Keep on moving : October 2021

[Sunshine 2]

I took zero steps yesterday

Rose- same reaction except this booster was only one that created very low grade fever

[Sunshine 2]

I walked 535 steps today.

[Virginia]

You are doing fine sunshine, next thing we know you will be back up to your 1,000 per day.

[Earth Mother 2 Angels]

((((((Hugs to All)))))) ~

Sunshine ~

Excellent! Slow and steady wins the race! Keep going ~

I have read that the booster is likely to result in the same or similar reaction as the second dose, so it sounds like your reaction was typical. I hope that you are feeling much better now. Your step count seems to indicate that you are. May it continue to be so for you.

Love & Light,

❤️❤️❤️❤️

Rose

*Virtual Hugs Are Germ-Free!


THANKS!

[Sunshine 2]

Steps: oct 5 511
Oct 6. . 8
oct 7. 451
Oct 8. 571
Oct 9 514
Oct 10 513
Oct 11 1,064
Oct 12 707

Today I swam for the first time since this decline took place. I swam for 22 minutes 1920 feet about 1/3 mile.
DH wheels me to the steps and back since at that time of day I can't walk the 12 steps back and forth.

[agate]

Bravo, Sunshine! You're probably keeping up your muscle tone and doing all kinds of other beneficial things even though it's an effort.

[stillstANNding]

I’m so happy to see you are back in the water, Sunshine, and that in October you were able to go from 8 steps to over 1000. That is perseverance.

ANN

[Virginia]

I echo what Ann had to say Sunshine. You went from 8 steps up to 1064 in about 6 days. Then you started swimming again. You are doing really good.

[agate]

Some step counts--there are 3 missing days when the pedometer wasn't in a good mood:

10/2/21 - 1386 steps
10/4/21 - 1553 "
10/5/21 - 1630 "
10/6/21 - 2155 "
10/7/21 - 1411 "
10/8/21 - 752 "
10/10/21 -1502 "
10/11/21 - 1341 "
10/12/21 - 1404 "
10/13/21 - 1651 "
10/14/21 - 1361 "

[Virginia]

Agate, these are wonderful step counts. 10/6 must have been a day when you either chased the Postman down or did a walk around of your complex - also 10/13 and 10/10 and 10/5, and on and on you went in September.

[Sunshine 2]

Great job agate!
Yesterday I walked 10 steps.
The day before I walked 103 steps which I paid dearly with increased spasticity.

I don't know what is going on here. But it looks so far like the same issue will happen today.

[Virginia]

I am wondering if something is going on with your pump Sunshine. Does it need to be checked to see if it is still operating correctly?

[Sunshine 2]

The pump has yet to help. At the same time, the SPS progresses; like MS, it is a progressive disease, not static.
They will be testing the pump soon if the next increase doesn't start working: the concern is the the tube has slipped out of the spinal cord so that the liquid is simply going into the body, doing no harm, but no good either.

[Sunshine 2]

I have been walking about 30 steps per day

Today, I swam for 24 minutes, about 1/3 mile. DH takes me to the water and back to the shower in a transport chair as the 12 steps to the water is too far.
It is the first time in a while I had the time for a swim: either a 3x per week enema or a doctor's visit, or the need to cook a meal for 3 days with my housekeeper's help, or IVIG has gotten in the way.

In the afternoon, I am in poor shape for cooking, swimming or really doing much of anything other than relaxing.

[agate]

Sounds as if you have to grab the good moments and make the best of them, and they are all too rare, Sunshine. I hope that the pump situation can be improved for you.

But swimming 1/3 of a mile is fantastic! And I'm sure it did you a world of good.