiny pencil image to make it work.
                          SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) 12/20 - 3/19/24.

                          Comment


                            #28
                            Agate, you always find the neatest things. I tend to overlook them, however I am having a good time with my icons. I could not get them back on the old forum, but have them here.

                            Hi Ann, Howie, Renee, Lady and any others who have found their way back.

                            Virginia
                            Virginia

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                              #29
                              We're at the condo for a few days with a couple of friends from our church. The two Daves went kayaking down a new stretch of river that Dave has never done and it was a three hour stretch of a combo of swift and shallow water. They heard thunder for 2 hours before the rain hit and then it came in buckets. My Dave said they got out of the water onto a big rock in the center of the river for a few minutes to wait out the worst of the storm. What is wrong with this picture? Lightnening rods they could have been!. Alice and I walked down to the Basin which she had never seen and the rain didn't really hit till we were back in the car on the way home and then it was so heavy and the lightening thunder so frequent, we crawled south on the way back.

                              It is still raining so hard, we can't have the windows open but it smells so fresh.

                              I did chili and cornbread for lunch and chicken marsala with red bliss "smashed" potatoes and a tossed salad for dinner. Tomorrow morning Alice is doing French toast with Portugese Sweet bread for breakfast and Dave S. is making Shrimp Diablo over angel hair for dinner tomorrow night.

                              Playing Rummicub, reading the Sunday paper from home, comparing notes on college days....A good evening.

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                                #30
                                :o L) Hi everyone. I sent a link to this board to all the Leafwatcher addresses I have.

                                It is still record heat here and hurricane Irene may come. We don't need the storm just the rain. We are in a severe drought. Same old, same old here otherwise. Jeanie :)

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